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Everything posted by GoVanGogh

  1. Thank you to the PP that posted Bush’s speech today. I appreciated his words. I feel safe posting this here. I hate 9/11. I hate hearing “Never forget,” because I can still feel that day. I didn’t lose anyone on 9/11, but that day is still so vivid in my memory. I remember every tiny detail, down to how our furniture was arranged and where I sat and when. My stepsister lived and worked near the towers and the fear we all felt that day is still raw. Every year, I get emotional in the days leading up to the 11th. I contacted my therapist to get an appt this week but she was out in training, so I am not seeing her until next week. It will be the first time I have talked to a “professional” about that day. I was a high-risk pregnancy on 9/11. My neighbor came over with a flag the next day and asked if we wanted him to install it for us. He thought we might want one and knew I wasn’t able to get out to find one. It is odd. What Bush said today about neighbors reaching out to neighbors hand. In a way, that is what we did with the flag. He brought us the flag and we sat and talked. His wife’s plane had been diverted to Canada and it would be days before she made it back home. He was my age and died of cancer just a few years after that. His daughter was just in town last month, with her newborn baby. It really hit me how young my neighbor had been and how much time has passed since 2001.
  2. I am in Texas. A few of my own concerns: 1.) I developed HELLP syndrome and had an emergency csection. How would a medical crisis such as this be impacted? As someone mentioned above, minutes count in such a situation. What about my friend that opted to carry a carry a baby with severe chromosome defects, with no chance of survival? 2.) I have a family member with mental health issues. She routinely threatens government reporting and calls the police on anything she disagrees with, such as our homeschooling or my sibling’s choice in spouse. She is now empowered to sue anyone, with no cause or justification. She now has one more tool to hold over anyone’s head. 3.) I am an online book seller. I had a book damaged in shipping and the buyer (a retired lawyer) sent me a certified letter threatening to sue me for damages. Never mind that the book was insured and he was out nothing, he was still going to sue me for $10,000 for a $100 book that the shipping company had already reimbursed. We looked up his law certificate and he passed the bar in 1950-something, so we figured he had to be close to 95 years old. Probably now just some cranky old man. Still. It was an eye opening experience. Imagine if he can now threaten a lawsuit on… anyone? Under the new texas law, an taxi driver can be sued if someone thinks their passenger may have had an abortion and they were the one to drive the person to the medical facility.
  3. We used Home Chef for a while. I liked them but thought they had too many gravies and sauces. Switched to Green Chef, gluten free option. Loved them. Only stopped because DS was home from college for summer and I needed to cook for three, not two. I loved the variety of vegetables in Green Chef. It really got me out of a food rut and trying new things, prepared with spices that I had not explored on my own.
  4. I have young onset PD, with onset of symptoms before age 50. PD is an umbrella term and every case is unique. Some cases start with neurological issues, while others start with digestive issues. Some people have tremors, some never do.
  5. “No is a complete sentence.” I get it. I have a hard time saying No and I am an empath, want to help everyone. But I have also learned that I need to say No because I need to take care of myself (physically and emotionally) first.
  6. I bought a Breville about ten years ago and love it. I don’t think it is messy or too much of a pain to clean. I tend to juice enough for 2 days at a time, just because I do it in an assembly line manner and this works better for me. The pulp is very dry. I used to compost the pulp, but am not composting right now. I have never tried to cook with the pulp, though my juicer came with a recipe booklet that included recipes using the pulp. I have had stomach/digestion issues all my life, plus chronic inflammation and multiple autoimmune issues. Two years ago I was diagnosed with young onset Parkinson’s. I know I feel so much better when I juice on a regular basis. I do think that is partly because I start to crave green juice and drink that vs craving and eating, say, ice cream. LOL I really don’t care regarding the sugar or fiber issue. When I juice, i want to eat healthier throughout the day and I get plenty of fiber from other areas of my diet and reduce sugar consumption overall. edited to add: I do rinse my machine immediately after using, so nothing dries on. I think that helps with cleanup.
  7. Re: Physical therapy My neurologist sent me to PT for my Parkinson’s diagnosis. I had a horrible experience with the physical therapist (he only wanted to work on keeping me where I was and not getting worse, when I wanted to work on getting better), then insurance refused to pay for any more than 8 sessions a year. I am now seeing a personal trainer and it has been a game changer for me. It is expensive but has given me my life back. Re: Swimming I have been begging DH to put in a pool. I feel so much better in the water! I can’t always trust that the pool at the gym will be warm enough and I have learned the hard way not to go ahead and get in the pool if it is too cool.
  8. Interesting on TH. My SIL has been on it for bipolar for many years. It has been a life saver for her, as pharmaceutical meds did not work for her. Like me, my SIL also has thyroid (Hashimoto’s) and chronic low vitamin D.
  9. I have a very narrow band as well. Like 80-100 degrees. But no bright sunshine, as that really bothers my eyes and sets off my neuropathy. Same with exercise. I have to move to keep from stiffening up but too much or I am crying in intense pain. Nothing fast or bouncy. No loud, fast music. No strobe lights. (Which eliminates a lot of spin classes.)
