Anne Posted September 6, 2017 Share Posted September 6, 2017 My adult daughter has been diagnosed with Crohn's Disease. I am encouraging her to seek a second opinion as well as other treatment options. Does anyone have any recommendations for a good Crohn's/IBD clinic/specialist? This has been so, so difficult! Anne Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted September 6, 2017 Share Posted September 6, 2017 My dd's Gastro-Enterologist also deals with Crohn's. I would look for one of those in your area. (Dd goes to a pediatric gastro-enterologist so he wouldn't work for your dd.) 1 Quote Link to comment Share on other sites More sharing options...
mumto2 Posted September 6, 2017 Share Posted September 6, 2017 I was incorrectly diagnosed with Crohn's in my mid 20's so please tell her it happens. Definitely get the second opinion. I had a new gastro doc who specializes in Crohn's do my second. My dh found him through a colleague. Part of my switching was because I didn't care for my first doctor. I did really like the second one, not just because he said the other doctor who had been his resident several years previous was wrong. ;) 1 Quote Link to comment Share on other sites More sharing options...
LifeLovePassion Posted September 6, 2017 Share Posted September 6, 2017 I have had it since age 3. What has really helped has been diet changes. The specific carbohydrate diet jump started me, now I have introduced more foods and am gluten free and minimal dairy. 2 Quote Link to comment Share on other sites More sharing options...
Mbelle Posted September 6, 2017 Share Posted September 6, 2017 My dh has had this since mid teens. It is rampant in his family from siblings to 2nd and 3rd cousins and aunts and uncles and so I have kept a close eye on my kids. Finding the right gastro is so important. The Specific carbohydrate diet is a great place to start. If it flares up then he do a no fiber diet for a few weeks and that seems to calm things down. Occasionally he will fast or just have liquids. 2 Quote Link to comment Share on other sites More sharing options...
Jenn in FL Posted September 6, 2017 Share Posted September 6, 2017 Mayo's GI departments are beyond fabulous. :hurray: :hurray: :hurray: 1 Quote Link to comment Share on other sites More sharing options...
Laurie Posted September 6, 2017 Share Posted September 6, 2017 The old saying "Everything old is new again" seems to be true for the Specific Carbohydrate Diet as well. There's a book by Dr. Suskind, a local pediatric gastroenterologist, called Nimbal Therapy which is mostly based on the Specific Carbohydrate Diet. They have a doctor finder at the Nimbal website...most will be pediatric gastro drs, but it looks like there are some drs. for adults as well. https://www.nimbal.org/locations#filter=.country-filter-US 1 Quote Link to comment Share on other sites More sharing options...
mominco Posted September 6, 2017 Share Posted September 6, 2017 (edited) DD has Crohn's and I fired 2 GI's because all they did was push biologics and we wanted more options, Specific carbohydrate diet is the way to go. Laurie is right about scd and Dr Suskind is a well known authority in this space. My friend Shannon Eavenson wrote a book after her son was diagnosed and its mostly based on SCD. Her son and my DD see the same GI. Please feel free to pm. GL to you and DD! *edited to clean up my post. Edited September 6, 2017 by mominco 1 Quote Link to comment Share on other sites More sharing options...
gingersmom Posted September 6, 2017 Share Posted September 6, 2017 Diet alone would not help my sons Crohns. He was on steroids/Humira, just Humira and now Remicade (with great success!!) There are lots of support groups on Facebook. Depending on where you are located they may have suggestions for a doctor. 1 Quote Link to comment Share on other sites More sharing options...
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