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Innisfree

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Everything posted by Innisfree

  1. Okay, thanks, I appreciate this information. She was on the pocket edition, and she had been playing with TNT. Maybe that's the answer (and one that makes me much happier than suspecting dd11, who had seemed genuinely upset for her sister). Who knew this game would get so complicated? And I know they've only just gotten started. ;-) Many thanks, not just to the boardies, but also to their kids who have offered suggestions. I appreciate the ideas!
  2. Lol, I'm afraid I actually understand these terms now! She was in creative mode, so no creepers. And since my two kids had been "visiting" each other and playing together, it was in multiplayer. Thanks for the ideas! It sounds like, given that we have a password on the router and are not on a shared server, this probably wasn't other kids hacking, I guess.
  3. Yes, there's a password. Thanks.
  4. Okay, thanks. As far as I know no one else should have access, but this is where my limited knowledge is a problem. The kids have not joined any server. They just play on their own devices, over our own home wifi. It's supposed to be secure, but I'm not sure how sophisticated a kid would need to be in order to get in. Sadly, I suppose I'll have to consider the possibility that dd11 did this. If it wasn't hacking, and it wasn't some glitch, that's the only alternative. Yuck. Impulse control is sometimes an issue, but they've mostly been working together really well on this. I'm afraid I hadn't even seriously considered her being responsible. Griefing... Ugh. What a nasty thing to do.
  5. Dds 13 and 11 recently started playing Minecraft. I know that doesn't work out well for everyone, but it's been really good for them. They've been cooperating on building their worlds and having a lot of fun. We have just a basic router that lets them play together on their Kindles via wifi. The router has a password, we've done the usual range of business on the internet, and we've never had a problem with it. But dd11 heard a couple of kids at the playground talking about hacking other people's Minecraft accounts and blowing their (virtual) buildings up. Then last night, dd 13 found her Minecraft house destroyed. She said it was the same landscape surrounding it, but a crater where the house had been. She'd worked hard on it, and she was pretty upset. So, is it plausible that tween-aged kids really are hacking our accounts? And if so, how worried should I be about more serious mischief involving emails and credit cards? I'm really feeling my age and digital ignorance here. Heck, I was in my thirties before I ever had the occasion to send or receive an email, but I don't like this feeling of bewilderment. I'm thinking I may sign up for a course at the library over the summer. In the meantime, any advice?
  6. Treasure Island, Kidnapped, maybe Jules Verne books could all be good if you don't have them on the list already as educational books. Susan Cooper's Dark Is Rising series might be a good fit.
  7. BT, DT. It was so, so hard, in every way, for my mother (whom we moved) and for me. Huge sympathy and hugs. When you say he has a hospice nurse... For us, that meant the doctor thought my mother was likely to die within a certain number of months. That was the requirement for prescribing hospice. But the doctor also said that sometimes people improved and went off hospice, then maybe back on later. So, do you have any sort of time frame from the doctor? And what exactly do you mean about the house being so bad? Clearly the layout isn't suitable. Clearly he can't manage financial affairs. Beyond that, is it utterly filthy? Is that the main reason you can't stay there? I'm trying to understand the details so maybe I can offer help. If you move him, what will happen to the house then? At some point it will have to be cleaned out. I'm wondering if there's any way to manage letting him stay, if his time frame is not very long. We ended up needing a potty chair by the bed for my mother, even though she had a bathroom steps away. So the bathroom might not even be an issue if you can make accommodations like that. We also needed a hospital bed, and hospice provided it. That helped with getting-up-and-down issues. You can probably do all this in your home, if you end up needing to move him. You're the only ones who can decide if moving him is necessary, and if you make that choice, it will be because it is really essential. How much you all love him is very clear. I know how hard it is, and I did make that choice and move my mother. She was also very rooted in her community and very unwilling to move. When I moved her, though, her life expectancy was significantly longer. Since he's already on hospice, I wonder if there's any way to manage letting him stay. Is there a local board that handles elders' issues? Or perhaps the hospice people might have some ideas? I've read your threads about Marco, and I have a child with autism who was a toddler when I cleaned out my mother's house. So, I do get it. The whole process was a nightmare. The feeling of responsibility is so hard, and knowing you have to be the ones to make that choice and trying to balance everybody's needs can be overwhelming. We really did have to move my mother, and maybe you do too. She was never reconciled to the move. It did hurt her very much. That just about broke my heart. But she also said that the best result of moving was getting to see her grandchildren so much more. She was an important part of their lives, and they brightened her life. So maybe, if you need to move him, there will be some times you can all treasure because he is living with you. I hope you can find peace and comfort with whatever you need to do. ETA: just skimmed all that was posted while I was writing. Clearly you have to do this. You are doing the right thing.
