Jump to content



  • Content Count

  • Joined

  • Last visited

  • Days Won


Everything posted by happycc

  1. To be honest I should have many times. But how on earth do you shove a diastat up someone's rectum while they are seizing? You have to hold them down and wrench things apart. Seems so violating.
  2. Yes, the curriculum is based on Teaching Reading to Children with Down Syndrome by Patricia Logan Oelwein. It has been a huge paradigm shift for me as I have raising kids using The Well Trained Mind method and this is nothing like it.
  3. Yes I am hoping we can get the seizures under control which I think they are. The doctor however says she cannot suppress the interictal epileptiform discharges in son's case so his issues will continue. Day before Thanksgiving he had a full 45 min rage attack and we nearly had to call 911 and use his diastat. He is on lamictal and straterra will be added as well.
  4. This is the only program that does not trigger my son. So Happy to Learn He is more willing to come to the table and work with me. Sometimes he doesn't want to leave the table and wants to keep working with me. Wish I knew about this sooner.
  5. He has multifocal epilepsy. Interictal epileptiform discharges originating in 3 or more points on both sides of the brain that can secondary generalized grand mal seizures. My son has at least 12 different points. See attached. I matched the points mentioned in his medical report to this form. Genetics testing pending for seizure disorders to find a possible syndrome. Neurologist said basically as a result there are only two meds (Onfi and Depakota) he can try after this current one he is on. He is on Lamictal as we had to take him off zonergran and neurologist doesn't want him on topamax eith
  6. We got the low gain hearing aids. He is doing great and talking a whole lot more and engaged. Asking for names of things and why they are called that. Also starting to self correct his speech more. He also has gotten more physical too like running, jumping with less clumsiness. Happier in general. He keeps it in for 9 hours for an hour break or so midday.
  7. IEP Was three hours long and still not finished. Still processing it. It was more of a record review of the annual and triennial plus DHH preliminary assessment.
  8. Spoke to Neuro earlier in the week: med changes to continue to decrease zonergran (can cause memory, behavior and LANGUAGE issues) and increase lamictal despite the fact there is a FDA warning that just came out that Lamictal causes Arrhythmia. If the lamictal doesn't work then he is a candidate for VNS implant but she is not running towards that as it makes future MRI's complicated. He is waitlisted to go into SF Kaiser for 24 hours eeg Electronic Monitoring with Video. Had DHH assessment yesterday. Genetics appts today- ordering Exome genetic looking at the connection
  9. Had a meeting with neuro.. He is waitlisted for eeg EMU in SF. He will be getting a battery of genetic tests. VNS implant is an option if lamictal doesn't work. But doctor is hesitant to do VNS as it makes it hard to get MRI's. Still going through med changing and waiting for hearing aids and recommended to hold off on all assessments until these things stabilizes.
  10. https://www.modelmekids.com/autism_curriculum.html
  11. Another one..... https://www.iidc.indiana.edu/irca/articles/curriculum-materials-and-programs-for-individuals-on-the-autism-spectrum.html
  12. https://www.appliedbehavioranalysisprograms.com/autism-homeschool-curricula/
  13. We are with Kaiser an HMO and limited to what they are willing to do. Must always follow protocol or their flowchart.
  14. I am about to draft up an email to his neuro regarding genetics testing (they did a battery of them when he was first dxed with autism i think) PT referral through medical or educational?
  15. Oh yes tons of OT since three years or four years ago. Yes they do gross motor as he couldn't hop on one foot or catch a ball at first. He is getting better. But with SIP, there is a lot of screen time now and lounging. I got him signed up with Basketball once a week but then SIP came and shut that down. SIGH. He isn't a fan of active movement because he isn't very coordinated. He finally stopped falling down stairs at our house or at least I haven't heard it in awhile. We haven't gone to the park since SIP. SAD. I am so neurotic about it all due to his seizures.
  16. You always have such involved responses that takes me a bit to answer. I have to sit and digest each piece bit by bit. My son does not like to draw. And often when he draws doesn't even remotely look like the object-looks like scribbles. However if he is holding the mouse and drawing on the screen, then it looks a whole lot more like the object. His idea of drawing is getting a bunch of colors and making a mixture on the paper. So when I asked him to draw a turtle he got brown and green and just colored the whole page with both those colors. No round shape with four elongated parts and no eyes
  17. When you have gone through trauma your processing speed for heavy cognitive things and frontal lobe just shuts down and it is your mere basic survival mode that is activated. As a child who was taken out by CPS it took many years of trauma to finally get me out (early teens for me). It was years and years of neglect, trauma and abuse before I was finally out. And in some of the placements, the abuse and neglect continued. So basically back to square one. 14 placements in 4 years. Which doesn't count the many home bopping I had prior to being taken out by the government. I was in a ton o
  18. you know... now that you mention this... There is nothing between Prodigy, ST math, and Dreambox vs Moby Max and Iready. It is either extremely gamey or really drill based like flashcards on the screen which will not work for my kiddos.
  19. Yup we just got into the weekly Hero Kids class Monday nights. Yeehah. Looking for a weekly DND class for my older one and maybe for the younger one if he can hang. I am thinking not for now. Dungeon World By Latorra and Koebel might be the in between level that might work better. If you know anyone who can lead Dungeon World let me know.
  20. http://nemtss.unl.edu/wp-content/uploads/2018/08/PBIS-at-HOME-Binder-FINAL.pdf
  21. Love Dragonwood here. Hasn't played it in awhile. His is struggling with attention span issues suddenly or at least more so than before. He liked Sum Swamp too for a long time. We got stuck on counting on. So now thinking I need to back track and teach some of this so he can do the counting on worksheets. He can count like 1,2, 3, 4 but when you give him a number other than 1 to start with....he's stuck. He can't remember what number comes next after that. Never mind going backwards for subtraction. Ideas Ideas? Should I just walk around the house counting on from different s
  • Create New...