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PeterPan

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Everything posted by PeterPan

  1. I forget what the progression was, but when I had it this winter it was literally the classic description. It didn't have the sore throat, etc. of covid, no body aches of the flu. What you thought of was recovering might have been the middle stage. I'm seem to recall with the RSV that I thought I was getting better. And yeah, low grade fevers. The doc office did the really nasty flu/strep/covid poke you to your brain testing so they knew it wasn't all the rest. The symptoms were classic for RSV so that's what he labeled it. Do you ever do saline spray? I'm nursing something right now, hoping to keep it back with saline spray. We'll see. Sometimes in the past I've been able to. I think the RSV was so fast and furious that it wouldn't have mattered. (I HATE spraying saline when I'm completely congested and by then it does no good anyway.)
  2. Does your person like shrimp? Kroger runs bogo deals that can make them surprisingly affordable. They come in trays of various sizes, so you can pull off just a small amount (4-6) to defrost and enjoy.
  3. I'm wearing something like that right now, though mine came from Duluth and are this dull MAUVE. I'm short, so they're so long on me they look like ankle pants. My dd came to visit and was surprised I was half way styling, haha.
  4. Yup, I remember the first time I got pneumonia. I was used to getting better and it just crept up on me. I remember lying there thinking I COULD DIE, which I now realize is how it feels when things go bacterial. Now I keep a pulse oximeter by my bed and have a running scrip for antibiotics, prednisone, the works. Maybe RSV? I had that around christmas and it was a definite trip to pneumonia. Milk it baby!! Do NOT get up to try to clean the house or cook soon. Play apps on your phone and use it to call people when you need something, like a princess. I've always needed 3 months to bounce back from pneumonia. Lately I've been taking biotin and increased zinc, both of which help immensely. Turns out I'm homozygous for some stupid biotin issue which is why it would drop crazy when I got sick. And your heart can be affected and it just takes time. Sometimes a long time. So milk it, rest, rest, rest, and don't feel guilty about it. As you get better, you can sit in the sun and do nothing. Take care of yourself and don't let others guilt you about it.
  5. The PT had me do those, and the trick was to use a band and keep it *very lite*. He said people tend to make it too heavy. Just very gentle, nothing aggressive. You can also use that band while doing the hip thrusters if you want.
  6. The eyes jumping is multiple things. They look at how smoothly the eyes track across the text. If the person has issues with convergence, the eyes will sometimes shut off, alternating, so the person loses their place as the eyes take turns. However there can also be issues where the eyes literally jump rather than tracking smoothly. A good dev optometrist will have specialized googles that track eye movements while reading. They can see the issues and quantify them. However, again, you really do need to treat the retained reflexes, which are super common. Sometimes (fingers crossed) the vision issues correct themselves when you correct the underlying reflex issues. If they don't, then you do vision therapy to get things on track. When vision is affected, visual processing will be affected. Visual processing is going to include visual memory, so you'll see effect on spelling, etc. Interestingly, they're usually going to target EF (executive function) while doing vision therapy, so kids sometimes get AMAZING improvements from the combo of working on so many things. When you bump EF and working memory and visual processing, decrease headaches, etc. kids just function better.
  7. Considering the majority of homeschoolers put their dc into some form of school in middle school or by high school, it's not realistic to set up things as not an option. If you're not planning to homeschool through high school, then you might as well be working out the transition plan now. April has ended, so do whatever you want in May, call it good, and formulate a plan for fall that works. Things change, life changes, and kids change. Your sweet angel becomes a pain in the butt because that's just what they do in their teen years. Sometimes you're lucky and they come to the other side nice humans. Sometimes they go even more haywire. None of that is your or your identity or a statement about whether you did a good job. You may have been shortchanging selfcare and you may need to take some time to find yourself again. I started a volunteer job to prepare for this transition but you could do anything. You are not your child and their outcome is not a reflection on whether you did well or not. Their story is their story.
  8. You need a developmental optometrist as she likely has developmental vision problems. Also get an OT eval to check for retained reflexes. When the primitive/neonatal reflexes are retained, it glitches development of the visual reflexes, leading to developmental vision problems. If you get a good OT eval and someone to integrate reflexes, you could do that for 3-6 months then test vision fully with the developmental optometrist to see if things are back on track. And the jumping I think is saccades. COVD is the org to find a developmental optometrist.
