They just did the second check and it was 109. So, I'm leaving her at camp and they said that if anything went awry they would immediately check her sugar level and text/call me. If she's still having problems during the week-end, I'll run her to the doctor next week. Thanks for everyone's help. I appreciate the suggestions. I am still in shock about the corelation between Celiac and Diabetes. Good to know...

I doubt anyone will do any type of follow-up or bug you to put your child in therapy. However, should anything (in another area) come up, I can see where it may be used against you if you don't. Since your doctor has already suggested it though, it could be used against you anyway. My suggestion is the same here as it was in your other thread. Get the evaluation done so you can determine what you are dealing with - there can be so many causes for the problems you are describing. Then tell them that you want to do it yourself. SLP's completely understand that time and money constraints will prevent parents from seeking treatment. They would far rather show you what to do at home (and possibly checking in every so often) than for you to not seek treatment. I think that any therapist will tell you that the kids who are the most successful are the ones with dedicated parents who are doing the therapy at home (with or without outside therapy). I have seen many families in our area (rural and impoverished) who do not want to have their child tested for any type of 'abnormality'. (I use that word loosely - speech delays, reading delays, walking delays, etc). Those kids have further struggles down the road. I can't back that up with any type of data, only what I see in my community. If you're worried, can you ask around and try to find a speech therapist who may be interested in doing some work 'on the side'? There are many speech therapists with a day job who would be interested in both helping a parent in your situation (and your child) and earning some cash outside of their 9 - 5. I would still do a hearing test, just to make sure, but after that is clear, I think you would do fine with some guidance. If you are close to a Children's Hospital, they usually have a sliding scale for sessions. Speech sessions (full pay) will run a bit over $100 a session (40 minutes or so). Insurance should cover it (or most of it). If you are under three, early intervention will pay for it. Good luck with it all. :)

Yes, she has Celiac Disease. She was diagnosed about 3 - 4 years ago and does quite well other than being very small for her age. I had already decided I wouldn't worry unless it was over 200, so 140 is very encouraging. If it's not high, I'll leave her at camp but if she's still having problems when she comes home, I'll schedule an appointment with our pediatrician.

Update - They contacted a doctor to come look at her and he said that she looked fine. They checked her sugar and it was 140 but they said she had recently eaten so he felt it was still within normal. He plans to check it again in a few hours. Interestingly, kids with celiac are 3x more likely to develop diabetes. I forget the reverse statistic on how many people with diabetes are likely to develop celiac, but it's unusually high.

Oh my. That's insane. It's a shame that so many people have to work so hard because of one man's irresponsibility.

I went ahead and called and left a message on the camp director's voicemail. I also sent her an email. Please refrain :crying: . If I have to go pick her up it will be almost 10 hours roundtrip and I need my sleep. I'm a nervous wreck every year while she's gone but it's a great camp for her. Thanks for letting me know how important this is, I'm not unappreciative, just worried.

I was in the bathroom with her (I'm unusually suspicious of gas station bathrooms). She had a lot of urination. I remember paying attention because I wondered if it was just the urge (sometimes they get 'irritations' in sensitive areas and they have the urge to urinate, but no urine - not a UTI, just an irritation). She's there for a week (forgot to include that in my post). I pick her up Friday morning. It's after midnight where she's at, I'll call the camp director in the morning. Thankfully, she's at a camp for kids with medical conditions so they have a full-time nurse at all times and doctors stop by daily or as needed. ETA - I also wanted to mention that she's nearly five hours away (driving time).

Updated in post 14 - they just checked and it was 140 which they felt was okay since she had recently eaten. They are going to re-check in a few hours. My 10 yo daughter left for camp today in another state. During our drive, she asked frequently for me to stop so she could use the bathroom. She needed to stop about every 1 hour or a bit more. I asked her if she was having any pain and she said no. I asked her if this was waking her at night and she said that she woke up thirsty at night and also had to use the bathroom. She said that for the past few nights she was drinking about one bottle of water (12 oz or so?) during the night when she woke up. She said it's only been this way for the past week. I thought it was odd but marked it off as nerves/excitement. (If she had said that it hurt, I would've thought it might be a UTI). When I came home, I remembered it and wondered if it could be diabetes. We do not have a history of childhood diabetes in our family. I have no way to get in touch with her except through the camp. Should I not worry about it or call and mention it to the camp director?

