UPDATE in original post: In the ER with ds and I'm so worried they won't find anything wrong

[mysticmomma]

Hoping to see a positive update.

[speedmom4]

Update in original post! 😊

[El...]

I'm so glad to hear that!  What a great job you did, when you knew something was up, sticking to your concern! 

[Guest]

It is egregious that when his symptoms persisted and worsened and conventional treatments weren't working that they didn't do any additional imaging. Frustrating! But I'm SO glad you have answers now and hopefully it's all better from here.

[Monica_in_Switzerland]

Thank you so much for the update.  You are so right to be furious and upset with the time it took to get a correct diagnosis.  Argh.  I could scream for you.  We've had similar mistakes made, but never anything so serious.  Thank God he finally got the tests and treatment he needed.  

[Forget-Me-Not]

Wow! Glad surgery went well. Hopefully they can get you some answers now.

[Tammyla]

Poor kid, I'm so relieved you trusted yourself and kept battling to find him good medial care.   :grouphug:   Thanks for the update.  I didn't really understand much of it, but I'm so glad he will finally have healing.

[gardenmom5]

  I'm so glad I trusted my gut that the docs were all wrong and that something was wrong. It could have been disastrous. Thank you all!

 

yea! for the mom-gut.

 

hope things get better from here on out.

[ondreeuh]

UPDATE: Thank you all for the concern and prayers. I am so incredibly thankful that the ER did a CT scan and found the intussusception. He had surgery within a few hours. Our son is 14 so it's pretty rare to find in a child his age. It turned out to be quite large, approximately 18" in length. The surgeon had never seen one so large. Thankfully he was able to pull it out laporascopically. He found the lead point was a Meckel's diverticulum. Very unusual as well.

 

What has me so upset is that my son has had vomiting and pain issues his entire life but not one doc has ever ordered a CT scan. What's worse is that early Wednesday morning we went to a different hospital and they sent him home even when he was clearly still so very sick. I even took him to the pediatrician on Thursday because he couldn't keep the the Zofran down. I'm so glad I trusted my gut that the docs were all wrong and that something was wrong. It could have been disastrous. Thank you all!

 

Oh wow! 18"! My son had a small intussusception when he was about 3. It came on suddenly and I took him to the ER - they did an air enema with xray to diagnose it, and it resolved it as well. I can't imagine living with a huge one for so long. I hope he is amazed at how WELL he finally feels!

 

[Faithr]

Wow, praise God for good doctors!  I hope your son recovers quickly and he gets to enjoy a pain free life!

[ktgrok]

I really hope that diverticulum was part of what has been causing all these problems, and that it now resolves!

[Soror]

So glad to hear that they finally caught it and hopefully he is on the mend for good now.

 

 

[speedmom4]

Oh wow! 18"! My son had a small intussusception when he was about 3. It came on suddenly and I took him to the ER - they did an air enema with xray to diagnose it, and it resolved it as well. I can't imagine living with a huge one for so long. I hope he is amazed at how WELL he finally feels!

 

I'm learning more than I ever wanted to know about intuccesception! It is actually quite common in children 3 and under but extremely unusual in older children and adults. That is why it has been so hard to diagnose. Glad your son is ok as well!

[MrsRobinson]

I'm learning more than I ever wanted to know about intuccesception! It is actually quite common in children 3 and under but extremely unusual in older children and adults. That is why it has been so hard to diagnose. Glad your son is ok as well!

So this surgery should resolve all issues? If that's the case, what a relief for you both. Hopefully he'll start packing on the pounds!

[speedmom4]

So this surgery should resolve all issues? If that's the case, what a relief for you both. Hopefully he'll start packing on the pounds!

Unfortunately the surgery won't solve all the GI issues he has but it has solved the most scary one by far.

[JFSinIL]

speedmom4, I'd write out what you have told us, a clear detailed account of what it took to uncover the intuccesception, and take it with you to any further medical visits, in particular ER visits, to prove to any new doctors that, yes, there can be something dangerously wrong and they need to do a CT scan stat! 

[speedmom4]

speedmom4, I'd write out what you have told us, a clear detailed account of what it took to uncover the intuccesception, and take it with you to any further medical visits, in particular ER visits, to prove to any new doctors that, yes, there can be something dangerously wrong and they need to do a CT scan stat!

This is a fantastic idea. Thank you so much for the recommendation!

Edited June 27, 2016 by speedmom4

[MeghansMom]

So thankful they found out what was wrong and surgery went well.

I hope things will go much easier for him now that they have a diagnosis.

 

Hugs.