  9. Bingo. Combine LIPS with your speech therapy methodology. The SLP can do it or you can. My ds had moderate/severe verbal apraxia and the language development is a separate piece. The praxis is the motor planning. You still have auditory processing, narrative language, retained reflexes, syntax, myofunctional issues, so many things to deal with. Fwiw, we now use multiple SLPs to make sure we hit all the angles of language. Each SLP specializes in something or does something particularly well so we use 3-4. No one person knows everything. We did LIPS + Barton and got my ds reading but then he was hyperlexic and dyslexic. Then we added the work on syntax, sigh, which improved the language compression. The higher the IQ, the more challenging it can be to assess language development. My ds *appeared* to have intact language but was scripting. At age 10 he failed the preschool SPELT expressive language test. Most tests give models and use multiple choice, which higher IQ kids can fake their way through. (google sensitivity vs. specificity in testing) Without models and multiple choice, his issues became obvious. Maybe you'll have none of that, but you might. Apraxia is usually comorbid with much more going on.
  10. None of the curriculum will actually treat the APD. It's an auditory processing of *language* disorder so you're looking for an SLP who specializes in it or possibly an audiologist. You'll know when you have the right person. My ds has been working with an SLP for it for a couple years now. I also did work with him using materials you can buy at ProEdInc.com. I used the 3 volume set for auditory processing and the SLP is using the other materials (look up the name there). Really though, it's handy to have someone else doing it because they can bring nuance, consistency, and fine tuning. My ds got radical improvements the first 6 months to a year working with her and now they just continue to target pesky nuances (particular sounds that are hard for him to process, using his working memory while processing, etc. etc.). So you can do a lot but an SLP or audiologist who has gotten good at working on it will bring even more. As for the learning to read, we did our work before FIS came out. At that time Barton recommended LIPS, which is still the most powerful tool as it directly correlates production to sound. It was developed by SLPs and my ds had moderate/severe verbal apraxia, making it the most powerful tool. I combined it with his speech therapy metholodogy to get the visual + hands. Dianne Craft's program is pulling together a lot of concepts so you might consider getting an OT eval if you think you have need for that. Her stuff is great (from what I've seen) but you have this learning curve to even know why you need to do it. A good OT eval will help with that learning curve. Your dc very likey has retained primitive/neonatal reflexes, and integrating those is another pivotal step in language development. DC is including info on that I think, but without the in person evals you don't know why you need it. There are different systems for reflex integration but MNRI is one to look for if you can find someone trained in it.
  11. Fwiw, it seems like some people need to stretch BACK (like cobra yoga pose) and some people need to stretch FORWARD (cat pose, arched back). I did PT for my back and everything that was cobra pose, arching back, made it much much worse, and the exercises that were going forward and arching the back (cat pose) made it better. But your back could be the opposite. Scarlett's stretch is that curving forward and one they used with me. Also hip thrusters (lie on floor, squeeze gluts, thrust up with both feet then each foot). Also things like standing from a seated position very intentionally and SQUEEZING YOUR GLUTS. When you sit, make effort to alternately squeeze your gluts. When you drive you can do this too. Also lying prone you can do it, squeezing each side of the buttocks. From a seated position you can gently lean forward to touch the floor. All of that can be done in sets of 10 x4 multiple times a day. The core, pelvic floor, and gluts work together so as those get weak and stretched out the back takes on load, causing the pain/strain. I did something to flare it up again recently so I'm doing the stretches all over again, sigh. Just don't do the wrong direction. It should feel BETTER when you're going the right direction. You can also ice throughout the day to reduce inflammation.
  12. Duluth dry on the fly pants, also available as capris, are the bomb for travel. The material dries quickly and it's durable. Too late probably for your upcoming trip but maybe the next. https://www.duluthtrading.com/s/DTC/womens-dry-on-the-fly-improved-slim-leg-pants-46703.html?color=INK 60 for me would be keens. I've worn mine miles and miles, weeks on end, dressed up, dressed down, no blisters. I only add sneakers if I plan to work out. You shouldn't need to take a blanket for your flight. I would consider compression socks and if you don't have them do get up and stretch frequently. It's too late now, but the Time Shifter app is helpful. We do that before we go on our trips so we have no jet lag. You use sunglasses to help shift your circadian cycle. Have fun!! Your trip sounds amazing!!!
  13. Fetal exposures are a separate thing to research. You can thinking about *generalization* or whether the skill/concept is present in one setting and not the next.
