Angela in TN Posted April 18, 2008 Share Posted April 18, 2008 This morning I had an appointment with the pediatrician for my older ds(8) he has pectus excavatum (or sunken chest) and this past week he had chest pain while playing. He actually came in to sit down because he said it hurt. He's been to a cardiologist before but they said things were fine (3+ years ago). He also has joint pain and the Dr. is sending us to the cardiologist again, the opthamologist and a genticist to rule out Marfan's Syndrome. They also did a pulmonary function test and it turns out the severity of his sunken chest is affecting his lung capicity so we'll be looking at a correction in the next few years. So I'm relieved that my Dr. is awesome and sending us to investigate this possibility (I came armed with the info at the appt. but didn't need to use what I had) and overwhelmed that my son may either have Marfan's OR need to have a major surgery to correct his pectus. This requires a bar being inserted into his chest for 2 years, the kids who have it done seem to have a major improvement in quality of life. Also got a call that my cousin's youngest dd(2) was taken to the hospital today and it appears she has leukemia so it's been a heavy day. I know I should've just driven to Melissa's to claim my Mikes! Quote Link to comment Share on other sites More sharing options...
E_Edgerton Posted April 18, 2008 Share Posted April 18, 2008 Tomorrow will be better and you will be stronger. Take care:grouphug: Quote Link to comment Share on other sites More sharing options...
Claire Posted April 18, 2008 Share Posted April 18, 2008 oh, {{{hugs}}}. :grouphug: Quote Link to comment Share on other sites More sharing options...
Brigitte Posted April 18, 2008 Share Posted April 18, 2008 Oh Angela, what a day. I hope that the doctors give you answers and relief for you son quickly. Hugs and prayers to you, your son, your cousin and her little one. Quote Link to comment Share on other sites More sharing options...
Elisabeth in IL Posted April 18, 2008 Share Posted April 18, 2008 I hope that tomorrow is better. :grouphug: I'm glad that you have a doctor that you can be confident in. Quote Link to comment Share on other sites More sharing options...
Mamagistra Posted April 18, 2008 Share Posted April 18, 2008 Yes, tomorrow will be better. :) Hugs and prayers to you and your fam. :grouphug: P.S. Your avatar is just the prettiest, happiest pic. I smile every time I see it. :D Quote Link to comment Share on other sites More sharing options...
Crissy Posted April 18, 2008 Share Posted April 18, 2008 Oh (((Angela))). I am so sorry for all you are dealing with today. Know I am praying for you all. Quote Link to comment Share on other sites More sharing options...
5kidsforME Posted April 18, 2008 Share Posted April 18, 2008 Angela, I am praying for you and tomorrow will be a better day for you all. (((hugs))) Quote Link to comment Share on other sites More sharing options...
Mom2legomaniacs Posted April 18, 2008 Share Posted April 18, 2008 Awww, that is not a good day at all, is it. I will be praying for all of you and your cousin's dd as well. I am so sorry. Come on over for that Mike's. I have extra! Let me know if you ever need me to get B. for you while you have stuff going on with C. (((Angela))) Quote Link to comment Share on other sites More sharing options...
Merry Posted April 18, 2008 Share Posted April 18, 2008 Oh, I'm sorry about the bad news. It can seem overwhelming but it sounds like your doctor will be quite helpful. Quote Link to comment Share on other sites More sharing options...
jail warden Posted April 18, 2008 Share Posted April 18, 2008 I'm so sorry!:grouphug: Having a child go through something like that has got to be so difficult.:sad: Quote Link to comment Share on other sites More sharing options...
Denise in IN Posted April 18, 2008 Share Posted April 18, 2008 What a lot for you to deal with in one day! I do hope the doctor's are able to help your son. We have friends whose son just had surgery in December for his sunken chest (he is 16). He actually had a second surgery a couple of months later to adjust the bar, but I think he is doing well now. It's such a hard thing to face medical issues with our children! I'll be praying for you and your family. :grouphug: Quote Link to comment Share on other sites More sharing options...
Amy in Orlando Posted April 18, 2008 Share Posted April 18, 2008 Gah! What day. I think it's great you're so comfortable with your doctor. I'll keep you and your whole family in my prayers. ((())) Quote Link to comment Share on other sites More sharing options...
DIY-DY Posted April 18, 2008 Share Posted April 18, 2008 Sounds like you could use some comforting time spent with a caring friend. {{hugs}} I'm so very glad you have good medical practitioners on your team, but am so sorry you're going through this. You and your sweet boy are in my thoughts and prayers. Dy Quote Link to comment Share on other sites More sharing options...
Angela in TN Posted April 18, 2008 Author Share Posted April 18, 2008 Thanks all for your support, I appreciate it. Today feels better and at least we have a plan of action so I feel good about that. Melissa appreciate the offer of help (and the Mikes!) :) Debra thanks for the avatar comment that made me smile!:D Quote Link to comment Share on other sites More sharing options...
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