chickenpatty Posted February 21, 2008 Share Posted February 21, 2008 We just got home from the hospital. We are still in shock. Dd has been an amazing trooper. Her poor little fingers are so sore. :( We don't have a history of this in either family. I'd like to get her a pretty (diabetic) bracelet, something special. Anyone know where I might find one like this? Sigh. Now I think I will go cry all the tears I've been fighting back at the hospital. I wish it could be me instead of her. My poor sweet baby. :( Quote Link to comment Share on other sites More sharing options...
unsinkable Posted February 21, 2008 Share Posted February 21, 2008 I'm so sorry. I remember the feeling of being blindsided when my dd was diagnosed w/epilepsy at age 6. Cry your tears. It hurts too much to hold them back for long. You have my prayers. Quote Link to comment Share on other sites More sharing options...
Cathy in IL Posted February 21, 2008 Share Posted February 21, 2008 I am so sorry to hear that. It is hard dealing with chronic illness. My ds has sickle cell disease, and there are times it feels so overwhelming. Times I feel so sad for him. I find it helps me to learn all I can about his diagnosis. The more I know about it, the more I know what to look for and how to keep him well. I try to focus on the things he can do instead of what he can't. I keep a notebook that lists how he feels each day. This has really helped when the doctors ask how long has he had this symptom or that. It is much easier than guessing and trying to remember everything. Pamper yourself and take the time you need. Take it day by day. ((chickenpatty)) Quote Link to comment Share on other sites More sharing options...
Anna Posted February 21, 2008 Share Posted February 21, 2008 Chickenpatty, I'm so sorry you are having to deal with this. My 17yodd was diagnosed with type 1 back when she was 7yo. I know exactly how you feel. Please feel free to PM me if you want to talk. As for bracelets---- One of those nice, soft rubber ones are so much more practical and won't break while your dd is being a busy, active young lady:). Plus she can sleep with it on, another good feature. If there is ever a middle-of-the-night emergency, you'd want that to be on her. Well, she should have it on her 24/7 ICE (in case of emergency). Quote Link to comment Share on other sites More sharing options...
Michele in New Zealand Posted February 21, 2008 Share Posted February 21, 2008 I am so sorry to hear about your little girl. :( You must be so sad and worried. You will become an expert in dealing with this in no time and life will become less of a fog again. It is very hard emotionally to deal with a child that has a chronic illness. Cry all the tears you need too and get as much support as you can. Ask questions and never be afraid to 'let it all hang out!' I googled for bracelets and here are two that came up. http://www.laurenshope.com/childrens-medical-bracelets.asp http://www.childrenwithdiabetes.com/d_06_700.htm Michele~ Quote Link to comment Share on other sites More sharing options...
Christy B Posted February 21, 2008 Share Posted February 21, 2008 I am so sorry, I can't imagine how overwhelmed you must feel. My best friend's ds was diagnosed at age 3 or 4 . . . life isn't a bowl of cherries for them but it is amazing how resilient and adaptable children are. He now has a pump and he's really great about knowing how much insulin he needs, how many carbs, etc. He can tell me when he's feeling poorly, and what to do about it. I think homeschooling will make life easier for you both . . . my friend does frequently have to drop everything and run to the school if he has a problem. Hugs to you and your sweet dd. Quote Link to comment Share on other sites More sharing options...
mommylaw Posted February 21, 2008 Share Posted February 21, 2008 I'm sorry I will add your dd to my prayer list. I can't imagine the feeling you are processing right now. I'm so sorry. Quote Link to comment Share on other sites More sharing options...
Doran Posted February 21, 2008 Share Posted February 21, 2008 I'm sorry, chickenpatty. Really sorry. Please know that I'm sending you peace and lots of understanding hugs. When you know more, I think it will seem less overwhelming. Take care of yourself. You will want to spend every waking moment reading and coming to terms with this, I'm sure, so don't forget to take time to just breathe and think...and cry whenever you need to. Like now. {{{chickenpatty}}} Doran Quote Link to comment Share on other sites More sharing options...
sdWTMer Posted February 21, 2008 Share Posted February 21, 2008 My dad is Type 2 diabetic. I'm so very sorry. Something that you might want to try is Cinnulin by Bluebonnet. It is something that my dad uses to keep his blood sugar regular. Just thought that I would pass that on. So very sorry that you and your daughter are going through this! HTH Quote Link to comment Share on other sites More sharing options...
JennifersLost Posted February 21, 2008 Share Posted February 21, 2008 so sorry - hugs to you and your dd. I hope you find as much info and help here on the boards and other places as I found the other day about ds' allergies. Thank God there are so many people here willing to help and listen. Lots of good thoughts coming at you! Quote Link to comment Share on other sites More sharing options...
