monkeymama07 Posted December 26, 2013 Share Posted December 26, 2013 last wednesday I was diagnosised with stomach cancer and have been in the hospital since while have 100 test and trying to get me to a place I can be outpatient and hopefully get better.... I need some stories and books to help my son understand what is that is making mommy sick. HE is 6 any suggestions? Quote Link to comment Share on other sites More sharing options...
IfIOnly Posted December 26, 2013 Share Posted December 26, 2013 :grouphug: :grouphug: :grouphug: Not sure if this is what you're looking for, but I highly recommend this book on cancer: http://www.amazon.com/Cancer-Outside-Ty-M-Bollinger/dp/0978806506/ref=sr_1_1?ie=UTF8&qid=1388028515&sr=8-1&keywords=Cancer%2C+Step+Out+of+the+Box%2C+by+Ty+M.+Bollinger Quote Link to comment Share on other sites More sharing options...
Word Nerd Posted December 26, 2013 Share Posted December 26, 2013 No suggestions but I wanted to let you know I'm thinking of you and your family. :grouphug: Quote Link to comment Share on other sites More sharing options...
IfIOnly Posted December 26, 2013 Share Posted December 26, 2013 Oh gosh, this is not at all what you are looking for. So sorry, I'm tired! :grouphug: Quote Link to comment Share on other sites More sharing options...
Mom2OandE Posted December 26, 2013 Share Posted December 26, 2013 I'm so sorry. No suggestions but ((hugs)). Quote Link to comment Share on other sites More sharing options...
Negin Posted December 26, 2013 Share Posted December 26, 2013 So very sorry. :grouphug: :grouphug: :grouphug: The absolute best book I have found is this one. Here's the site. When he was first diagnosed, he was only given a few months to live, or something like that. He managed to live for 20 years. His book is based on personal experience and very scientifically-based, overall a very well-balanced book, that's also full of hope. I hope and pray that you can remain as strong as can be during this very difficult time. Quote Link to comment Share on other sites More sharing options...
Laurie4b Posted December 26, 2013 Share Posted December 26, 2013 I agree with Anti Cancer as an excellent book for an adult. It was written by a physician. I don't think that book recommends supplements (just good nutrition), but that is important to know and be aware that supplements can protect cancer cells from the effects of treatment, so talk with your oncologist before taking *anything*. (The reason that supplements protect the cells is that they are growing at a rapid rate and they gobble up more than their fair share of anything you put in your body. Your normal cells will eventually recover. You want your cancer cells as susceptible to damage as possible.) My sons were older when I was dx'd with cancer, so I don't have personal suggestions for a book for your son. Are you being treated at a cancer center? Most will have support centers for families. You can call 24 hours a day to talk with someone knowledgeable here: http://www.cancer.org/aboutus/howwehelpyou/contactus/index They might have suggestions or know where you could find the resources. I would also suggest that you google your area plus "cancer support" and see what there is in your community. I'm sorry that you and your family are going through this. :grouphug: Quote Link to comment Share on other sites More sharing options...
Pippen Posted December 26, 2013 Share Posted December 26, 2013 I just want to send hugs and healing prayers to you and your family. My son was diagnosed with cancer last week and was immediately whisked off to an out-of-town hospital with me as caregiver,l so we understand the upheaval and concern you're going through. Quote Link to comment Share on other sites More sharing options...
LizzyBee Posted December 26, 2013 Share Posted December 26, 2013 last wednesday I was diagnosised with stomach cancer and have been in the hospital since while have 100 test and trying to get me to a place I can be outpatient and hopefully get better.... I need some stories and books to help my son understand what is that is making mommy sick. HE is 6 any suggestions? I don't have any suggestions, but wanted to give you a :grouphug: . Being diagnosed with cancer is surreal. Many prayers for your recovery. Quote Link to comment Share on other sites More sharing options...
LizzyBee Posted December 26, 2013 Share Posted December 26, 2013 I just want to send hugs and healing prayers to you and your family. My son was diagnosed with cancer last week and was immediately whisked off to an out-of-town hospital with me as caregiver,l so we understand the upheaval and concern you're going through. :grouphug: to you and your son. I will pray for his recovery. Quote Link to comment Share on other sites More sharing options...
ThatHomeschoolDad Posted December 26, 2013 Share Posted December 26, 2013 First, I'm sorry you joined the club. Mine is Stage IV ocular melanoma. Second, thank you, Thank You for taking the approach you are. I've met patients who hide info from their kids and wonder why it always backfires. I don't have a specific title in mind, but I strongly recommend asking the child life specialist at yout cancer center. If one is not on staff, ask for an oncology social worker who can steer you to the right resources, like a local Gilda's Club, etc. Resourrces for kids are plentiful, but you may have to dig a bit. DD13 was 8 when I was firsg diagnosed, and has been seeing oug CLS steadily for the three years I've been Stage IV. It has been THE best thing! Really. Ask here, or PM me if you want more details. Parents' approach to children and cancer is one of my pet issues, because so many do it wrong. It sounds like you're starting out right. Keep rowing. Quote Link to comment Share on other sites More sharing options...
