TravelingChris Posted August 10, 2009 Share Posted August 10, 2009 As many of you have read in the past 6-8 months, my youngest daughter has osteoporosis of unknown etiology. She is currently on Fosamax once a week, vit D and calcium every day. She broke a toe a while ago and had a upcoming appointment with the orthopedist for re-evaluation of that. On Wednesday, she moved her arm like making the motions for the front crawl and got a bad pain in her lower shoulder blade area (scapula). SInce she had an appointment on this coming Monday and I wasn't sure she broke it, I gave her ibuprofens. On Friday late afternoon, after the doctors went home, she bent her shoulder and back a bit to look down at something while sitting and heard a loud crack and that same area now hurts a lot more. I have her in a sling and am giving her 600 mg. ibuprofen every 4 hours. I will be giving her benadryl to help her sleep since her sleep has been so bad with the pain. Tomorrow we get xrays. If it is broken where she has the pain, mostlikely the same treatment will be prescribed though I want them to also prescribe her narcotic pain killers since she still has pain with 600 mg. and even that is too much ibuprofen for her. If it is broken, the next course of action will be a bone biopsy since we can't really wait to see if the fosamx will eventually work while she breaks bone doing normal movements. I am tremendously worried. I don't want my child who did swim team and diving for the first time this summer because I thought it would be okay exercise for an osteoporotic child to become completely immobile. SHe isn't having the typical breaks of the type of osteoporosis where the chidlren outgrow in puberty. Please pray that the doctors are able to manage her pain, figure out what is going on, and if there is a way to stop it, to do that. Quote Link to comment Share on other sites More sharing options...
Desert Rat Posted August 10, 2009 Share Posted August 10, 2009 Sending good thoughts your way. I hope she feels better soon! Quote Link to comment Share on other sites More sharing options...
dirty ethel rackham Posted August 10, 2009 Share Posted August 10, 2009 Oh dear. Poor thing. Your daughter is in my prayers. Quote Link to comment Share on other sites More sharing options...
MamaT Posted August 10, 2009 Share Posted August 10, 2009 Chris, I'll be praying for your dd and that the doctors to have wisdom to know how to help her. I'm so sorry she's in pain. Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted August 10, 2009 Share Posted August 10, 2009 Oh no. Praying that the Drs. can get a handle on this soon. And praying for relief from the pain. Quote Link to comment Share on other sites More sharing options...
sandellie4 Posted August 10, 2009 Share Posted August 10, 2009 Your family's in our prayers here. :grouphug: Sandy Quote Link to comment Share on other sites More sharing options...
Geo Posted August 10, 2009 Share Posted August 10, 2009 (edited) Oh Christina! I must say, I am so sad for all her suffering. She sounds like such a brave little girl. I can't imagine how hard this is on you as well. Praying now. :grouphug: Geo Edited August 10, 2009 by Geo Quote Link to comment Share on other sites More sharing options...
TracyR Posted August 10, 2009 Share Posted August 10, 2009 Oh my. I hope her doctors can get to the bottom of it. Have you at all seen genetics? That would be a good place to start. Have they looked into Osteo gensis imperfecta? Children who have this break bones very easily. Quote Link to comment Share on other sites More sharing options...
kalanamak Posted August 10, 2009 Share Posted August 10, 2009 I my goodness, this must be terrifying, and awful to be so helpless in the face of pain. I know docs are jumpy about "controlled substances", so please consider keeping a careful log of when you dose her (and mention the benedryl) and what her "pain level is on a scale of 0-10, with ten being the worst pain imaginable" both before the pill and an hour afterwards. HTH. I hate watching kids suffer. Quote Link to comment Share on other sites More sharing options...
Mommy2BeautifulGirls Posted August 10, 2009 Share Posted August 10, 2009 Your family will be in my thoughts. Please keep us posted as to what the doctors say. Hopefully, they will be able to get her on a treatment plan that prevents this from continuing to happen. Quote Link to comment Share on other sites More sharing options...
Sugarfoot Posted August 10, 2009 Share Posted August 10, 2009 Praying for you. May God grant you peace through the trials you're facing.:grouphug: Quote Link to comment Share on other sites More sharing options...
katemary63 Posted August 10, 2009 Share Posted August 10, 2009 Poor thing! So Sorry for her pain. Our prayers for a quick recovery and Doctor's wisdom. Quote Link to comment Share on other sites More sharing options...
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