  8. Agreeing with everyone else on learning about boundaries and your BIL's own agency. One further point is that skills need to be practiced to be maintained. So no, regression in a medical sense isn't the issue. Actual present functioning is a separate issue from whatever BIL may have done in the past. And, as stated, college is a sheltered environment. I would make sure that your dh understands that he will make decisions through inaction just as much as through action. Actively deciding to speak up and challenge his parents' vision of the future may be profoundly uncomfortable. But living with the consequences of their decisions because he refused to clearly communicate may be profoundly uncomfortable, too, for all of you. If I saw this dynamic in my family, especially around such vitally important issues, I think I'd insist on family counseling if needed to achieve absolute clarity.
  9. Doing math with dd11. Very much the usual routine.
  10. You're right, things in the real world are rarely ideal. I understand that an annual weekly vacation with your husband's family isn't necessarily possible, though it would be good to do something like this at least once so you can get a better idea of your BIL's level of functioning, begin to get to know him, and let him begin to get to know you. Without those basic levels of understanding you can't really make the important decisions under discussion. I'm just saying that he needs to know you. I hear you saying that maybe he's been enabled, over the years, to be more dependent than he needs to be. I hear you saying that his parents are making decisions and thinking he will simply need to accept them. But my experience leads me to think that his disability may be more extensive than you *or perhaps even his parents* really grasp. It's very easy to become accustomed to the things that are normal in our lives and forget how outside the norm they actually are. I get reality checks like that from time to time when I see my dd with peers of the same age who do not have autism. Suddenly I realize again that she is not acting like all the other 11-year-olds. Consider the implications of the fact that you can't talk to him on the phone. Can he call in to work if he is sick? Can he call 911 in an emergency? Maybe yes, maybe no. These are things you need to know. There's probably a lot more. His disability is real. And he needs to have a sense of who you are. He needs to feel comfortable with you. This is not necessarily quick or easy to achieve. He needs to trust you if you're going to be at all involved in his life. The time to start building a relationship, whether it's in person, by email, by skype, or whatever, is now. That understanding and trust need to be in place before any move is made, and preferably before any significant decision is made. Care of dependent relatives does tend to take over one's life. Yes, vacations get spent in ways you wouldn't have chosen. But someday we'll be the ones needing help. You don't have to take on the job, you just need to be clear and open so they can make the best decisions possible. Finally, if the decision (with BIL's input) is that he needs to go into some sort of group home or other supported living situation eventually, please think about helping him make that transition before his parents become infirm. I've watched the disaster when that decision was left until after their death. It wasn't pretty. Encourage them to help him adjust while they are still able to ease the transition, so he doesn't have to cope with grief and life on his own all at once. I know this is all hard, and I am sympathetic to the magnitude of what your in-laws are asking of you. It really is okay to say no. Just understand that they need to clearly know your limits, and your BIL needs time to know you. Hugs and best wishes.