  10. I have fibro, plus young onset Parkinson’s. I don’t know where one pain ends and the other begins, so your mileage may vary. I am on muscle relaxers and anti inflammatory. Even with those, I have pain. 1.) I find I feel better when I move. It is so hard. Seriously hard. I do 1-2 hours of yoga almost every day. I have tried other forms of exercise, but yoga has been the best. About half of the yoga I do is yin style, which is floor based and relaxing, meditative. It is so soothing to my soul. 2.) Meditation. 3.) Anything that i find relaxing, like earthing. Or walking barefoot in the backyard or laying on the grass and reading outside. Really. Anything to reduce stress. 4.) Diet. This was so hard for me bc I have lost my sense of smell due to Parkinson’s and my taste buds have changed. I am buying as much of my food from the farmer’s market as possible. I have removed meat, reduced dairy and eggs. I think more in terms of “flooding my body with the freshest fruits and vegetables as possible.” I juice - always have a fresh green juice in fridge, plus one non-green one. Almost no sugar. 5.) Heat. I didn’t think I could ever do hot yoga but I have found that my body loves the heat. One of the yoga studios I go to uses infrared heat, which is suppose to be better for the body than just “hot” yoga. I also go to a spa from time to time. and use their infrared sauna. 6.) I am trying to detox my body and life as much as possible. edied to add: I have ongoing prescription for pain meds (Tylenol with codeine), but I am trying not to use them unless pain is unbearable.
  11. I haven’t read previous posts of yours re: this friend. But I have had chronic health issues for several years and was diagnosed with young onset Parkinson’s about 18 months ago. I was “lucky” in that my primary doctor suspected my health issues were neurological and sent me to a well respected neurologist that specializes in movement disorders. It often takes years of being sent to specialists before many are finally diagnosed with Parkinson’s. Chronic health issues are so exhausting. Not getting answers is even more exhausting. From my perspective, you hit a point where it doesn’t matter how “woo” something is, you need something to embrace, anything to get relief. If it is placebo or real doesn’t even matter at some point. With Parkinson’s, there is no cure, the meds only treat symptoms. It isn’t like cancer where time is crucial. I have fully embraced Eastern medicine, including yoga, meditation and acupuncture, along with tapping and extreme diet changes. I wouldn’t question your friend’s decisions. They are her decisions, not yours. This is her journey and only she knows what is going on in her body. And yeah, chronic health issues are so taxing mentally. If she gets relief from tapping, so be it. It is harmless to try it.
  12. I didn’t know about Tulsa until last year. DH didn’t know about it until a few days ago. Both of us graduated from Iowa schools in the 1980s. I didn’t know about Wilmington until just now, thanks to the link above. We were taught about the Oklahoma land rush and Trail of tears, but little else about Native American history. I still have my Iowa history project and I kept all of my Iowa history exams. We grew up near Council Bluffs and Lewis and Clark went through that area. DH and I didn’t know that until...10-12 years ago? When we were homeschooling and studied Lewis and Clark. I pulled out my Iowa history exams, which would have been taken in the late 1970s. Not a single question about Lewis and Clark. But we did have an entire test covering the Mormons camping north of Council Bluffs when they were forced westward.
  13. As an aside: I would look at the role gut health and chronic inflammation have to do with health issues. Possibly add in prebotiocs and probiotics. There are a number of books on the market regarding anti-inflammatory diet. I agree with Monica about jumping in rather than a slow transition. I started with a slow transition, then was compelled to jump straight in. I am glad I did. I started seeing faster gains in my health in a much shorter time and it was so motivating and encouraging.
  14. I was diagnosed with young onset Parkinson’s in 2019. After the initial shock, I realized I needed to make some major lifestyle adjustments. (I was diagnosed with celiac in 2005, so have been gluten free for a long time.) Three things that have really helped me: 1.) I now view food as medicine and think in terms of flooding my body with the healthiest, freshest food possible. 2.) I think in terms of what I am fortunate to be able to eat, such as tropical fruits (mangoes, pineapple....), avocados, etc. By ridding my diet (and budget) of meat and processed foods, I am able to afford (calorie, fat and money-wise) to eat, say two mangoes in one day or a whole avocado on a salad. 3.) I shop at a local farmer’s market so I can buy the freshest items possible and then plan meals around that. I read John Robbins’ book Diet for a New America. I didn’t particularly learn anything new in the book and some of the chapters drug on, but it did give me a much needed push to move to a plant based diet. I have dropped 15 pounds somewhat effortlessly and without feeling deprived. I have a few “treats” that I do still eat occasionally, such as Justin brand peanut butter cups. I now make taco salad with lentils instead of ground hamburger. I am just starting to explore how to incorporate lentils into meals, but that one was an easy switch. Besides diet, I would also look at the exercise component. The two really go together. Once you start feeling better, you get more active. Once you start working out and feeling better, you want to fuel your body better. Before I got sick,I was a long distance runner and gym rat. Now I hurt all the time and deal with horrible stiffness. But I am forcing myself to do something every single day. I dove into yoga as a way to heal body and soul, esp yin and restorative yoga. My neurologist sent me to physical therapy, which I hated and I wasn’t making any progress. I ended up hiring a personal trainer, which has been an amazing investment. He has also been able to help me with my diet.