  14. SLD Math is in the DSM and there are probably subtypes. I haven't looked at it in a while. They'll probably acknowledge SLD math on this dc at some point. It's just right now the test scores don't get him there even though the reality of it is obvious. There will come a point where he won't be able to cover it anymore. The bummer will be the psych could then blame it on your instruction. Unless testing again GETS you something, I wouldn't bother. Assume it is. And maybe do your next round of evals with a psych from the Hoagies Gifted list, someone who specializes in 2E kids or sees complex kids more. There *are* legitimately different ways to do things. For instance some psychs will just say "autism" covers everything and that separate SLD labels are not needed for those kids. It's just *helpful* to have them and I think it's important to clarify because not all kids with autism have the degree of challenges that come with the SLD. But yeah, he's complex, you're right, psych is underwhelming. It happens. It's why I'm not a nice person anymore. I've fought the system so long that I'm just done.
  15. Btw, it's really easy to equate your dc's progress with the quality of your work. If you are DILIGENT and using sensitive, gentle, consistent methodology, I would absolve yourself of questions of whether you're doing enough. Your child's progress does NOT DEFINE you or your worth or how good a job you're doing. Your child is going to progress relative to themselves. Give them the grace to do that and yourself the grace to know that if you've been consistent (within the context of their developmental and behavioral readiness) you've done enough.
  16. 1) no tests for number sense, only the actual math skills which the gifted IQ + Ronit Bird will fake out for a while yet 2) neuropsychs don't have money back guarantees or any consequence when they're wrong 3) they don't really listen I can give you the advice I was given: teach him like he's math gifted with a math disability. Computation and mathematical thinking are NOT one in the same and they are NOT even in the same parts of the brain. Get Sousa's book on How the Brain Learns Math and read it and believe it. Teach the child you see. I try to have in a given math session something that speaks to a math weakness, something that speaks to a math strength, and something that is hands on or applied. You will not go wrong using your common sense. You may cause him to HATE math if you do not. To me, computation is largely negotiable but word problems are not. So we have done Ronit Bird methodology but then handed him any tool he wants for computation (phone, calculator, multiplication machine, abacus, multiplication tables, etc.). Lots of word problem workbooks. Evan Moor has terrific ones, enough to keep you busy infinitely. I find the Lakeshore Learning kits incredibly useful. I like the supplemental books from Didax and find if you punch them up 3-4 grade levels you can find something that speaks to his gifted sign. Do not assume your dc's math skills are homogenous. I also got a series that I'm not sure you can get now that was sort of back to basics for things like MEASURING. A whole workbook on measuring. Measuring rooms and feet and desks and just lots of reality, kwim? And there are other cool resources (GEMS units, etc.). Have you done pattern tiles? We did a book on symmetry that was so fun. Teach him like he's math gifted with a math disability.
  17. Fwiw, the (remove profanity) neuropsych that eval'ed my ds at that same age, newly 6, did the same (remove profanity) thing saying his TEST SCORES WERE SO HIGH THAT IT COULDN'T BE AN SLD. So he diagnosed the dyslexia and dysgraphia, called him gifted/2E, and then for bonus said I was incompetent to teach him. So there IS NO test for dyscalculia. There's a university in the UK that had some pilot tool they were working on and Ronit Bird posted about it ages ago. Doesn't matter because your ds clearly has the issue and the IQ would allow him to mask. Eventually it will become painfully, astonishingly apparent. It's why my ds can in the same year be doing math MANY grades apart, because he's just all over the place. Also his explanation of the word problems issue is probably incorrect. I know zero about you, but your post is screaming autism. Again, (remove profanity) $$$$$$$ well regarded, author of the tools your neuropsych probably used (yes I get really upset about this almost 10 years later) was SO WRONG about my kid. He didn't listen and he didn't know how to slow down and see what was in front of him. My ds, within a few years, was given an ASD2 label plus all the SLDs plus of course the gifted IQ, and that all together finally got us enough picture to make sense. I don't know your kid, but you are definitely correct that you're seeing things and definitely correct that $$$$$ can be incomplete at this stage. Unless it was a Hoagie's Gifted psych or someone who sees a lot of super complex kids, assume there's more. Work with what you're seeing, not what the paper says, and be very gentle.