Twigs Posted December 26, 2013 Share Posted December 26, 2013 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Flowing Brook Posted December 26, 2013 Share Posted December 26, 2013 I wish I could remember which boardie posted this. But her daughter wrote this book as a girl scout project. I think you can print it off and have your children read it. Hugs to you and your family. :grouphug: :grouphug: http://www.ctrc.net/ctrc2.cfm?mid=2092&pid=1001 Quote Link to comment Share on other sites More sharing options...
dragons in the flower bed Posted December 26, 2013 Share Posted December 26, 2013 I'm sorry your family is going through this. Nana, What's Cancer? covers all the facts in text-heavy picture book format. It doesn't talk down to kids or have a heavily homemade feel like some of the other books on the subject. Quote Link to comment Share on other sites More sharing options...
LizzyBee Posted December 26, 2013 Share Posted December 26, 2013 First, I'm sorry you joined the club. Mine is Stage IV ocular melanoma. Second, thank you, Thank You for taking the approach you are. I've met patients who hide info from their kids and wonder why it always backfires. I don't have a specific title in mind, but I strongly recommend asking the child life specialist at yout cancer center. If one is not on staff, ask for an oncology social worker who can steer you to the right resources, like a local Gilda's Club, etc. Resourrces for kids are plentiful, but you may have to dig a bit. DD13 was 8 when I was firsg diagnosed, and has been seeing oug CLS steadily for the three years I've been Stage IV. It has been THE best thing! Really. Ask here, or PM me if you want more details. Parents' approach to children and cancer is one of my pet issues, because so many do it wrong. It sounds like you're starting out right. Keep rowing. I'm sorry to hear that you have cancer, too. If you've talked about it before, I missed it. :grouphug: For the OP: This post reminded me that my cancer center has support groups for kids who have a family member with cancer. Your hospital might offer that, too. Quote Link to comment Share on other sites More sharing options...
Farrar Posted December 26, 2013 Share Posted December 26, 2013 Hugs to you. No book suggestions, but I second the support groups. My mother worked in cancer education and support for many years. See if your hospital has a child life specialist attached to patient support and ask him/her. They'll know exactly what books to recommend. I know there are also some videos out there. Quote Link to comment Share on other sites More sharing options...
ThatHomeschoolDad Posted December 27, 2013 Share Posted December 27, 2013 I'm sorry to hear that you have cancer, too. If you've talked about it before, I missed it. :grouphug: For the OP: This post reminded me that my cancer center has support groups for kids who have a family member with cancer. Your hospital might offer that, too. Thanks. And yes, good call on support groups. We went to a Wellness Community group that was split with parents/kids each having their own social worker-led sub group. It was awesome until they changed staff, so we're taking a break, but you can and should do that -- try something, and if it doesn't fit, try something else Wellness and Gilda's Club are now under one umbrella org - Cancer Support Community - but still operate as separate entities, so if you Google, say, Gilda's Club Seattle, it'll have its own site. I highly recommend them! Quote Link to comment Share on other sites More sharing options...
Laurie4b Posted December 27, 2013 Share Posted December 27, 2013 I just want to send hugs and healing prayers to you and your family. My son was diagnosed with cancer last week and was immediately whisked off to an out-of-town hospital with me as caregiver,l so we understand the upheaval and concern you're going through. :grouphug: So sorry. As a cancer survivor, I imagine it would be so much worse to have it be your child than yourself with the diagnosis. I pray treatment will go as smoothly as possible for your son. Quote Link to comment Share on other sites More sharing options...
prairiewindmomma Posted December 27, 2013 Share Posted December 27, 2013 --- Quote Link to comment Share on other sites More sharing options...
LizzyBee Posted December 28, 2013 Share Posted December 28, 2013 Child Life had a number of books on hand, but honestly our kids just wanted to hear from me and see photos of where their sister was going. We showed them photos of the radiation room and read a book about how radiation worked. We also showed them a butterfly needle and photos of an iv bag. They also saw CT scan images (the cancer is bright white on them). I agree, talk, talk, talk.....and be honest about all potential outcomes. Saying you don't know an answer is ok... We knew my dd was terminal from day of diagnosis....we worked with child life and then started art therapy/grief counseling for the entire family in the last few months of life. Our surviving children continued with the same therapy program for 18 months afterwards. I'm so sorry for your loss. Quote Link to comment Share on other sites More sharing options...
prairiewindmomma Posted December 28, 2013 Share Posted December 28, 2013 Thanks. Quote Link to comment Share on other sites More sharing options...
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