  15. I am reading “What happened to you?” which is co-written by Oprah. It is a heavy read. This book discusses trauma, how it affects the body, why some people may be more affected by trauma, etc. This thread made me think of the research behind this book. My sister and I are only a year apart but very different lives and outcomes. My mom wanted neither one of her pregnancies, but her pregnancy with me was especially rough with a life changing event happening to her the day she found out she was pregnant with me. My sister and I were neglected and on our own quite a bit, but had loving extended family. My sister got pregnant on purpose at 16 to get out of our parents’ violent divorce. Alas, she married a man that was abusive. Their marriage lasted almost 25 years before she divorced him. She has never struggled with addictions, though has little education. I married young, though nowhere near as young as my sister. I married “up,” to someone with a college education and I went on to college. I have struggled with addictions and self harm since I was a teenager. My lowest point was around 45 years of age, when I was finally forced into treatment. My sister and I both have chronic health issues that I think likely stem from our childhood trauma. I think doctors are only now hitting the tip of the iceberg on the subject.
  16. I do not wear an apron, but I sell a lot of vintage aprons in my online shop. Younger people are wearing vintage aprons, esp fancier hostess aprons.
  17. I was thinking possible MS, too. i have EBV, Hashimoto’s thyroid, celiac and fibro. I started having some odd symptoms several years ago. Like, I would wake up and be unable to roll over in the bed bc my muscles would be so stiff and I couldn’t get any of my muscles to move. I was a runner, weight lifter and indoor cyclist at the time, and this stiffness and muscle heaviness would be terrible. I would be unable to lift a bag of groceries or walk up a flight of stairs. I tried to ignore symptoms for a while bc I was afraid it was MS. I finally went to dr and was sent to neurologist. After a year of testing and ruling out other issues (such as Lyme), he diagnosed me with young onset Parkinson’s. It has been a bit over a year since diagnosis and I am doing much better now, due to medications, supplements and diet and even more exercise than I thought possible. I find if I move, it is easier to keep moving! if you want to look more into diet, I suggest the Wahl’s protocol book. It was written by a doctor with MS, but was recommended to me as a good all around anti inflammatory diet.
  18. I just received my second dose this week. I am in tier 1b, underlying health issues. My young adult son has received one dose, also tier 1b with underlying health issues. I was registered in my county, but then found out that UT Southwestern was giving out vaccines to their patients. I was able to schedule appt for next day. First vaccine was in and out in less then 20 minutes. Second shot had an hour wait. I had no issues with either shot, aside from a mild sore arm. (Pfizer.) My son was scheduled through our county, which has a mass vaccine site at Texas Motor Speedway. He was unable to go the day he was scheduled. I figured he would be moved to the back of the line, but was emailed the next week with another appt date which he was able to make.
  19. Unexpected falls was one of the early symptoms of Parkinson’s for me. I was diagnosed with young onset Parkinson’s a year ago. Prior to diagnosis, I would fall for no reason. It was like my brain blanked out. OP: Have you seen a neurologist? If not, I would want to see one. Mine ordered a battery of tests to rule out seizures, sleep apnea, etc. A PD diagnosis is more process of elimination it won’t show up on an MRI or CTscan in the early stages Best wishes.
  20. Thank you so much for your reply. I have followed your long journey to diagnosis, as I was on a similar journey at the same time. Hugs to you! I have many of those supplements on my list to take. I have read of reversals... I am a bit skeptical but also very interested in taking a similar treatment path. I feel like I don’t have much to lose. re: your second post. It is illegal in my state but medicinal is allowed just across the border, which is less than an hour away. I am very open to trying it and Am okay being a court case if arrested. I am a new empty nester so don’t have to worry about cps. thank you so much for your reply.
  21. I have read about boxing and am very interested in trying this. Thank you.
  22. Thank you. I just bought the kindle version to read.
  23. What would you do, In terms of treatments -standard and alternative? Nutrition, mental, physical. I am on medication for severe nerve pain, and was already on meds for depression and anxiety. I was getting PT but now insurance is an issue. I may hire a personal trainer to help me with a workout plan. I plan to ramp up my yin yoga practice. My neurologist suggested stationary biking. Balance is a huge issue right now. I was getting acupuncture for some of the symptoms until covid shut down that center. They recently reopened and I plan to start back. At this point, nothing is too alternative to try. would love to hear some positive ideas and options. thanks.
  24. We just graduated our only child Last week. He was homeschooled all the way through. He will be going to university this fall. I have been anticipating this for several years now and started a small business three years ago. As DS started dual enrollment and needed less and less homeschooling, I expanded my business. I am excited to be done homeschooling. It was great. But I am ready to move on with my life.
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