Lizzie in Ma Posted July 19, 2012 Share Posted July 19, 2012 (edited) Update: Dr. called last night, our next thought is that is may be ulcers, put her on Prilosec, first dose last night, if it doesn't help, she will send her to a GI. Bless you all for all your input and support, you've no idea how much it means to me. Our dear 16 year old daughter had an undiagnosed case of Lyme disease that they finally figured out last August. She has been on up to 2000mg of Biaxin, Plaquenil, doxycycline and Flagyl since then and until June 5th when her stomach was so bad we took her off everything. We had used probiotics all along as well as supplements to build her immune system, so we tried to protect her body while she took all that stuff. Her pediatric rheumatologist says she has "post infectious disease syndrome" and recommended PT 3X a week with aerobics, strength training and myofascial massage. I don't know what to think, other than building her body back up is not a bad idea. She has no food or other allergies. The problem is, she is nauseous with stabbing pains in her abdomen and back and has been since June, getting worse. Very mucousy stool. (sorry TMI) It gets worse when she eats or drinks anything. It is so bad, she quit her beloved internship at Old Sturbridge Village this month. She would NEVER do this unless she had no choice. She has had negative abdominal xrays, ultrasound and bloodwork for cdiff, hepatic function, basic metabolic panel, lipid panel, cbc with diff, amylase, crp and lipase. It seems like our primary care doctor has given up, I've asked for a call about what to do next and waiting all day yesterday while dd was curled up in a ball on the couch. I emailed this morning. Thoughts on what this could possibly be???? Avenues to investigate? anything? Edited July 20, 2012 by Lizzie in Ma update Quote Link to comment Share on other sites More sharing options...
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