sheryl Posted February 5, 2011 Share Posted February 5, 2011 My almost 12 yo dd had a grand mal March 2007 when she was about to turn 8. She has been on meds since around mid 2007 and today marks her 3rd year "anniversary" of being seizure-free... Feb. 5, 2008!! I was a basket case that year of on-set epilepsy and I did not handle things well. All of this to say that God reminded me to trust Him. Now, I don't know when she starts her cycle or for any other reason if she'll resume her seizures, but I now have a different perspective of peace even among the trying circumstances. The doctors were fairly certain back then and continue to this day to believe she will outgrow it. I do so hope this is an encouragement for one or more of you out there. Praise to God! Sheryl <>< Quote Link to comment Share on other sites More sharing options...
Ottakee Posted February 5, 2011 Share Posted February 5, 2011 That is great. We have never had the grand mal here but they are scary. Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted February 5, 2011 Share Posted February 5, 2011 What a happy anniversary.:001_smile: Quote Link to comment Share on other sites More sharing options...
sheryl Posted February 5, 2011 Author Share Posted February 5, 2011 Thanks O and Jean!! We are so grateful and thrilled!! :hurray::hurray::hurray: Quote Link to comment Share on other sites More sharing options...
Barry Goldwater Posted February 5, 2011 Share Posted February 5, 2011 Praise to God! Sheryl <>< Amen!:hurray: Quote Link to comment Share on other sites More sharing options...
Jennifer in MI Posted February 5, 2011 Share Posted February 5, 2011 Woohoo!!!!! That is definitely something to celebrate! My ds only had one grand mal seizure and that was when he was 7. He's now 10 and it was this time of year. Hmmm. . . I bet our anniversaries are close! Anyway, he hasn't had one since either. (He was not put on meds.) I sure watched him closely for those first couple years though. And, I'll NEVER, EVER forget how he looked and how terrible it was watching the police officer grab my seizing child and run him out the the waiting ambulance and watching them pull away. I was SO scared to go to the ER and find out he had died. That was the SCARIEST ride of my life. (Would you believe they had a police car meet me on the main street to give me an escort to the hospital! I love it here!) I'm in tears just remembering it. A nurse met me at the door (I guess she knew the look of panic on my face as I came running into the ER!) and told me right away that he was conscious, but not responsive. It was HORRIBLE! He seemed to know who I was, but he couldn't talk. He couldn't control his movements. That lasted for a couple hours. Luckily he has NO memory of that. He does, however, remember the second ambulance ride to the other hospital in town where he was transferred. He also remembers the WONDERFUL hospital food and his own private tv!! LOL Wow. That was long. Sorry. Just know I can definitely celebrate with you!! Quote Link to comment Share on other sites More sharing options...
sarahj Posted February 5, 2011 Share Posted February 5, 2011 Happy anniversary to your DD. I can relate as I have been seizure-free for thirteen years now. Quote Link to comment Share on other sites More sharing options...
kjdkek Posted February 5, 2011 Share Posted February 5, 2011 What a happy day for you!! Happy 3rd Anniversary!!!:001_smile: Quote Link to comment Share on other sites More sharing options...
sheryl Posted February 5, 2011 Author Share Posted February 5, 2011 Amen!:hurray: Barry, thanks...you are so appreciated!! Woohoo!!!!! That is definitely something to celebrate! My ds only had one grand mal seizure and that was when he was 7. He's now 10 and it was this time of year. Hmmm. . . I bet our anniversaries are close! Anyway, he hasn't had one since either. (He was not put on meds.) I sure watched him closely for those first couple years though. And, I'll NEVER, EVER forget how he looked and how terrible it was watching the police officer grab my seizing child and run him out the the waiting ambulance and watching them pull away. I was SO scared to go to the ER and find out he had died. That was the SCARIEST ride of my life. (Would you believe they had a police car meet me on the main street to give me an escort to the hospital! I love it here!) I'm in tears just remembering it. A nurse met me at the door (I guess she knew the look of panic on my face as I came running into the ER!) and told me right away that he was conscious, but not responsive. It was HORRIBLE! He seemed to know who I was, but he couldn't talk. He couldn't control his movements. That lasted for a couple hours. Luckily he has NO memory of that. He does, however, remember the second ambulance ride to the other hospital in town where he was transferred. He also remembers the WONDERFUL hospital food and his own private tv!! LOL Wow. That was long. Sorry. Just know I can definitely celebrate with you!! Oh Jennifer, I remember....as you and I have spoken many times on many subjects. I think of you and your ds every now and then. And, don't apologize....I could hear your story again and again...it's encouraging! Thanks, friend! Happy anniversary to your DD. I can relate as I have been seizure-free for thirteen years now. Sarah, THANKS for sharing that. Wonderful to hear!!!! Quote Link to comment Share on other sites More sharing options...
