Cathy in IL Posted May 10, 2009 Share Posted May 10, 2009 My 5 year old son woke up Wednesday morning terribly sick. He told me his head and back hurt. When I touched him, he was hot. His temp was 105.4. I took hiim into the ER. They treated him with IV meds, did a chest x-ray, and drew blood cultures. They decided it was a sickle cell complication and sent us home. As the afternoon progressed, my son became more lethargic and his temp stopped responding to Motrin and Tylenol. I couldn't get him below 105.2, and it became difficult to wake him. We returned to the ER where they did an emergency head CT and a spinal tap. His blood pressure was falling and some of the bloodwork was concerning. They managed to stabilize him enough to admit him to the regular hem/onc floor instead of the ICU. It was a scary couple of days. We came home yesterday afternoon. He still doesn't feel great. We have to return to the hospital for labs tomorrow because they want to be sure his hemeglobin has not continued to drop. I am happy to be home but still very sleepy from this week. Quote Link to comment Share on other sites More sharing options...
swellmomma Posted May 10, 2009 Share Posted May 10, 2009 I hope he is feeling better soon, poor little guy. Quote Link to comment Share on other sites More sharing options...
Catwoman Posted May 10, 2009 Share Posted May 10, 2009 How scary, Cathy! I'm so glad your little guy is back at home and is on the mend. You must be exhausted. Cat Quote Link to comment Share on other sites More sharing options...
Quiver0f10 Posted May 10, 2009 Share Posted May 10, 2009 How scary! :grouphug: Quote Link to comment Share on other sites More sharing options...
Tammyla Posted May 10, 2009 Share Posted May 10, 2009 :grouphug:Poor kiddo, I'm glad you all are home. Hugs and prayers. Quote Link to comment Share on other sites More sharing options...
Cricket Posted May 10, 2009 Share Posted May 10, 2009 I hope he is better soon! :grouphug: Quote Link to comment Share on other sites More sharing options...
sleepy Posted May 10, 2009 Share Posted May 10, 2009 Oh goodness, Cathy! How frightening! :grouphug::grouphug: I hope everyone's able to rest up today. Happy Mother's Day, dear. :001_smile: Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted May 10, 2009 Share Posted May 10, 2009 :grouphug: I hope that he continues to feel better. :grouphug: Quote Link to comment Share on other sites More sharing options...
joannqn Posted May 10, 2009 Share Posted May 10, 2009 I can imagine how scary your week must have been. I'm glad you are both back home. I hope it continues to be on the mend and gets better and better. Quote Link to comment Share on other sites More sharing options...
PollyOR Posted May 10, 2009 Share Posted May 10, 2009 :grouphug::grouphug::grouphug: Happy Mother's Day! You've earned it. And, I hope your little guy is up and running around soon like nothing ever happened. :) Quote Link to comment Share on other sites More sharing options...
purplemama Posted May 10, 2009 Share Posted May 10, 2009 Cathy, I'm so sorry that you had to go through this. The same thing happened to my son when he was about 3. My husband was out of town at the time and my daughter was a year old, so it was quite difficult to go through all those tests alone. My poor boy was traumatized after all the testing and freaked out when he went to get check-ups for about a year afterwards. He went home on antibiotics so strong they didn't even stock enough to give him the whole course at one time. The pharmacist said, "Wow, your son must be really sick if they're giving him this!" His doctors told me he would have probably died by the next morning if I hadn't taken him to the ER when I did. I'm glad that you have him home for Mother's Day! Jennifer Quote Link to comment Share on other sites More sharing options...
jensway Posted May 10, 2009 Share Posted May 10, 2009 Oh my gosh I am really glad he is on the mend. I hope it won't be long till he's running around like he had never been sick. Take care of yourself. :grouphug: Quote Link to comment Share on other sites More sharing options...
lovemywhirlygirls Posted May 10, 2009 Share Posted May 10, 2009 Cathy, So sorry to hear that your little guy has been so sick. Praying that he will recover quickly. Praying for you as you care for him. Please keep us updated. Quote Link to comment Share on other sites More sharing options...
Cindy in the NH Woods Posted May 11, 2009 Share Posted May 11, 2009 Oh Cathy, I'm so sorry! I understand how you feel, as we have spent many hours in the last two weeks in the ER, and running tests with our dd. I know how hard it is to see your child suffer. :grouphug: Praying for a quick recovery for your little boy. Quote Link to comment Share on other sites More sharing options...
Cathy in IL Posted May 11, 2009 Author Share Posted May 11, 2009 We managed to stay out of the ER today, but my ds is not feeling well. He has been complaining of his head, leg, hip, and back hurting. He spent most of the day resting on the couch. I spent most of the day trying to get him to drink and giving him meds to keep him comfortable. He didn't have a fever though, so that's good. I think it is sickle cell pain. We go back to the hospital for labs tomorrow if he is feeling well and a full re-check if he is still like he was today. I am hoping he will sleep peacefully through the nighht and wake feeling well. I think I need a good night's rest too! Thanks for the encouragement, and Happy Mother's Day! Quote Link to comment Share on other sites More sharing options...
Jackie in AR Posted May 11, 2009 Share Posted May 11, 2009 We managed to stay out of the ER today, but my ds is not feeling well. He has been complaining of his head, leg, hip, and back hurting. He spent most of the day resting on the couch. I spent most of the day trying to get him to drink and giving him meds to keep him comfortable. He didn't have a fever though, so that's good. I think it is sickle cell pain. We go back to the hospital for labs tomorrow if he is feeling well and a full re-check if he is still like he was today. I am hoping he will sleep peacefully through the nighht and wake feeling well. I think I need a good night's rest too! Thanks for the encouragement, and Happy Mother's Day! ((Cathy)) Happy Mother's Day to you!! I sure hope your little guy is feeling much better tomorrow. Jackie Quote Link to comment Share on other sites More sharing options...
Aggie Posted May 11, 2009 Share Posted May 11, 2009 We're still praying for your ds here. Rest well tonight, Cathy. :grouphug: Quote Link to comment Share on other sites More sharing options...
Mommyof4ks Posted May 11, 2009 Share Posted May 11, 2009 That is terrifying! We have never been through that, but having a cancer kiddo we know many friends who have. The minute to minute changes in prognosis is so hard on the family. Prayers for continued healing. Quote Link to comment Share on other sites More sharing options...
PollyOR Posted May 12, 2009 Share Posted May 12, 2009 Hey Cathy, how are things going? :grouphug: Quote Link to comment Share on other sites More sharing options...
5knights3maidens Posted May 12, 2009 Share Posted May 12, 2009 Glad he is home and hope he feels better soon AND, you get some rest. ;) Quote Link to comment Share on other sites More sharing options...
Cathy in IL Posted May 12, 2009 Author Share Posted May 12, 2009 Thanks for all the prayers and well wishes. My son is much better. He has been playing outside in the yard today and acting like a 5 year old boy! It is very refreshing. We will enjoy the rest of the week. On Monday we head into the hospital for a blood transfusion in preparation for a brain MRI on Wednesday. It will be a week packed with specialists for him and the baby. For now we are home, and enjoying it. Quote Link to comment Share on other sites More sharing options...
3lilreds in NC Posted May 13, 2009 Share Posted May 13, 2009 Oh, Cathy, I'm so glad to hear he's doing so much better! You're such a good mom. :grouphug: Quote Link to comment Share on other sites More sharing options...
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