happycc - THANK YOU for copying that all here.

I have a 13 yr old who is a nonvocal communicator. He communicates with a speech generating device and some sign. His communication is not, however, anywhere near that of a child his age. Years behind in fact. I asked these same questions several years ago on another homeschooling forum I frequent. Although there was no one with specific experience, I was encouraged to look into materials geared toward children who are deaf. We have not reached the educational stage where this would be necessary for him (we are still working on ABC recognition) but I think it is an excellent idea.

It would be a tragedy in my house! :lol: We can go through a bunch a day without much trouble.

Good news :001_smile: Glad to hear the worst you have is expensive bananas!

:grouphug: :grouphug:

:grouphug: Praying for your safety.

After doing online research and careful consideration we've decided not to pursue the Botox for now. Just too much potential risk for us to be comfortable with. I know the chance of a problem is rare but for ds, the possible benefit does not outweigh the possible risk. They're not even sure it will help. We will keep the idea in mind if this situation ever advances to the point of affecting his quality of life or ability to walk. We're going to go ahead with regular casting and ask about nighttime AFO wearing as melmichigan and wonderchica suggest. Thanks everyone so much for sharing your experiences and those of people you know. It's good to know the positive stories if we need to pursue this in the future.

He wore AFOs for years from about 10 months but not for this issue. He needed the support to learn to walk. He graduated from those to a smaller insert. I'm going to ask if this is a possible treatment option for him.

Thanks bethben! Exactly the btdt info I need.

I honestly thought she was getting ready to suggest surgery. I will be sure to ask about the treatment if it doesn't work as they expect.

Interesting! The doctor said it helps to loosen the muscles. She did say it didn't work for everyone. I have no idea on placement but it is just one shot in each leg. Thanks for the note on the pain. He has no problem with regular shots so that shouldn't be an issue.

Is it working well? I don't know why that hasn't been mentioned. It's a great alternative (to my way of thinking anyway)

Amazingly they have him down for March 6th. We can cancel and just go with the casting again if we decide not to do the botox.

Thank you - good to hear they had no issues.

He's just got regular tight heel cords. No other foot issues except being flatfooted as a baby. They corrected that with AFOs No idea why the heels tighten but this guy has so many things going on there's no telling.

The doctor is recommending this for youngest ds for tight heel cords. I have no experience with this treatment protocol. Ds has had serial casting twice a year for the last several years. For those that don't know - serial casting is when they put a cast on that is removed several days later and new one put on holding the heel in position to stretch the tendon/muscle. For us that usually goes on for about 3 - 5 weeks. That has helped stretch the heel cords with nothing else needed. This time, however, he is very tight and the stretching didn't last as long. Hence, the Botox recommendation. They are planning to do it in the office but we have the option of doing it under sedation. Not knowing how painful it is I have no idea which is best for ds. If you've ever used this treatment for your child (or even yourself) I'd love some BTDT experience. Was it painful? Were there side effects? If you've ever had someone tell you not to use Botox for whatever reason I'd love to hear about that too. Thanks!

So very, very true!!

I've a feeling it's homebound instruction and not homeschooling. I had no idea who this person is so, curiosity being what it is, I clicked on the link to her FB in the article. There she says the daughter is on medical homebound and will get home instruction 3 hrs a week. To me that means through the school district. I wonder if the author of the article wrote it that way on purpose.

Glasses, car keys, cell phones and remotes should come with tracking systems. :001_smile: Hope you find them.

If you have a western wear store in your area you might try there. My ds is tall and thin. That is where we were able to get jeans when he needed 29/33.

Age doesn't matter here :) My oldest did declare himself too old for an actual basket but he still enjoys receiving something on Easter or V-day. I still get small remembrances from my parents (as do dh and the kids). I think it's wonderful. This year we included ds' girlfriend. If you are here (or at grandma's) on a holiday you get something even if you aren't family. Ds brought several of his college friends for this past Easter and each got a bag of Easter goodies. It's fun. I love any reason to give extra treats.

Makes sense! They wouldn't have time to zest - that's for sure :) I'm looking forward to trying out your recipe.

Here endocrinologists handle diabetes care (both adult and pediatric). My dad has type 2. He takes only one medication - Metformin. His numbers were on the low end of diabetes when he was diagnosed. He does not even have to check levels every day. His numbers have been great since he's on the medication.

Binip - this sounds wonderful! My bunch love rice dishes. What does the whole lemon do for the dish? I've never had a recipe that called for an unpeeled citrus before.