Sasharowan Posted February 5, 2011 Share Posted February 5, 2011 Congratulations! Next fall will be 3 years off the meds for my dd and this summer will be 2 years med free for ds9. It's a great feeling, isn't it. Quote Link to comment Share on other sites More sharing options...
Sparkle Posted February 5, 2011 Share Posted February 5, 2011 Good news, I'm glad to hear it :) Quote Link to comment Share on other sites More sharing options...
Tammyla Posted February 5, 2011 Share Posted February 5, 2011 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Rosie_0801 Posted February 5, 2011 Share Posted February 5, 2011 That is great news. Dh had a seizure last week, but fortunately it was a relatively mild one because he was starting a new job two days later! It must be the most awful thing to watch your child go through it. :crying: I surely hope neither of ours acquire epilepsy... Rosie Quote Link to comment Share on other sites More sharing options...
sheryl Posted February 6, 2011 Author Share Posted February 6, 2011 What a happy day for you!! Happy 3rd Anniversary!!!:001_smile: Congratulations! Next fall will be 3 years off the meds for my dd and this summer will be 2 years med free for ds9. It's a great feeling, isn't it. Good news, I'm glad to hear it :) :grouphug::grouphug::grouphug: Kjdkek, Sasharowan, Sparke and Tammyla, Thanks! :grouphug: I appreciate it. Also,, I'm typing w/o my glasses on, so I hope I spelled all names correctly! That is great news. Dh had a seizure last week, but fortunately it was a relatively mild one because he was starting a new job two days later! It must be the most awful thing to watch your child go through it. :crying: I surely hope neither of ours acquire epilepsy... Rosie Rosie, :grouphug: Is this your dh's first seizure? I believe it's classified epilepsy when person experiences that 2nd seizure. And, I hope your dh does not, but keep a watchful eye on him. Take care!! Quote Link to comment Share on other sites More sharing options...
Sahamamama Posted February 6, 2011 Share Posted February 6, 2011 That's a great anniversary to celebrate! Our neighbor turned 88 last week. She told us, "Yes, but I celebrate another birthday every year -- the day we were released from the concentration camp." So there are many birthdays and re-birthdays, right? Congratulations. Quote Link to comment Share on other sites More sharing options...
4kiddies Posted February 6, 2011 Share Posted February 6, 2011 I too had my first seizure when I was eight and was weaned off the meds when I was around 15. I'm now in my thirties so I have been seizure free for more than half my life . Congrats on the milestone:hurray: Quote Link to comment Share on other sites More sharing options...
sheryl Posted February 6, 2011 Author Share Posted February 6, 2011 That's a great anniversary to celebrate! Our neighbor turned 88 last week. She told us, "Yes, but I celebrate another birthday every year -- the day we were released from the concentration camp." So there are many birthdays and re-birthdays, right? Congratulations. Oh my, yes, thanks so much for sharing that. There is a Jewish woman who speaks every now and then at our church and also in our local h'schooling community that lived during that terrible time. Honestly, a book or movie could be made from her life experiences. She was an opera singer and (I'm going on memory here) she recorded a song for one of the versions of a Disney movie. *** Now I might have botched that up, but it's either that or something like that. She'd be in her early to mid 90's now, I believe and such a beautiful woman, inside and out. She explained how she was always "one step ahead" of the soldiers and so much more. She wrote a book which I haven't had the time to read, but I should try to find out the name of it and mention it on this board in case anyone is interested. Thanks. S <>< Quote Link to comment Share on other sites More sharing options...
jenL Posted February 6, 2011 Share Posted February 6, 2011 That is wonderful news, Sheryl! Congrats to both of you! Hoping she stays seizure free for the future. Quote Link to comment Share on other sites More sharing options...