Thank you for all the replies. I'm feeling slightly better today. I think if I just spend this week getting things organized, I'll feel better. Plus, I'll be knocking out three doctor appointments this week and hopefully we won't "grow" anymore. After next week (one appt), we're done until our oldest has surgery in July. My gluten free girl is out of town this week so I'll save some time by being able to order out a bit more.

I wanted to also say that you need to listen to your instinct. If something is telling you that this is "off", figure out why. To me, coming to ask for money at night, when it's hard to identify him before opening the door makes me uneasy about him. Starting a conversation with "Remember me" rather than introducing yourself and shaking hands (especially at night) is an intimidation tactic. At the risk of sounding alarmist, if this happened as your DH was leaving at night, what if this guy came back thinking your DH might not be home? What if he was trying to intimidate you into giving the money?

I'm a bit with your DH on this one. If it were me, I would pay something just to get him out of my face. However, something about this whole thing doesn't feel right and my gut instinct is saying that you shouldn't pay him anything. I think you should contact the police and ask for guidance on this issue. Explain exactly what happened and that this guy seems threatening and that you both are uneasy around him. I'm worried that if you pay anything, then he might come back with medical bills or something else. If the police determine that you aren't at fault, ask them to go talk with him. And then if he shows up again, don't answer the door and call them.

(Super-long, sorry) Does this happen to anyone else? I feel so alone at times. My family is mostly supportive but they occasionally become very vocal about how often our kids see doctors or specialists. My mother actually accused me once of making up stuff and taking them to doctors. The problem is that my kids DO see a lot of doctors. My oldest has autism and is non-verbal. She's considered severely impaired. She also wears bifocals (special doctor) and has recurring eye infections. Since we're closing in on puberty she has a gynecologist for special needs kids. She's a mouth breather and it's causing dental problems so she has a dentist, oral surgeon and orthodontist. We're going to try some braces to help her overbite but we don't anticipate doing a full mouth due to her autism. My family (mother/father, sister) are very vocal against the braces. (Chances are good that she'll need surgery on her mouth as she has teeth about to erupt through the roof of her mouth -they are impacted right now). She sees a psychiatrist for anxiety. She's having tonsils/adenoids out soon to help with the mouth-breathing. At the ENT visit, she failed the hearing test and they said she needed tubes (fluid in the ears, negative pressure, flat something). She has horrible eczema and every other year or so we see a dermatologist when I can't get it under control. My middle daughter has celiac disease (diagnosed through both bloodwork and biopsy). She needs braces and sees a dentist, orthodontist and oral surgeon. She's had several baby teeth and a few permanent teeth pulled to make space. She sees a gastro for the celiac. She is significantly low weight (but healthy) and our gastro ordered several tests last year to check on bone growth, nutritional absorbency, etc because of it. She has weak bones but takes calcium daily. She's actually our healthiest child. Our youngest is the one that our family is most vocal about. We think she has Irritable Bowel Syndrome. IBS runs in our family and she had mysterious stomach pains, vomiting, diarrhea, lethargy, etc for nearly a year until we pulled her out of school. She still takes one pill daily for stomach cramps. She has a lot of trouble before good or bad events (doctor appts, Christmas). She sees a gastro for those and they did a biopsy last year but nothing definite came up. At our last well visit (this past week), she failed her hearing screen repeatedly for her left ear. (She failed it last year also but we thought it was just a fluke and didn't pursue further testing). Additionally, there is something going on with her feet. She's an over-pronator and has flat feet. We're taking her to a foot doctor in two weeks. She has a hearing test next week. I'm scared to tell my family about either of these appointments. Along with all of this is a basic lifestyle that our family has adapted that my extended family (and sometimes my in-laws) believe is over-kill. We all eat mostly gluten free. My oldest has significant personal care that needs to be done on a daily basis (bathing, brushing, flossing, medication). Homeschooling for our middle and youngest daughter. I'm a big believer in outside activities, so they do theatre, soccer, etc; whatever I can get them into that they want to try. I feel that every single appointment we make is important. Most of my appointments are at the suggestion of our pediatrician or another medical professional. My stress is at an all-time high as I'm preparing for my oldest (who has limited comprehension) to have surgery to remove tonsils/adenoids and put in ear tubes. The surprise of my youngest needing follow up appointments for hearing and feet has inched it higher. For the first time ever, I actually told the girls to not tell anyone about the upcoming appointments. If it turns out to be nothing, I'd rather them not know. If someone says anything to me, I'm afraid I'm just going to blow up and say things I shouldn't. Can anyone offer suggestions or commisseration? (I probably didn't even spell that right... *sigh*)

