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  1. Re: Physical therapy My neurologist sent me to PT for my Parkinson’s diagnosis. I had a horrible experience with the physical therapist (he only wanted to work on keeping me where I was and not getting worse, when I wanted to work on getting better), then insurance refused to pay for any more than 8 sessions a year. I am now seeing a personal trainer and it has been a game changer for me. It is expensive but has given me my life back. Re: Swimming I have been begging DH to put in a pool. I feel so much better in the water! I can’t always trust that the pool at the gym will be warm enough and I have learned the hard way not to go ahead and get in the pool if it is too cool.
  2. Interesting on TH. My SIL has been on it for bipolar for many years. It has been a life saver for her, as pharmaceutical meds did not work for her. Like me, my SIL also has thyroid (Hashimoto’s) and chronic low vitamin D.
  3. I have a very narrow band as well. Like 80-100 degrees. But no bright sunshine, as that really bothers my eyes and sets off my neuropathy. Same with exercise. I have to move to keep from stiffening up but too much or I am crying in intense pain. Nothing fast or bouncy. No loud, fast music. No strobe lights. (Which eliminates a lot of spin classes.)
  4. I have fibro, plus young onset Parkinson’s. I don’t know where one pain ends and the other begins, so your mileage may vary. I am on muscle relaxers and anti inflammatory. Even with those, I have pain. 1.) I find I feel better when I move. It is so hard. Seriously hard. I do 1-2 hours of yoga almost every day. I have tried other forms of exercise, but yoga has been the best. About half of the yoga I do is yin style, which is floor based and relaxing, meditative. It is so soothing to my soul. 2.) Meditation. 3.) Anything that i find relaxing, like earthing. Or walking barefoot in the backyard or laying on the grass and reading outside. Really. Anything to reduce stress. 4.) Diet. This was so hard for me bc I have lost my sense of smell due to Parkinson’s and my taste buds have changed. I am buying as much of my food from the farmer’s market as possible. I have removed meat, reduced dairy and eggs. I think more in terms of “flooding my body with the freshest fruits and vegetables as possible.” I juice - always have a fresh green juice in fridge, plus one non-green one. Almost no sugar. 5.) Heat. I didn’t think I could ever do hot yoga but I have found that my body loves the heat. One of the yoga studios I go to uses infrared heat, which is suppose to be better for the body than just “hot” yoga. I also go to a spa from time to time. and use their infrared sauna. 6.) I am trying to detox my body and life as much as possible. edied to add: I have ongoing prescription for pain meds (Tylenol with codeine), but I am trying not to use them unless pain is unbearable.
  5. I haven’t read previous posts of yours re: this friend. But I have had chronic health issues for several years and was diagnosed with young onset Parkinson’s about 18 months ago. I was “lucky” in that my primary doctor suspected my health issues were neurological and sent me to a well respected neurologist that specializes in movement disorders. It often takes years of being sent to specialists before many are finally diagnosed with Parkinson’s. Chronic health issues are so exhausting. Not getting answers is even more exhausting. From my perspective, you hit a point where it doesn’t matter how “woo” something is, you need something to embrace, anything to get relief. If it is placebo or real doesn’t even matter at some point. With Parkinson’s, there is no cure, the meds only treat symptoms. It isn’t like cancer where time is crucial. I have fully embraced Eastern medicine, including yoga, meditation and acupuncture, along with tapping and extreme diet changes. I wouldn’t question your friend’s decisions. They are her decisions, not yours. This is her journey and only she knows what is going on in her body. And yeah, chronic health issues are so taxing mentally. If she gets relief from tapping, so be it. It is harmless to try it.
  6. I didn’t know about Tulsa until last year. DH didn’t know about it until a few days ago. Both of us graduated from Iowa schools in the 1980s. I didn’t know about Wilmington until just now, thanks to the link above. We were taught about the Oklahoma land rush and Trail of tears, but little else about Native American history. I still have my Iowa history project and I kept all of my Iowa history exams. We grew up near Council Bluffs and Lewis and Clark went through that area. DH and I didn’t know that until...10-12 years ago? When we were homeschooling and studied Lewis and Clark. I pulled out my Iowa history exams, which would have been taken in the late 1970s. Not a single question about Lewis and Clark. But we did have an entire test covering the Mormons camping north of Council Bluffs when they were forced westward.
  7. As an aside: I would look at the role gut health and chronic inflammation have to do with health issues. Possibly add in prebotiocs and probiotics. There are a number of books on the market regarding anti-inflammatory diet. I agree with Monica about jumping in rather than a slow transition. I started with a slow transition, then was compelled to jump straight in. I am glad I did. I started seeing faster gains in my health in a much shorter time and it was so motivating and encouraging.