sheryl Posted February 6, 2011 Author Share Posted February 6, 2011 I too had my first seizure when I was eight and was weaned off the meds when I was around 15. I'm now in my thirties so I have been seizure free for more than half my life . Congrats on the milestone:hurray: Oh, thanks for sharing that. That gives me much more insight. We've been told by her neurol that they need to see how she handles the onset of her cycle and those wild hormomes...:D So GLAD to hear you are seizure free. Your history of seizure lines up almost exactly with my dd. She was 7 y 10 m. On meds and at the end of that first year became seizure free. That was 3 years ago. Incredible how similar the 2 situations are. Congrats to ya and thanks much!! S <>< :hurray: Quote Link to comment Share on other sites More sharing options...
sheryl Posted February 6, 2011 Author Share Posted February 6, 2011 That is wonderful news, Sheryl! Congrats to both of you! Hoping she stays seizure free for the future. Thanks Jen! Quote Link to comment Share on other sites More sharing options...
Rosie_0801 Posted February 6, 2011 Share Posted February 6, 2011 Rosie, :grouphug: Is this your dh's first seizure? I believe it's classified epilepsy when person experiences that 2nd seizure. And, I hope your dh does not, but keep a watchful eye on him. Take care!! No, it's not. Epilepsy set in at the same time as his hearing loss, at about age 18. Such is life, huh. That's why I'm enjoying so much reading about kiddies outgrowing it and coming off their meds. :) Rosie Quote Link to comment Share on other sites More sharing options...
sheryl Posted February 6, 2011 Author Share Posted February 6, 2011 No, it's not. Epilepsy set in at the same time as his hearing loss, at about age 18. Such is life, huh. That's why I'm enjoying so much reading about kiddies outgrowing it and coming off their meds. :) Rosie Oh, I see. How often does he have seizures and what type does he have, Rosie? Quote Link to comment Share on other sites More sharing options...
Rosie_0801 Posted February 6, 2011 Share Posted February 6, 2011 (edited) Oh, I see. How often does he have seizures and what type does he have, Rosie? Grand mal, or whatever they are called now. I think there is an updated name? Whatever, you know what I mean :) Now he's a responsible, grown up, father of 2, he is having them less often. How odd that taking meds regularly would produce such an outcome! :glare::tongue_smilie: He used to have one routinely every 5 months or so, but this one last week was the first since we moved down here last May. He'd been taking his meds, but it snuck through. He gets enough warning to put himself somewhere safe, which is something to be very thankful for. And his subconscious knows where he lives, so he'll turn up home even if he's missing his backpack. His subconscious gets him into trouble occasionally. Post-fit last week, he refused to go back to bed to sleep until he'd checked on his laptop. :glare: Rosie Edited February 6, 2011 by Rosie_0801 Quote Link to comment Share on other sites More sharing options...
Heather in Neverland Posted February 6, 2011 Share Posted February 6, 2011 :party: Happy anniversary!!!! I am so glad your daughter has not had to deal with the seizures and I pray for continued relief from them. Quote Link to comment Share on other sites More sharing options...
sheryl Posted February 6, 2011 Author Share Posted February 6, 2011 Grand mal, or whatever they are called now. I think there is an updated name? Whatever, you know what I mean :) Now he's a responsible, grown up, father of 2, he is having them less often. How odd that taking meds regularly would produce such an outcome! :glare::tongue_smilie: He used to have one routinely every 5 months or so, but this one last week was the first since we moved down here last May. He'd been taking his meds, but it snuck through. He gets enough warning to put himself somewhere safe, which is something to be very thankful for. And his subconscious knows where he lives, so he'll turn up home even if he's missing his backpack. His subconscious gets him into trouble occasionally. Post-fit last week, he refused to go back to bed to sleep until he'd checked on his laptop. :glare: Rosie I see. It's good he is having them less often and kudos to him for recognizing an onset is looming. As you know, some people, and it sounds like your dh, have an "aura" which precipitates an episode: ie) a certain odor, bright light, etc. before the actual seizing occurs. He can certainly take precautions to protect himself and it sounds like he does just that! Yes, the meds have been a blessing for my dd. On them she is controlled with doctors expecting to wean her from them in a few years as was mentioned in another reply post. Take care and if he goes looking for that laptop again (when he shouldn't) tell him the laptop was screaming for a break! :001_smile: :party: Happy anniversary!!!! I am so glad your daughter has not had to deal with the seizures and I pray for continued relief from them. Thanks, much appreciated!! Quote Link to comment Share on other sites More sharing options...
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