  11. Their planner is from India? Are they from India also? Cultural differences add a whole new element of potential difficulty, and this situation was sounding like it could get quite complicated already. I've done elder care and end-of-life care. It's hard enough when everyone is communicating clearly and openly. You really need to lay all your cards on the table, let them know what you will and will not do, and keep those limits clear. They are trying to do that, from the sound of things. You need to be just as clear about your limits. I have a dd with autism. I agree with everything TechWife has said about the possible needs there. If you and your husband think there is any chance of you two assuming any important role in his brother's life, please, for goodness sakes, devote some serious time and energy to getting to know him now. Anxiety plays a huge role in autism. I hate to think what the brother is feeling like as he hears all this discussed. His future is being bandied about, you all are being discussed as possible caregivers or "supervisors", and he doesn't even know you. The role you are being asked to play in his life is serious and significant. He has apparently threatened suicide: that should be a hint that he is feeling anxious. Please take these possibilities seriously. For example, spend a week or so with him and the in-laws every year, write him via emails, letters, whatever it takes. If you have any thought that you might take on this responsibility, then start letting him get to know you in a serious way now. If you have no intention of being closely involved in his life, tell his parents now. He needs to know who you are and that you care about him, or you need to remove yourselves from this planning process and all future scenarios immediately and clearly. I hope this doesn't come across as unkind; it is not meant that way. But the impression I get from this thread is one of waffling, uncertainty, and unwillingness to be clear about boundaries. I can picture how much pain this situation would cause the individuals with autism I know, and it makes me hurt just to read it. I think it's time to get to know the brother and learn a lot about autism.
  12. How long has he been at the LD school? Is this the school that most of his friends are leaving? Have you talked with them about your concerns? How does your ds feel about the LD school? Is he bored, or does he feel like he's appropriately challenged and succeeding? Agreeing to start the IEP process now. It will give you a lot of valuable information about how they will work with your ds, and help start the school year with appropriate supports in place if you decide that's the best option. If you haven't dealt with public schools before, don't be put off by generalized bad press they receive. Many are nurturing, stimulating places with extremely dedicated teachers. Our experience with the IEP process was very positive, even though we ended up continuing to homeschool our younger dd.
  13. The LC board is completely friendly to all sorts of educational choices. There's also a social group linked there for all sorts of non-standard learning issues for middle and high school which might be helpful.
  14. You might check out The Possibility Dogs, by Susanna Charleston. It describes the work and training of service dogs, particularly psychiatric service dogs. The story is personal and very engaging, and the dogs are real personalities who steal the story. It's written for a general adult audience, but nothing struck me as particularly difficult about the writing. I hope others have some good suggestions.
  15. Thanks, guys. I looked for reviews online and didn't find much. There's a Wrong Planet thread which is pretty scathing. I'd be willing to pay for good information, but not really interested in restatements of the obvious, which is the feeling I got there. Eta: I'd be glad to find out that people have found them helpful. Maybe I should sign up for the emails.
  16. How wonderful! So happy for you.
  17. I've seen this company mentioned a couple of times lately. It looks interesting. Any experiences with them? Has anyone here tried any of their classes?
  18. We're slowly mulling this over also, with the same set of diagnoses for our 11yo dd. A few things are different for us, most notably that animals are her special interest. She has a great little dog. She and the dog are very tightly bonded, she has been very dedicated to his care and training, and overall has done well with him. When she is upset, she walks or hugs her dog, and the dog clearly helps. But it isn't simple. She is still easily irritated, sometimes by the dog. There are sensory triggers, like you mention about your ds and the smell of dog treats. For dd, the sound of the dog licking himself drives her up the wall when she is on edge, or trying to focus on schoolwork, or various situations. The dog is still a dog, and he does doggy things like that. He also needs attention when she isn't in a good mood to give it. Just coping with this sort of thing can be a major exercise in self-control for dd. That's good, in that she gets practice. She's absolutely devoted to that dog, so she'll stretch herself for it when she wouldn't for most other objectives. But in addition to sometimes being a stress reliever, the dog is also a major source of stress. For the moment, we're just doing basic obedience training and thinking of the dog as an emotional support animal. I'm not sure if training it to the point at which it could be a service dog is right for us. The main benefit would be that we could more easily take him on trips (dd is very worried and possibly completely noncooperative at the thought of going without him) and to the doctor's office (a major source of anxiety). The potential drawback is that, as stated, the dog can add to anxiety. Then she'd not just be responsible for herself, but for her dog too, in public. The level of training really would have to be very high. I like what Mrs. Tharp said about pressure on the dog, too. Dealing with an anxious, inflexible kid is hard on me. It's really hard on a dog to be the intervention for a kid who is at the end of her rope. I don't want to put the dog in a situation that is too stressful for it. So, yes, the right temperament is critical.