  8. I was diagnosed with young onset Parkinson’s in 2019. After the initial shock, I realized I needed to make some major lifestyle adjustments. (I was diagnosed with celiac in 2005, so have been gluten free for a long time.) Three things that have really helped me: 1.) I now view food as medicine and think in terms of flooding my body with the healthiest, freshest food possible. 2.) I think in terms of what I am fortunate to be able to eat, such as tropical fruits (mangoes, pineapple....), avocados, etc. By ridding my diet (and budget) of meat and processed foods, I am able to afford (calorie, fat and money-wise) to eat, say two mangoes in one day or a whole avocado on a salad. 3.) I shop at a local farmer’s market so I can buy the freshest items possible and then plan meals around that. I read John Robbins’ book Diet for a New America. I didn’t particularly learn anything new in the book and some of the chapters drug on, but it did give me a much needed push to move to a plant based diet. I have dropped 15 pounds somewhat effortlessly and without feeling deprived. I have a few “treats” that I do still eat occasionally, such as Justin brand peanut butter cups. I now make taco salad with lentils instead of ground hamburger. I am just starting to explore how to incorporate lentils into meals, but that one was an easy switch. Besides diet, I would also look at the exercise component. The two really go together. Once you start feeling better, you get more active. Once you start working out and feeling better, you want to fuel your body better. Before I got sick,I was a long distance runner and gym rat. Now I hurt all the time and deal with horrible stiffness. But I am forcing myself to do something every single day. I dove into yoga as a way to heal body and soul, esp yin and restorative yoga. My neurologist sent me to physical therapy, which I hated and I wasn’t making any progress. I ended up hiring a personal trainer, which has been an amazing investment. He has also been able to help me with my diet.
  9. I am reading “What happened to you?” which is co-written by Oprah. It is a heavy read. This book discusses trauma, how it affects the body, why some people may be more affected by trauma, etc. This thread made me think of the research behind this book. My sister and I are only a year apart but very different lives and outcomes. My mom wanted neither one of her pregnancies, but her pregnancy with me was especially rough with a life changing event happening to her the day she found out she was pregnant with me. My sister and I were neglected and on our own quite a bit, but had loving extended family. My sister got pregnant on purpose at 16 to get out of our parents’ violent divorce. Alas, she married a man that was abusive. Their marriage lasted almost 25 years before she divorced him. She has never struggled with addictions, though has little education. I married young, though nowhere near as young as my sister. I married “up,” to someone with a college education and I went on to college. I have struggled with addictions and self harm since I was a teenager. My lowest point was around 45 years of age, when I was finally forced into treatment. My sister and I both have chronic health issues that I think likely stem from our childhood trauma. I think doctors are only now hitting the tip of the iceberg on the subject.
  10. I do not wear an apron, but I sell a lot of vintage aprons in my online shop. Younger people are wearing vintage aprons, esp fancier hostess aprons.
  11. I was thinking possible MS, too. i have EBV, Hashimoto’s thyroid, celiac and fibro. I started having some odd symptoms several years ago. Like, I would wake up and be unable to roll over in the bed bc my muscles would be so stiff and I couldn’t get any of my muscles to move. I was a runner, weight lifter and indoor cyclist at the time, and this stiffness and muscle heaviness would be terrible. I would be unable to lift a bag of groceries or walk up a flight of stairs. I tried to ignore symptoms for a while bc I was afraid it was MS. I finally went to dr and was sent to neurologist. After a year of testing and ruling out other issues (such as Lyme), he diagnosed me with young onset Parkinson’s. It has been a bit over a year since diagnosis and I am doing much better now, due to medications, supplements and diet and even more exercise than I thought possible. I find if I move, it is easier to keep moving! if you want to look more into diet, I suggest the Wahl’s protocol book. It was written by a doctor with MS, but was recommended to me as a good all around anti inflammatory diet.
  12. I went back to the gym last summer. I had been diagnosed with young onset Parkinson’s and was in physical therapy and hated it and then insurance wouldn’t pay for more sessions so I hired a personal trainer at the gym. I am now fully vaccinated, but I worked out 4-6 times a week at the gym for 8 or so months. I needed to go back to the gym for my mental and physical health. I couldn’t safely workout at home alone at first. My mental health has been low bc of my diagnosis and I needed to work against any decline mentally and physically. My gym takes everyone’s temps when they enter. Masks are required unless on a machine or on your spot for a class. They are constantly cleaning. I never felt unsafe. I don’t know if I was just fortunate? But my doctors believe covid was spreading in this metropolitan area for at least two months before it was on everyone’s radar. We live five miles from a major international airport with direct flights to China. Several of my doctors have told me that they are now testing patients for antibodies and finding a significant number of their patients have antibodies, most likely from their “flu like” illnesses in January and February. One of my doctors was going to test me this month for covid antibodies but then I was able to get vaccinated.
  13. I just received my second dose this week. I am in tier 1b, underlying health issues. My young adult son has received one dose, also tier 1b with underlying health issues. I was registered in my county, but then found out that UT Southwestern was giving out vaccines to their patients. I was able to schedule appt for next day. First vaccine was in and out in less then 20 minutes. Second shot had an hour wait. I had no issues with either shot, aside from a mild sore arm. (Pfizer.) My son was scheduled through our county, which has a mass vaccine site at Texas Motor Speedway. He was unable to go the day he was scheduled. I figured he would be moved to the back of the line, but was emailed the next week with another appt date which he was able to make.
  14. Unexpected falls was one of the early symptoms of Parkinson’s for me. I was diagnosed with young onset Parkinson’s a year ago. Prior to diagnosis, I would fall for no reason. It was like my brain blanked out. OP: Have you seen a neurologist? If not, I would want to see one. Mine ordered a battery of tests to rule out seizures, sleep apnea, etc. A PD diagnosis is more process of elimination it won’t show up on an MRI or CTscan in the early stages Best wishes.
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