  18. Do you think she would feel guilty if you were making choices that confined or held back her grand kids in some way on her behalf? I think accepting mortality is part of life's lessons. Sometimes we stare it down, say it's ok, make peace with it, and go LIVE. I've lost both my inlaws and my parents are, of course, aging. It was super hard because you feel orphaned. However we did finally come to the other side and find new ways, new things. As long as you've made peace with the whole religious side (what you believe about after you die, etc.), I think just suck it up and live. It will be hard enough when it happens and it will happen because that is what happens. We become the generation that we admired. It sounds trite, but that's what I realized, that we have to grow into becoming that and that's how it happens. I don't think it's a wrong decision to embrace life and enjoy what you're doing. I probably would lean toward a choice not to live in fear, and I'm guessing your loved one would *not* want you to live in fear. And if they do, well haha that's not cool. But probably they want you to be brave and embrace life without fear. If there's a choice that would make your kids HAPPY, it may be a really good one. Just my two cents. 🙂
  19. Some years the *lesson* is not what we thought was going to be the lesson. Going through chemo is a big deal and it might be you kind of shift modes and embrace that as being ok. You wouldn't do that every year for 13 years, lol., but for one year absolutely it's ok. The germ thing is hard. I'm at a place in my life where it seems like EVERY TIME I get in someone's germs I get them. And I end up on antibiotics, which I suppose shorten my life and all the other jazz I read. I think I might be cautious about altering your kids' lives over germs only because well they're kids. They're not in the house with her. They can visit her outside maybe or skype. I would probably protect them a bit to make sure they have all the socializing they need, etc. If you alter *yourself* that's different because you're the adult. And maybe that deserves it's own thread, but it's just my two cents. It's not actually that hard not to get sick even when in tight quarters. I've had multiple occasions in the past calendar year where I was sharing tight quarters with someone and they DID NOT GET covid even when I did. Now if someone brings anything around me, I'm a virus magnet. But for other people, hygiene and a bit of space, not sharing water, not kissing, washing hands, giving just a bit of space, basic things go a surprising way. Your kids could bring something home from school and *not* make you sick if you exercise some hygiene at home. It could be a thought process to consider. Or don't, lol. I'm just saying that's our experience.
  20. I would like to cynically suggest you consider the *motivation* of this firm you've hired to engage in such schemes. The longer they drag this out, the more fees they get paid. What other motive do they have? Does this help YOU? Does it help your PARENTS? It sounds like it benefits the managerial company. I agree with the others that you should just stand your ground. It's very hard to look experts in the eye and say they're wrong, but sometimes they are. If you hired them to decrease the drama, then tell them that. If they won't make your life better, change the firm to someone who will.
  21. So who is the POA? That is the person who should be advocating for them in these appts. It's easy for family to assume more competence in their loved ones than is completely warranted. I would assume your loved ones need assistance and talk with their POA to make sure the support/oversight is happening. If they are each other's POA and do not have another person, then I would work to get that updated. That POA might want to go through their taxes with the accountant as well to make sure all their documentation has been submitted to get deductions for these expenses they're having. Only make decisions through first hand information from a competent POA and good advisors.
  22. Covid can drop b1, zinc, and iron. Low iron would cause the fatigue and also results in lower thyroid, irregular heart rate, etc. She can eat for the iron or try an iron supplement. Does her b12 run low? It's necessary for absorption of the iron, as well as copper. You can take b12 sublingually and a food source of iron (liver or liver pills) will bring the copper, etc. for absorption.
  23. Truth. And he's still enrolled there? You're going to go in circles trying to look for a blog, a role model, whatever. All these people writing books are writing THEIR stories, which aren't YOUR story. So I agree with @prairiewindmomma. Just look at your kid. That's it. Now I do like professional trainings to know what I should be advocating for, but in general just look at your child. You stop and you ask -what would it take to make this good? -what would it take to make my dc NORMAL in their world? Think about that. What if disability did not exist (because it's just a Sneetches term anyway) and what if the things they need to do were NORMAL? What if we just normalized it and said oh yeah that's just the way he does things (using assistive tech, using this or that). What if we removed all the restraints that said how schooling or high school or whatever "has" to be done and did it some totally other way? A number of years ago a brave mom from this board told me to come visit her and told me about her dc. She told me cautionary things and I realized that no matter what, no matter how hard I tried, the outcome was probably going to be very rough. It's just the reality of the mix. And I decided, and this is just me, that if the outcome was going to be very rough no matter what, that I might as well do something SO out of the box, SO different, SO normalizing to his world, SO empowering, SO positive, that if ALL THE OTHER THINGS WENT WRONG, at least something was right. At least we'd have mental health. At least we'd have a positive outlook. There are a lot of things I can't change, but I can change: -chemistry -access to real life experiences -quality of intervention -time to do things that need more time -negative voices There's a book by Snow on Teaching Your Child with Love and Skill and this video by the lady from Signing Time.
  24. It’s the law to carry federal id so they expect you to have it.
  25. Photo ID. Tickets are nominative and they will verify. A drivers license or even sometimes photocopy of passport will do. The issue is vendors buying up tickets so they crack down.
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