  19. Our experience of ABA has been very positive. Our dd looks forward to ABA time, and her relationship with her therapist is somewhere between what she might have with a (much) older sister and what she might have with a good babysitter. There's a lot of fun involved, as well as some hard work. We received the same warning to choose a provider carefully. It really concerned me at the time: I hardly knew what ABA was, or what it should look like, and I was supposed to choose carefully? Maybe we were just really lucky, I don't know. Our choice ended up being dictated by who was available. But it's been great. I see a lot of progress. See what choices you have locally, but don't worry unless you see problems. I hope things work out as well for you as they have for us.
  20. This. Except... I guess I've always been pretty forthright with my animal-loving kids about the fact that human choices affect animals in significant ways. We've talked about why we alter our animals so they don't produce puppies or kittens. They know many pets never make it out of shelters. They know some animals are abused. It would not shock them to learn that some animals are so badly harmed that they cannot recover, though it would anger and sadden them if that happened to an animal they knew. I think I'd regard the conversation as an appropriate part of their education, always emphasizing that the neighbor had done everything possible to try to help the dog before sadly reaching a necessary decision. Now, this is with my kids. They are committed animal-lovers, but I think they are realists. They would be saddened but not traumatized. YMMV.
  21. I'm not sure anything in your description really points to Asperger's more than general mental health issues. It sounds like she managed better in the past, right? That sounds more like early-onset dementia to me, too, even though I know her husband may have helped then. I agree that I'd be wanting an evaluation for possible dementia or other issues, but I think I'd keep the discussion general and focused on the immediate and practical issues of her financial security and the grand kids' safety. If Aspergers is involved, a professional can bring up that possibility, but it might not really influence treatment options for a sixty year old. In dealing with kids, we're trying to build habits and skills for a lifetime ahead. Dealing with elders, we're coping with a lifetime of ingrained habits. I'm not sure the same approaches would work.
  22. I hear you on the stress. Hugs. Way back when we got the ODD label, I believe the recommendation was for something called Parent Effectiveness Training (?). Nothing like that was available near us, but maybe it would be for your family. Anxiety, ADHD and puberty could certainly cause plenty of trouble on their own. Best wishes as they sort it all out.
  23. Not sure if this will be helpful, but without being in any way qualified to pronounce judgements on diagnoses, I have reservations about ODD as a diagnosis. Our dd was given ODD as a first diagnosis when she was five by a local therapist. Eventually a neuropsych more appropriately diagnosed her with autism. The difference is significant in a couple of ways. ODD described her behavior accurately, but it didn't begin to explain why she behaved that way. Autism explained that. Once we understood the "why," we were able to start appropriate therapy and medication, both of which have helped. She still struggles sometimes with various stressors, and she still sometimes has meltdowns, but she is very far from being oppositional *except in response to stress which is beyond her capacity to handle*. And now we understand what's happening. So, my best personal recommendation for ODD would be a good neuropsych evaluation to see what is really underlying the behavior which ODD describes. Beyond that, yes, puberty is certainly a prime time for any difficulties to get worse. Hugs. I hope your family finds some help.
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