happycc Posted July 26, 2014 Share Posted July 26, 2014 Took a break recently because I have found out that yet another one of my kids have autism. Two of my boys have been diagnosed with pdd-nos and now my third son has full Kanner autistic disorder. I am personally exhausted, tired and hopeless at times. I am doing my best by staying busy! My 19 yrs diagnosed with pddnos and bipolar has finally graduated with high school. What he is going to do now is a different story. He is currently "engaged". We will see about that once she finds out his true self (long distance relationship and she just moved here to spend more time with him ). Holding my breath and keeping my parachute opened in case this situation falls. My 5yrs old son dxed with pdd-nos is starting K next year and back to receiving ABA and still gets speech. Reaching best reading program for him. (Thoughts anyone?) My 19 months is nonverbal and non gestural (just within this week -starting to point). I am still waiting for him to say mama. He has been diagnosed with Full Kanner autism. He is so bright and can give his sisters the parts to the Snap Circuits he wants her to build his favorite helicopter flying toy but yet can't say mama for the life of him. He is learning some signs now that he has been in speech. Aba starting within a few weeks. Quote Link to comment Share on other sites More sharing options...
OneStepAtATime Posted July 26, 2014 Share Posted July 26, 2014 No suggestions but lots of hugs. Best wishes and good luck! :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Snow Posted July 26, 2014 Share Posted July 26, 2014 I'm sorry. Hopefully aba will be really helpful for you both. (((Hugs))) Quote Link to comment Share on other sites More sharing options...
Storygirl Posted July 27, 2014 Share Posted July 27, 2014 I'm sorry! I feel exhausted, overwhelmed, and sometimes hopeless at times, too. You've already had a long journey, and there is a long road yet ahead of you yet. I hope you can find the support and help that you need. :grouphug: Quote Link to comment Share on other sites More sharing options...
Crimson Wife Posted July 27, 2014 Share Posted July 27, 2014 Hugs and don't let the "classic" autism label scare you. 19 months is really young and there is a LOT of language development that goes on in the first few years of life. My little one has a "classic" autism diagnosis and had very minimal spontaneous speech when she was first diagnosed with Global Developmental Delay at 24 months. I think she tested at an 8 month level for expressive speech. She is now 5.5 years and while she still has a speech delay in terms of syntax and more complicated concepts like pronoun use, her vocabulary is actually above average. If you talked to her without knowing her actual age, you would probably just assume she was 3. Quote Link to comment Share on other sites More sharing options...
Guest Posted July 27, 2014 Share Posted July 27, 2014 . Quote Link to comment Share on other sites More sharing options...
Lecka Posted July 27, 2014 Share Posted July 27, 2014 I have a 5-year-old diagnosed with "classic" autism also. He has made a lot of progress with ABA. Right now he is doing Reading Mastery. There is some research base for using it with autism, it is a direct instruction program. He is doing good with it (for him). He knows some letter sounds and they have a way of teaching blending where they say "now say it fast" and he is kind-of able to blend. They start with saying "cow.....boy say it fast" and he says "cowboy." Same with "sand.... wich say it fast" and he says "sandwich." That is kind-of where he is at right now in Reading Mastery. Separately he is working on matching words, just matching one word to the same word with 5 choices. I don't think it is for everyone -- but it is what the head therapist would be a good thing to try with him. My son is visual but he is not visual like he can memorize words easily. For kids who are visual like they can memorize words ----- there are other options, that are good. But those are not things that are recommended for my son. He does good with the kind of thing that Reading Mastery is, I think. It is broken down in small pieces and it is designed for small-group instruction (he does it one-on-one right now), and it is mastery based and has a sequence where just a little new is introduced at a time. It is probably not going to be the only thing he uses, it is probably going to be like -- he gets an introduction and gets to a certain level (maybe a pretty basic level) and then they hope he can do whatever they do at school. Sorry, not helpful. But he was about where your younger was at 18 months. He had one word, "ma," that he used for everything, so they said it did not count as saying "ma ma." Well it did count to me, lol, just not to them. It took longer for him to get diagnosed, he just got speech therapy in EI and she thought he only had trouble hearing with fluid in his ears. Then he got diagnosed when he was turning 4 (about two weeks before his 4th birthday) and started ABA a little after he turned 4. About 20 months later -- and he is using a lot of functional language and he has got great joint attention, and next year will be doing a lot more with social skills (this is my plan lol). Btw his copy of Reading Mastery is checked out from the school district. It is pricey otherwise but it is in little sections and possible to check out just one section and not break any copyright laws. Quote Link to comment Share on other sites More sharing options...
Guest Posted July 28, 2014 Share Posted July 28, 2014 . Quote Link to comment Share on other sites More sharing options...
Crimson Wife Posted July 28, 2014 Share Posted July 28, 2014 When DD garbles a sentence, what usually happens is that her therapist, teacher, or I will ask if she means the correct sentence. She generally will repeat back the correct one. I do know that the ABA therapists are teaching her a lot of scripted responses to get around the issue as well. Quote Link to comment Share on other sites More sharing options...
Guest Posted July 28, 2014 Share Posted July 28, 2014 . Quote Link to comment Share on other sites More sharing options...
Pen Posted July 29, 2014 Share Posted July 29, 2014 Hugs and hang in there! When I read such posts--multiple children with _______-- it makes me wonder what is causing the _______ . Quote Link to comment Share on other sites More sharing options...
Guest Posted July 29, 2014 Share Posted July 29, 2014 . Quote Link to comment Share on other sites More sharing options...
Guest Posted July 29, 2014 Share Posted July 29, 2014 . Quote Link to comment Share on other sites More sharing options...
kbutton Posted August 2, 2014 Share Posted August 2, 2014 Happycc, hugs as you navigate this familiar but different territory. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.