I think this is your oldest or only child. For those of us who have been trying to work through challenges for our kiddos you may not realize how much stuff is out there. Some good some crazy some just to take your money. Whatever you find out for your daughter take your time and do your research. also I am always Leary of people who test my child also selling me things. I have read 5 books on CAPD over the years I have read all kinds of research. The conclusions are all over the place. I am very interested in this filter because it sounds like a dynamic filter that removes some noise and helps clear out the background. I know there have been studies where FM systems have significantly improved results in classrooms for both CAPD children and ADHD children. My son has CAPD and it truly does help to have that sound right where he can hear it. I just wonder about how much a child would wear it and if it would get broken? We have a set of bone conduction headphones that we have lovingly guarded. I feel for parents whose children have hearing aids because those litter buggers are so expensive. In homeschooling I do not find my son has CAPD challenges if I am teaching him in a quiet environment and one on one. Ofcourse in school that is not an option. Your kiddo is quite young. I didn't realize you were traveling so far for testing. Please let us know what you find out.
I definitely will.
I don't know if you missed it, but this is the explanation of how it works:
If sound is combining into the the ears at different rates for each ear....the filter goes in one ear and it will slow the sound down before it reaches the point of processing making the sound in both ears more synchronized. The example was the doors on a train. When they are wide open the people get off quickly. But if the doors are narrowed it takes longer for the people to get off. That's what the filter does....it slows down the sound in one ear and enables better synchronization
Yeah, I'm usually pretty skeptical about places that test to sell you things too. But, one thing that struck me was that this is a non-profit foundation that doesn't really advertise their filter. It's mentioned under the management solutions part of their page, but there are no pictures or anything. I would never have found out about it had I not been on Facebook! It also makes me feel confident in them to know that not every body is a candidate for the filter. Some people don't see a benefit from it in testing, so an FM system is recommended instead. I feel like that also speaks to the integrity of their service. Plus, they have scholarships for those that make under a certain amount.
(I know you weren't saying they are just selling a product. I had initially had that thought though, so I've done a lot of thinking and asking questions. So, this is more just explaining what my thought process was, I guess.)
I've been so impressed with the stories of their patient care. A parent was discussing how the fit of their filter isn't quite right and it needs an adjustment, but she'd like it back before Thanksgiving. So, they're discussing solutions. This comment just totally impressed me:
We have had such adjustments done in as little as 2-4 days using UPS overnight or second day air. In fact, we are in the midst of such an adjustment now. Shipping is pricey but our daughter is a freshman in college and has trouble coping with everything without the filter. On Wed., we called Able Kids, told them we were desperate (other filter has been lost) and asked if the doctor had time on Thursday to adjust... they said only in the morning because Dr Locke had a meeting out of the office in the afternoon. We sent the filter overnight to arrive Thursday at 10:30. She adjusted it and Rexann dropped it in the UPS box in the afternoon. We are to receive it tonight by 7. Whew! Praying it's right because our daughter needs it so much. She is home from college now but going back Sunday! Sometimes these adjustments have to be done 2-3 times for us...but the results are worth it. Able Kids is amazing.
Another mom was commenting on a question of mine and said: they are special people. To this day, I can email the doc a question and she almost always responds same day and a couple of times has chosen to talk on the phone free of charge!!!
We are traveling far, but my husband is honestly so stressed by all of this with Riv. He is so facts oriented and he is so great at fixing things at his job. He can't fix this on his own and it is worrisome to him. So, for him, traveling for this was almost non-negotiable. I've even questioned the sanity of going for a "what if" and he's not budging. lol Even if we go and she does not have APD, we at least have an early answer and can move on to other avenues.
**And totally random since I think it's neat - the main audiologist who tests right now was trained under Dr. Joan Burleigh. Dr. Burleigh is the co-founder of Able Kids and she also tested Temple Grandin's auditory processing. She's mentioned in Temple Grandin's book.
How much would a child wear it?
Most wear it all the time, except in water.
If something is wrong, you can send it in to get it fixed for around $25.
If it's lost, then you'll pay $195.
I know that for younger kids, they can also do a clip/cord in the mold of the filter which can then attach to the child's shirt.
Edited by Southern Ivy, 11 November 2017 - 10:32 AM.