Holly IN Posted February 21, 2008 Share Posted February 21, 2008 We had one made for our dd with autism when she didn't communicate. We went through MedicAlert. Do a google search on it. I highly recommend going through them. It is membership based plus bracelet. It is well worth the money. They will put the hot line phone number on the bracelet. So in any case if she were to be sent to the er they will see it and call the number. They will provide (after proper identification through hospital) them with the meds she is taking, her diagnoses, her dr and your names and contact info. It is well worth going that route. Holly Quote Link to comment Share on other sites More sharing options...
Whisperlily Posted February 21, 2008 Share Posted February 21, 2008 I don't have any helpful advice to offer, I'm not familiar with the ins and outs of diabetes, but my heart goes out to you. Go ahead and cry if it helps. I wish I could be there to sit with you, and offer a cup of hot tea and a listening ear. Quote Link to comment Share on other sites More sharing options...
Ottakee Posted February 21, 2008 Share Posted February 21, 2008 I would also go with them. I have one for each of my girls. That way, if there was an emergency where I wasn't able to communicate they would have their names, emergency contact information, diagnosises, med list, specialists, etc. The cost is not too much. They have a nice selection but I would make sure to get a STURDY bracelet and one that looks LIKE a medic alert one to some degree so it is not passed off as just a pretty bracelet. Quote Link to comment Share on other sites More sharing options...
Holly IN Posted February 21, 2008 Share Posted February 21, 2008 The cost is not too much. They have a nice selection but I would make sure to get a STURDY bracelet and one that looks LIKE a medic alert one to some degree so it is not passed off as just a pretty bracelet. Yes, get the traditional kind of medic alert bracelet. They have a pretty one with but I wouldn't get it. It can be passed off as a pretty bracelet. I agree!! Holly Quote Link to comment Share on other sites More sharing options...
LaMere Academy Posted February 21, 2008 Share Posted February 21, 2008 no help, just prayers. This will change her life and yours, but you will get through it. ((hugs)) Quote Link to comment Share on other sites More sharing options...
LNC Posted February 21, 2008 Share Posted February 21, 2008 I already had a older profoundly handicapped older son, a mildly handicapped older son, and I have ms. NOTHING has thrown me emotionally like my son's diabetes. It was so unexpected, heartbreaking, and hard to get used to. Though, now it is like brushing my teeth.... Food is SUCH a part of our lives and to medicate it is traumatic. I'm so sorry. I know it is going to be hard for a while. Please email me if you want to vent or ask questions. You'll have to change ratios from time to time. Your doc and nurses expect you to call them! It is a day to day disease. Numbers go up and down all day. But the long term ratios are all that matter, and you have to remember that to stay sane. Hang in there! I hope you find her a beautiful bracelet. Pamper her! And give her a hug from a WTM family who is praying for her!! Quote Link to comment Share on other sites More sharing options...
JudoMom Posted February 21, 2008 Share Posted February 21, 2008 (((chickenpatty & dd))) Quote Link to comment Share on other sites More sharing options...
Guest PattyinMD Posted February 21, 2008 Share Posted February 21, 2008 So sorry that you are going through this. My dd was diagnosed 2 years ago, when she was 10. We have ordered bracelets from this company: http://www.fifty50pharmacy.com/Merchant2/merchant.mvc?Screen=CTGY&Store_Code=F5&Category_Code=SPORTKids It is so overwhelming at first, but it really does get easier. My daughter competes in all kinds of sports, goes to sleep-overs at friends, and even attends an overnight camp in the summer. Patty Quote Link to comment Share on other sites More sharing options...
Jenny in Atl Posted February 21, 2008 Share Posted February 21, 2008 ((Hugs)). My youngest was dx at 13 months. Fi is now seven and doing great despite the addition of Celiac and Hypo-thyroid. These kids are strong! I highly recommend subscribing to the Children With Diabetes support list. It gets lots of traffic but well worth it as you will learn so much in a very short time. Also, if you are in the US, you should be receiving a Bag of Hope from your local JDRF Chapter. I have met some wonderful folks through volunteer work with the JDRF. Your daughter will get to meet other kids her age and see she is not alone. There are also a number of awesome summer camps that are just for type-1 kids; many also offer family weekends as well. If you have any questions or just need a friendly shoulder, please don't hesitate to email me (abjb22@mac.com). Know you are not alone, take each day at a time, don't be hard on yourself, this is a marathon and not a race, and you, your family, and your daughter will do great. ((hugs)) Quote Link to comment Share on other sites More sharing options...
chickenpatty Posted February 21, 2008 Author Share Posted February 21, 2008 They really do mean a lot! I ordered her a bead bracelet with a fairly obvious diabetes "tag". I also ordered a "gummy" one for karate or ice skating. Thankyou!! Quote Link to comment Share on other sites More sharing options...
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