Epicurean Posted August 19, 2017 Share Posted August 19, 2017 My doctor thinks I have sacroiliac joint disease. I'm in a lot of pain. At my worst, I couldn't get out of bed without crying, dress myself or walk without a cane. I'm doing a lot better now that I'm on muscle relaxers, but it's still pretty life altering. Does anyone here have experience with this condition? Did you find the steroid shots to be effective? Anything I should know about? Quote Link to comment Share on other sites More sharing options...
scholastica Posted August 19, 2017 Share Posted August 19, 2017 How long has it been going on? Have you tried physical therapy? Been to a chiropractor? My si likes to lock up. I have found great improvement through strengthening my entire back. Stretching my hamstrings and glutes helps as well. More movement = less pain for me. Quote Link to comment Share on other sites More sharing options...
aaplank Posted August 19, 2017 Share Posted August 19, 2017 My sister has suffered with this for years. She finds temporary relief from nerve blocks, but she has found the most relief through traction and therapeutic massage that includes manual traction. A TENS unit has also been helpful. Quote Link to comment Share on other sites More sharing options...
Liz CA Posted August 19, 2017 Share Posted August 19, 2017 I was going to suggest chiro and therapeutic massage as well. Especially, the massage relaxes my muscles and the chiro aligns the bones. I have a congenital issue where two bones are grown together - so perhaps not the same thing. Quote Link to comment Share on other sites More sharing options...
ktgrok Posted August 20, 2017 Share Posted August 20, 2017 I get issues when pregnant, or at least worse while pregnant. Massage, chiropractic, and exercise that strengthens the gluten and thighs helps me. So think squats and lunges. Which I hate. 1 Quote Link to comment Share on other sites More sharing options...
desertstrawberry5 Posted August 20, 2017 Share Posted August 20, 2017 I do, but it's part of a larger condition that effects most of my joints. I just use stretching, rest, and nsaids like I do for everything else. Comparatively this is not my worst pain. 1 Quote Link to comment Share on other sites More sharing options...
Pawz4me Posted August 20, 2017 Share Posted August 20, 2017 I developed issues when pregnant and they revisit me periodically. It can be an incredibly painful issue! As others have said -- strengthening, stretching and NSAIDs usually work for me. I try to stretch regularly to prevent a problem, but when it flares doing a few stretches (you can find them on YouTube) often gives at least temporary immediate relief. Quote Link to comment Share on other sites More sharing options...
MBM Posted August 20, 2017 Share Posted August 20, 2017 My doctor thinks I have sacroiliac joint disease. I'm in a lot of pain. At my worst, I couldn't get out of bed without crying, dress myself or walk without a cane. I'm doing a lot better now that I'm on muscle relaxers, but it's still pretty life altering. Does anyone here have experience with this condition? Did you find the steroid shots to be effective? Anything I should know about? I used a pulsed electromagnetic frequency (pemf) device, the SOTA, to get rid of my pain. A PEMF device sends a magnetic pulse through tissue which helps your body heal through several pathways. It took several weeks using the device as often as possible but worked very well. Today I'm pain free but use it for other problems that crop up. The SOTA would be a good choice for problems in deeper areas. https://www.drpawluk.com/health/back-pain-lumbar-disc/ Quote Link to comment Share on other sites More sharing options...
Lady Florida. Posted August 20, 2017 Share Posted August 20, 2017 (edited) Mine started when I was pregnant with the one who will be 20 in a few weeks. There's very little I can do for it. Sometimes PT exercises help, sometimes rest and ice helps. My home TENS unit helps a little. About once a year I get a steroid injection. NSAIDS barely touch it. Everything that does give me relief is temporary. Sorry to sound pessimistic (I'm usually accused of being the opposite) but IME at least, there's not much to be done. Oh, and I had a spinal cord stimulator implanted but it doesn't help. It did for the first year but not anymore. I plan to get it removed because as long as it's in me I can't get any MRI's in that area. Edited August 20, 2017 by Lady Florida. Quote Link to comment Share on other sites More sharing options...
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