justLisa Posted July 30, 2012 Share Posted July 30, 2012 Wonderful news!! Quote Link to comment Share on other sites More sharing options...
Laura in NC Posted July 30, 2012 Share Posted July 30, 2012 I am so glad your dd is doing better. I will continue praying for her. I am so glad a nurse saw your dd's skin changes. DD11 has horrible, purple skin mottling all over her body due to Dysautonomia. She also gets bright red flushing in her cheeks. It gets worse the more she is dehydrated, sick, or temperature changes. Gatorade will sometimes help but not always. Her metabolic dr. suggested a Pediatric Cardiologist who treats autonomic symptoms to help with it so she is seeing one in October. Just thought I would mention it in case that helps. I'm so sorry you all are having to deal with all of this. :grouphug: Quote Link to comment Share on other sites More sharing options...
Parrothead Posted July 30, 2012 Author Share Posted July 30, 2012 Thanks!!! DD LOOKS FANTASTIC!!!!!!!:party: She is weak but she is acting more like herself!!!!! The IV is out!!!!! Still no word on whether she will be released today ir not. She needs to be able to eat ad drink more for sure. Yea! :party: Quote Link to comment Share on other sites More sharing options...
besroma Posted July 30, 2012 Share Posted July 30, 2012 So glad to hear the good news! :D Quote Link to comment Share on other sites More sharing options...
Catwoman Posted July 30, 2012 Share Posted July 30, 2012 :party: I'm so glad she's doing so much better, Denise! Quote Link to comment Share on other sites More sharing options...
Denisemomof4 Posted July 30, 2012 Share Posted July 30, 2012 I am so glad your dd is doing better. I will continue praying for her. I am so glad a nurse saw your dd's skin changes. DD11 has horrible, purple skin mottling all over her body due to Dysautonomia. She also gets bright red flushing in her cheeks. It gets worse the more she is dehydrated, sick, or temperature changes. Gatorade will sometimes help but not always. Her metabolic dr. suggested a Pediatric Cardiologist who treats autonomic symptoms to help with it so she is seeing one in October. Just thought I would mention it in case that helps. I'm so sorry you all are having to deal with all of this. :grouphug: WOW. this tells me a LOT!!!! My dd has vasovagal syncope, also an autonimic disorder. Quote Link to comment Share on other sites More sharing options...
Denisemomof4 Posted July 30, 2012 Share Posted July 30, 2012 WE ARE GOING HOME!!!! :party::party::party::party::party::party::party::party: Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted July 30, 2012 Share Posted July 30, 2012 Wonderful! :001_smile: Quote Link to comment Share on other sites More sharing options...
Caroline Posted July 31, 2012 Share Posted July 31, 2012 WE ARE GOING HOME!!!!:party::party::party::party::party::party::party::party: I am so glad. I hope your daughter continues to mend.:grouphug: Quote Link to comment Share on other sites More sharing options...
Mommyfaithe Posted July 31, 2012 Share Posted July 31, 2012 WOW. this tells me a LOT!!!! My dd has vasovagal syncope, also an autonimic disorder. My dd's and I have vasovagal syncope and Hashimoto's...not fun passing out at very inopportune times:tongue_smilie: it also scares the crud out of people. My dd's need to be really careful in the shower...especially if it is very hot....and at the top of stairs. Glad dd is feeling better. Hope all gets figured out. You are all in my prayers Faithe Quote Link to comment Share on other sites More sharing options...
Mommyfaithe Posted July 31, 2012 Share Posted July 31, 2012 WE ARE GOING HOME!!!!:party::party::party::party::party::party::party::party: Yay!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted July 31, 2012 Share Posted July 31, 2012 :party::party::party: Quote Link to comment Share on other sites More sharing options...
catz Posted July 31, 2012 Share Posted July 31, 2012 Yay! So glad for all of you!:D Quote Link to comment Share on other sites More sharing options...
Chris in VA Posted July 31, 2012 Share Posted July 31, 2012 :grouphug::D Glad she's better. :D:D God is good, all the time. Quote Link to comment Share on other sites More sharing options...
Catwoman Posted July 31, 2012 Share Posted July 31, 2012 :party: Thank goodness!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
sheryl Posted July 31, 2012 Share Posted July 31, 2012 I have not read the thread, only the first one. Denise, praying here! Keep us posted! :grouphug::grouphug::grouphug: Just read your update, Denise, that you're going home! I should have read that first. :) So glad to hear your good news!!!!!!!! :grouphug: Quote Link to comment Share on other sites More sharing options...
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