mysticmomma Posted June 25, 2016 Share Posted June 25, 2016 Hoping to see a positive update. Quote Link to comment Share on other sites More sharing options...
speedmom4 Posted June 25, 2016 Author Share Posted June 25, 2016 Update in original post! 😊 2 Quote Link to comment Share on other sites More sharing options...
El... Posted June 25, 2016 Share Posted June 25, 2016 I'm so glad to hear that! What a great job you did, when you knew something was up, sticking to your concern! 1 Quote Link to comment Share on other sites More sharing options...
Guest Posted June 25, 2016 Share Posted June 25, 2016 It is egregious that when his symptoms persisted and worsened and conventional treatments weren't working that they didn't do any additional imaging. Frustrating! But I'm SO glad you have answers now and hopefully it's all better from here. Quote Link to comment Share on other sites More sharing options...
Monica_in_Switzerland Posted June 25, 2016 Share Posted June 25, 2016 Thank you so much for the update. You are so right to be furious and upset with the time it took to get a correct diagnosis. Argh. I could scream for you. We've had similar mistakes made, but never anything so serious. Thank God he finally got the tests and treatment he needed. 1 Quote Link to comment Share on other sites More sharing options...
Forget-Me-Not Posted June 25, 2016 Share Posted June 25, 2016 Wow! Glad surgery went well. Hopefully they can get you some answers now. 1 Quote Link to comment Share on other sites More sharing options...
Tammyla Posted June 25, 2016 Share Posted June 25, 2016 Poor kid, I'm so relieved you trusted yourself and kept battling to find him good medial care. :grouphug: Thanks for the update. I didn't really understand much of it, but I'm so glad he will finally have healing. 1 Quote Link to comment Share on other sites More sharing options...
gardenmom5 Posted June 25, 2016 Share Posted June 25, 2016 I'm so glad I trusted my gut that the docs were all wrong and that something was wrong. It could have been disastrous. Thank you all! yea! for the mom-gut. hope things get better from here on out. 3 Quote Link to comment Share on other sites More sharing options...
ondreeuh Posted June 25, 2016 Share Posted June 25, 2016 UPDATE: Thank you all for the concern and prayers. I am so incredibly thankful that the ER did a CT scan and found the intussusception. He had surgery within a few hours. Our son is 14 so it's pretty rare to find in a child his age. It turned out to be quite large, approximately 18" in length. The surgeon had never seen one so large. Thankfully he was able to pull it out laporascopically. He found the lead point was a Meckel's diverticulum. Very unusual as well. What has me so upset is that my son has had vomiting and pain issues his entire life but not one doc has ever ordered a CT scan. What's worse is that early Wednesday morning we went to a different hospital and they sent him home even when he was clearly still so very sick. I even took him to the pediatrician on Thursday because he couldn't keep the the Zofran down. I'm so glad I trusted my gut that the docs were all wrong and that something was wrong. It could have been disastrous. Thank you all! Oh wow! 18"! My son had a small intussusception when he was about 3. It came on suddenly and I took him to the ER - they did an air enema with xray to diagnose it, and it resolved it as well. I can't imagine living with a huge one for so long. I hope he is amazed at how WELL he finally feels! 1 Quote Link to comment Share on other sites More sharing options...
Faithr Posted June 26, 2016 Share Posted June 26, 2016 Wow, praise God for good doctors! I hope your son recovers quickly and he gets to enjoy a pain free life! 2 Quote Link to comment Share on other sites More sharing options...
ktgrok Posted June 26, 2016 Share Posted June 26, 2016 I really hope that diverticulum was part of what has been causing all these problems, and that it now resolves! 2 Quote Link to comment Share on other sites More sharing options...
Soror Posted June 26, 2016 Share Posted June 26, 2016 So glad to hear that they finally caught it and hopefully he is on the mend for good now. 1 Quote Link to comment Share on other sites More sharing options...
speedmom4 Posted June 26, 2016 Author Share Posted June 26, 2016 Oh wow! 18"! My son had a small intussusception when he was about 3. It came on suddenly and I took him to the ER - they did an air enema with xray to diagnose it, and it resolved it as well. I can't imagine living with a huge one for so long. I hope he is amazed at how WELL he finally feels! I'm learning more than I ever wanted to know about intuccesception! It is actually quite common in children 3 and under but extremely unusual in older children and adults. That is why it has been so hard to diagnose. Glad your son is ok as well! 1 Quote Link to comment Share on other sites More sharing options...
MrsRobinson Posted June 26, 2016 Share Posted June 26, 2016 I'm learning more than I ever wanted to know about intuccesception! It is actually quite common in children 3 and under but extremely unusual in older children and adults. That is why it has been so hard to diagnose. Glad your son is ok as well! So this surgery should resolve all issues? If that's the case, what a relief for you both. Hopefully he'll start packing on the pounds! Quote Link to comment Share on other sites More sharing options...
speedmom4 Posted June 26, 2016 Author Share Posted June 26, 2016 So this surgery should resolve all issues? If that's the case, what a relief for you both. Hopefully he'll start packing on the pounds! Unfortunately the surgery won't solve all the GI issues he has but it has solved the most scary one by far. Quote Link to comment Share on other sites More sharing options...
JFSinIL Posted June 26, 2016 Share Posted June 26, 2016 speedmom4, I'd write out what you have told us, a clear detailed account of what it took to uncover the intuccesception, and take it with you to any further medical visits, in particular ER visits, to prove to any new doctors that, yes, there can be something dangerously wrong and they need to do a CT scan stat! 2 Quote Link to comment Share on other sites More sharing options...
speedmom4 Posted June 27, 2016 Author Share Posted June 27, 2016 (edited) speedmom4, I'd write out what you have told us, a clear detailed account of what it took to uncover the intuccesception, and take it with you to any further medical visits, in particular ER visits, to prove to any new doctors that, yes, there can be something dangerously wrong and they need to do a CT scan stat! This is a fantastic idea. Thank you so much for the recommendation! Edited June 27, 2016 by speedmom4 Quote Link to comment Share on other sites More sharing options...
MeghansMom Posted June 27, 2016 Share Posted June 27, 2016 So thankful they found out what was wrong and surgery went well. I hope things will go much easier for him now that they have a diagnosis. Hugs. 1 Quote Link to comment Share on other sites More sharing options...
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