We do all well-child visits. Our pediatrician caught my daughter's celiac disease before we realized it was a problem. This past visit, he also noticed my youngest daughter's feet are having problems. I'm a busy mom. I know what to do to keep my kids healthy, but I don't have the medical knowledge to catch all the things that may go wrong. Sometimes I'm over-focused on one child and don't notice that something is going wrong with another. Plus, it's nice to take them in if they're sick with the only explanation being, "They're not themselves" and he can see the same thing because he knows them. We do delay vaccinations. We also occasionally get sick about 24 - 48 hours after being in a doctor's office.

My middle daughter was a delayed talker. Of course, once we had her hearing checked and realized an infection had caused hearing loss in one ear (totally correctable with ear tubes), her progress zoomed. lol If you haven't had a hearing test done, I would suggest to do that first, just to rule it out. After that, consult with an SLP and tell her you want to do it at home yourself, but need a list of things to do.

I'm sorry for your loss. :grouphug:

If you have large groups of kids, I think activities need to be modified. My middle daughter fainted during a summer camp activity last year and the doctor said it was heat-related. This was a camp for kids with medical conditions and it did concern me that she became ill (two other kids also had heat-related problems that day). Additionally, this is an out of state camp so I worried. The camp was very pro-active (they have nurses and doctors at the camp) and quickly modified all activities and made sure that water was always available for all the campers. I worry a lot about hot days but try not to obsess over them.

I know that others have posted what I am also going to say, but I wanted to chime in. When we were told that "something is wrong" with our oldest, I was shocked. Our pediatrician was guessing it would be cerebral palsy and being deaf. (It turned out to be profound autism). I was pregnant with our middle daughter at the time. I was horrified and ignored all phone calls from family members for the few days it took to get to a pediatric neurologist (our daughter was 12 months old at the time). The ped neuro not only confirmed that something was indeed wrong, she said that because it presented so early we should postpone having more kids in case it was something genetic as well. We thought maybe she had misunderstood and reminded her that I was pregnant. She paused and then told us very comfortingly that nobody would blame us if we chose not to have the baby. My husband straight asked if she was suggesting an abortion. She said she wasn't suggesting it, just letting us know that if it was genetic, our next child would potentially have it and that nobody in the medical community would blame us for having an abortion. (We didn't have the abortion by the way and other than celiac disease, our middle daughter is in wonderful health. Ironically, not only does she NOT have cognitive impairments, she was classified as gifted). By that point, I completely turned the ringers off of our phones and just checked messages every couple of days for doctor updates. I developed a condition (that I can't remember the name of, but it had the word hysteria in it) where I could no longer speak. I could barely whisper. It lasted for about three weeks, but it was about two months before I could talk to family members about what was going on. (DH ended up calling some family members and asking them to give me space). I would have used facebook if I could. And honestly, at that point in time, the world split into two different categories. One contained myself, DH and DD. The other category was everyone else. It wasn't to hurt anyone, it was because I simply couldn't cope any other way. :grouphug:

I'm so sorry. :grouphug: You and yours are in my thoughts and prayers.

I would think it would be sensory seeking. You may want to watch and observe it for a bit - does she do this at certain times of day (right before bedtime? after a bath?). Does she do it to smooth surfaces (walls) or carpets? Does it have to hit a certain spot or can it be any spot on her head? The more info the better when you talk to someone. :)

Hi, I still consider myself very new to homeschooling. I have three kids, two of whom I'm homeschooling. We started homeschooling mid-year last year after my youngest kept having stomach aches, vomiting, diarrhea, etc. After bringing her home, this has mostly ended. She enjoys schoolwork and I love seeing her sassy side emerge. My middle daughter will start homeschooling next year. She was labelled gifted a few years ago in public school and is competitive at everything she does, whether it's academic or sports. She also has celiac disease which occasionally puts her in bed for a couple of weeks (depending on how bad the reaction). My oldest has autism and is considered severely impaired. She enjoys her routine at public school and I have no intention of changing it. We homeschool partially for medical reasons, mostly for academic ones.

