BakersDozen Posted September 14, 2013 Share Posted September 14, 2013 I found out mid-June that a pregnancy was not going to continue. It took 2 more weeks of testing and ultrasounds until baby's heart stopped beating. I "miscarried" for 6 long weeks then had another test done only to find out that my levels were still very high (2000+, maybe?). Further testing has shown the levels are very slowly coming down - VERY slowly. Last week I was at 236, today I am at 139. The odd thing is that last week I began another AF so getting the news that my levels are still high was a shock. My question is if anyone has had this happen? My loss at the beginning of the year was similar only my levels stalled out at 9000 or so; I ended up with a D&C. I didn't pursue surgery this time as I thought things were happening on their own which, I guess, is true yet for goodness' sake, it's taking a long time! Doctor wants another u/s next week which I think is useless as my levels are way too low to show anything in the uterus. Thoughts? Experiences to share? This last test result has about shaken me off of what tiny bit of strength I had left to get through this loss. I thought things were over and felt a smidge of hope, of being able to move on. This sucks. Quote Link to comment Share on other sites More sharing options...
duckens Posted September 14, 2013 Share Posted September 14, 2013 I have no experience or advice, but many, many hugs for you and for the life you carried that did not make it. I hope you, your body, and the medical professionals involved can sort this all out sooner rather than later. :grouphug: Quote Link to comment Share on other sites More sharing options...
GailV Posted September 14, 2013 Share Posted September 14, 2013 :grouphug: I hope someone has some insights for you. Quote Link to comment Share on other sites More sharing options...
PentecostalMom Posted September 14, 2013 Share Posted September 14, 2013 I have no experience or advice, but many, many hugs for you and for the life you carried that did not make it. I hope you, your body, and the medical professionals involved can sort this all out sooner rather than later. :grouphug: This. I did have a m/c in the past, but it didn't take that long, and levels came down more quickly too. Prayers as you navigate this difficult road. Quote Link to comment Share on other sites More sharing options...
zoobie Posted September 14, 2013 Share Posted September 14, 2013 I have not, but a dear friend had a partial molar pregnancy. That could be what the doctor is trying to rule out with ultrasound. Please continue following up with your doctor. If you don't trust him, maybe a second opinion would help? Good luck. Quote Link to comment Share on other sites More sharing options...
danybug Posted September 14, 2013 Share Posted September 14, 2013 Hugs to you! I am sorry you are going through this! I had 3 miscarriages from last June on (until this little babe stuck). And my numbers came down rather quickly. My 3rd one took a little longer and they thought maybe I would need a d&c to completely clear things out but I declined and everything eventually worked out. But we are talking a week maybe not months. Obviously, I am not a professional but I do not think it seems normal to still have elevated numbers this far out. I would have the ultrasound just to rule out any unforeseen issue. Again, lots of hugs to you! Quote Link to comment Share on other sites More sharing options...
Moxie Posted September 14, 2013 Share Posted September 14, 2013 What is your doctor's explanation about the numbers? Hugs to you. It sucks. Quote Link to comment Share on other sites More sharing options...
Kathryn Posted September 14, 2013 Share Posted September 14, 2013 I would do the ultrasound. You've been waiting for a long time. :grouphug: Quote Link to comment Share on other sites More sharing options...
BakersDozen Posted September 14, 2013 Author Share Posted September 14, 2013 What is your doctor's explanation about the numbers? Doctor and nurses say it can take this long, at least the levels are dropping, blah blah blah. If it was partial molar wouldn't my levels initially have been very high? I thought that was a symptom of molar/partial molar and my levels were right on for normal singleton. Guess I'll get the u/s. That will be emotional as I've been in that same place too many times these last 7 months, all with bad results. sigh Quote Link to comment Share on other sites More sharing options...
IdahoHomeschooler Posted September 14, 2013 Share Posted September 14, 2013 You need the U.S., unfortunately. It's very doubtful that the bleeding you had was AF. Sounds like the miscarriage is incomplete, and some tissue remains. On another message board that I frequent, 2 of the posters have been going through something quite similar to what you are dealing with. One ended up with an accreta and decided on an hysterectomy. The other had a d&c that was incomplete, and a recent endometrial biopsy confirmed that there was necrotic embryonic tissue present that was missed in the d&c. She is also suspected of having an accreta. Currently, she is trying to work out a surgery date, and hopes to retain her uterus. Both of these women are grand multiparas, like yourself. I'm sorry for your loss. Quote Link to comment Share on other sites More sharing options...
LMD Posted September 14, 2013 Share Posted September 14, 2013 I'm sorry for your losses. I don't have advice about the numbers, but with my last miscarriage i bled for 10 weeks straight. It is exhausting, & yes i had 2 normal cycles in that time. I did have another US to check for retained products. They said there was some small blood clots irritating & prolonging the bleeding but i avoided a d&c this time. :grouphug: Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted September 14, 2013 Share Posted September 14, 2013 :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
BakersDozen Posted September 15, 2013 Author Share Posted September 15, 2013 Thanks, ladies. I'm a wee bit sick of this. Told someone IRL today what is going on and was told to find joy in the situation. I refrained from slapping her silly. Quote Link to comment Share on other sites More sharing options...
MAIMOM Posted September 15, 2013 Share Posted September 15, 2013 Thanks, ladies. I'm a wee bit sick of this. Told someone IRL today what is going on and was told to find joy in the situation. I refrained from slapping her silly. HUGS! I am amazed you had willpower to refrain from slapping her silly! Dumb comment she made Quote Link to comment Share on other sites More sharing options...
Kathryn Posted September 15, 2013 Share Posted September 15, 2013 Thanks, ladies. I'm a wee bit sick of this. Told someone IRL today what is going on and was told to find joy in the situation. I refrained from slapping her silly. WHAT?!? I'm so sorry that you were speaking with such a horribly insensitive and rude individual. Quote Link to comment Share on other sites More sharing options...
BrookValley. Posted September 15, 2013 Share Posted September 15, 2013 Thanks, ladies. I'm a wee bit sick of this. Told someone IRL today what is going on and was told to find joy in the situation. I refrained from slapping her silly. Next time, slap her silly. How unhelpful. Sorry for what you are going through. :( Quote Link to comment Share on other sites More sharing options...
freeindeed Posted September 15, 2013 Share Posted September 15, 2013 I am sorry. I hope you get answers soon. Quote Link to comment Share on other sites More sharing options...
mommymilkies Posted September 15, 2013 Share Posted September 15, 2013 I was also going to say Molar or incomplete m/c. Do you know if you have fibroids? They can cause false positives with hcg and could cause some of those symptoms. I definitely think an u/s is in order. Quote Link to comment Share on other sites More sharing options...
Moxie Posted September 15, 2013 Share Posted September 15, 2013 Are they working with you to find a cause for the repeat miscarriages? Quote Link to comment Share on other sites More sharing options...
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