sheryl Posted January 20, 2010 Share Posted January 20, 2010 First of all, my dd will be 2 years seizure free in 2 weeks (Feb. 5, 2008)!!! That in and of itself is GREAT news, but there's more good news........ My dh, dd and I just returned from our dd's follow up appt. with the neurologist for her most recent (sleep deprived) eeg. Her eeg was "normal"! He said there were no "spikes" and not even any "tendencies". He said it was unusual for there not to show at least one little spike, but there were none. "With man things are impossible, with God all things are possible." Her blood levels for her seizure meds are good. She will have her blood tested again first part of May and then go in for another follow up appt after her 11th birthday which is around mid May. In June he is ordering an ambulatory eeg. Then he plans to wean her off her epilepsy meds! He wants her behavior and behavioral meds to be a little more controlled as well as edge her closer to puberty. She is pre-puberty now. As some of you know I've had a hard time with her behavior. Some of it probably is tied to puberty as well as the residual effects of past seizures. Thank my Heavenly Father for this good report!! As a side note, some of you will be pleased to know, if you read my curriculum changing post, that I'm headed in that direction now and am making plans to review changing curricula for a few subjects. Thanks for your patience regarding those posts. Join me in celebrating this news regarding my dd!! Praise, honor and glory to my Heavenly Father! Sheryl (Follower of Jesus) Quote Link to comment Share on other sites More sharing options...
Pink Fairy Posted January 20, 2010 Share Posted January 20, 2010 What wonderful news! I can feel the joy in your post. :001_smile: PTL! Quote Link to comment Share on other sites More sharing options...
FloridaLisa Posted January 20, 2010 Share Posted January 20, 2010 What wonderful news! Praise the Lord from whom all blessings flow! Lisa Quote Link to comment Share on other sites More sharing options...
PinkTulip Posted January 20, 2010 Share Posted January 20, 2010 Congratulations!:grouphug: I am so happy for your blessed news! Praying that everything continues to go well.:) Quote Link to comment Share on other sites More sharing options...
chickenpatty Posted January 20, 2010 Share Posted January 20, 2010 Praise God! That is wonderful news. My ds7 has asbsence seizures - we are praying that his will go away. Quote Link to comment Share on other sites More sharing options...
sheryl Posted January 20, 2010 Author Share Posted January 20, 2010 Praise God! That is wonderful news. My ds7 has asbsence seizures - we are praying that his will go away. Congratulations!:grouphug: I am so happy for your blessed news! Praying that everything continues to go well.:) What wonderful news! Praise the Lord from whom all blessings flow! Lisa What wonderful news! I can feel the joy in your post. :001_smile: PTL! Thanks everyone! Blessings to your day! Sheryl <>< ChickenPatty, be encouraged. Her neurologist gave an example this morning that if my dd was 5 and 2 years seizure free he would not wean b/c they really need to get the child closer to puberty. He said these generalized/idiopatic type seizures/absence (the type she had) are almost always outgrown! He said that the hormones in puberty "turns off" the switch to seizure activity. Sheryl Follower of Jesus Quote Link to comment Share on other sites More sharing options...
Sasharowan Posted January 21, 2010 Share Posted January 21, 2010 Congratulations. My dd is on 1 year and 2 months since we weaned her from her meds and 3.5 yrs seizure free. Ds8 is 7 months weaned from meds and almost 3 yrs. seizure free. I can't believe the difference, especially in ds, since he's off the med. Hope all goes smoothly for you. Quote Link to comment Share on other sites More sharing options...
Tree House Academy Posted January 21, 2010 Share Posted January 21, 2010 God is good! All the time! Quote Link to comment Share on other sites More sharing options...
sheryl Posted January 21, 2010 Author Share Posted January 21, 2010 God is good! All the time! Yes Rebecca, I've thought of this many times. God is good and faithful before, during and after her seizures. He's not good "because" she is seizure free. However, it does show His Hand upon her. :iagree:with ya. God is good all the time because He is perfect! Thanks. Sheryl Quote Link to comment Share on other sites More sharing options...
TechWife Posted January 21, 2010 Share Posted January 21, 2010 Wonderful news, Sheryl! Quote Link to comment Share on other sites More sharing options...
sheryl Posted January 21, 2010 Author Share Posted January 21, 2010 Wonderful news, Sheryl! I appreciate that so much. Thanks!!! :001_smile: Quote Link to comment Share on other sites More sharing options...
mom4him Posted January 21, 2010 Share Posted January 21, 2010 :hurray::hurray::hurray::hurray::hurray: Quote Link to comment Share on other sites More sharing options...
sheryl Posted January 21, 2010 Author Share Posted January 21, 2010 :hurray::hurray::hurray::hurray::hurray: Sandy, Thanks! Cute icon! Quote Link to comment Share on other sites More sharing options...
Whereneverever Posted January 21, 2010 Share Posted January 21, 2010 How wonderful! I hope to someday wean my toddler off her anti epileptics! Quote Link to comment Share on other sites More sharing options...
sheryl Posted January 21, 2010 Author Share Posted January 21, 2010 How wonderful! I hope to someday wean my toddler off her anti epileptics! What seizure type does she have? Quote Link to comment Share on other sites More sharing options...
Dina in Oklahoma Posted January 21, 2010 Share Posted January 21, 2010 Hello ~ Praise God!!! Let's do a Happy Dance :party: So very happy for you. Dina :001_smile: Quote Link to comment Share on other sites More sharing options...
Whereneverever Posted January 21, 2010 Share Posted January 21, 2010 What seizure type does she have? Lateral temporal lobe epilepsy. She has partial complex seizures leading to generalized ones. Quote Link to comment Share on other sites More sharing options...
sheryl Posted January 21, 2010 Author Share Posted January 21, 2010 Lateral temporal lobe epilepsy. She has partial complex seizures leading to generalized ones. Be encouraged and keep me posted!! :grouphug: Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.