Can you post why you want to write the letter? I read it and it sounds a bit disjointed. I think you should "professionalize" (not sure if that's a word) it a bit. (On such and such a day, I entered your facility, name, due to (whatever happened). I feel like I lost the first part of the story and jumped straight into the middle. From what I gather, you're upset because you felt the staff made assumptions about you and they believe you are on a fast track for another heart attack. Also, I would put how you would want the resolution resolved. Even if you aren't asking for anything, how you would want the staff to have additional training, etc. I know THIS reply is disjointed, but I'm heading out for a few hours and wanted to respond. My best friend had a heart attack a few years ago, completely out of the blue. She recovered but it was scary for a bit. I remember her talking about her rehab experience. :grouphug:

Praying for peaceful and comforting thoughts for you all. :grouphug:

Thanks for all the replies so far. Sorry I haven't been responding. I have the neighbor's three girls (5,7,9) over here playing until late this afternoon and my oldest also has had therapists out to the house today. I'll look around for a doctor. I'm hesitant to call my pediatrician and I know it sounds silly. I'd rather see one first and then if there's need for ongoing care to let my pediatrician know. Again, it's silly but we see so many doctors that sometimes I'm embarrassed to ask for another referral. I'm not sure what is wrong with her feet (or why). I know that she's been pigeon-toed forever and she trips over her own feet. She finds things like karate difficult because she can't position her feet correctly. People get frustrated trying to show her things because she can't get her feet to do what they want. On the ankle part of her feet (between her feet, not on the outside) there is an extra bump that our pediatrician said was due to her bones bulging out and that it shouldn't do that. I'll put off our shoe quest for now until after we see some type of foot doctor. Any other suggestions, I'm all ears. And amo_mea_filiis, I completely understood every word written (and unwritten) in your post. It's a never-ending list of things that are not even placed on a list (such as brushing/flossing/bathing, etc for your child) and extra butter when cooking for calories. And that's before doctors and therapists and such.

I'm exhausted and I need help. My kids have medical issues and sometimes I'm simply overwhelmed. We had our well child visit today for all three. They have some minor issues that have come up over the past year, but my youngest is the one that concerned me most. We've known for quite some time that she was "pigeon-toed". She trips over everything (and anything). Today our doctor told us that she had pronation in both feet and he anticipated orthotics (sp?) in her future. He said we didn't need to worry about it now since we have quite a bit coming up with our oldest, but he told me to come home, google it and get her some good shoes from a place that would understand what we need and also get some inserts (arch supports) for shoes that we couldn't order (like soccer cleats). He showed me where one of her bones is starting to bulge out on the inside of her feet because of it. I love my doctor but sometimes he puts things off. (However, he also knows that we're about to have tonsils out with my oldest and attempt dental braces and my youngest also failed her hearing test so we're doing that soon as well. My kids have medical issues and I'm swamped with things right now.) I am floundering a bit. Can I order shoes online or do I need to take her somewhere so they can look at her feet? It's summer and we live in the country. She's barefoot or flip-flops with the occasional bling sandals for dress up times. Should she wear shoes during the day even when she's not outside? Is that what corrects this? I'm hoping that I can go ahead and buy the things we need and maybe it will self-correct? Help?

I've learned with pushy people to get pushy right back. I can't tell you how many times that well-meaning friends and relatives have tried to get my daughter to eat gluten. They tell her, "Come on, everyone breaks their diets on Thanksgiving!" or "Just a small amount won't hurt you" or "I'm allergic to things like that too, but this casserole never causes me any problems" or "Yes, it's gluten free, I only crushed a few saltine crackers in it to help the sauce thicken". And sometimes they get her something to eat and put it right beside their gluten food and we have to tell them that if it touches gluten, she can't eat it. (She's highly sensitive). If they even use the same spoon to stir a pot of gluten noodles and one that's gluten-free, she gets sick. I'm nice, friendly, complimentary of everything I see, but my daughter's not eating it. I'll bring my own stuff and occasionally, if there is literally nothing for her to eat (having been assured ahead of time that there will be plenty for her to eat), neither my husband nor myself will eat anything either. (This may sound silly, but it's hard to eat when your child is hungry and watching everyone eat food that she cannot have). At this point, we host all holiday meals that are entirely gluten free and invite both of our families. We don't do "food" holidays at other people's houses. (Sorry, off soapbox now) :) It's nice that you want to be gentle around the host's feelings but you shouldn't have to do that. Take whatever you want, tell her nicely that you cannot eat gluten at this time for medical reasons and change the subject. ETA - Just saw your last post. :) Glad everything will work out okay.