Ann.without.an.e Posted August 7, 2012 Share Posted August 7, 2012 After ds had a long, chronic bout with diarrhea, I put him on a gluten and dairy free diet. He is finally better. He has no stomach cramping and his diarrhea has finally subsided. He had already had a stool culture that tested for all sorts of things, so I knew it wasn't parasites, etc. His pediatrician originally had him scheduled to see a specialist. I have now asked for him to be tested for celiacs, rather than see a specialist. The ped is now on board with this. He says that I do not need to reintroduce gluten into his diet before the test. I am not sure? I hear such a mix of information on this. The ped. says that the new tests do not require gluten to be in the diet at all, but everything else I read says it must be in their system or you will have a false negative. Any thoughts? Quote Link to comment Share on other sites More sharing options...
kokotg Posted August 7, 2012 Share Posted August 7, 2012 :lurk5: interested to hear what you find out. We cut out gluten a year ago for various reasons. With my older kids, I mostly see behavorial changes, but my youngest now gets bad stomachaches if he eats gluten (often even with stuff like fries from a shared fryer). I kind of wish we'd had him tested before we went off gluten. We did have my husband tested (his psoriasis is one reason we tried going off gluten), and it came back normal. Quote Link to comment Share on other sites More sharing options...
Slipper Posted August 7, 2012 Share Posted August 7, 2012 Actually, yes, you need to be on a regular diet (including gluten that is) prior to testing. Without the presence of damage or gluten, the body will test normal. If it hasn't been long since you removed gluten, it may be okay, but it's not ideal. After my daughter tested positive on the blood test, she was still required to eat it until the biopsy (less than a week). Quote Link to comment Share on other sites More sharing options...
SilverMoon Posted August 7, 2012 Share Posted August 7, 2012 Which test are we talking about? The blood test, notoriously unreliable, requires gluten to be in your diet. The intestinal biopsy, more reliable but not foolproof, requires gluten to be in your diet. The stool test on the other hand, does not require gluten to be in your diet. This one is very reliable. You can read more about this one at http://www.enterolab.com. Quote Link to comment Share on other sites More sharing options...
athena1277 Posted August 7, 2012 Share Posted August 7, 2012 I stay up to date on all things Celiac. I have never heard of a test where you did not need to be on normal (non-GF) diet for accurate results. Honestly, I would try to get your dc in to see a ped. gastro. They are so much better at diagnosing CD. Quote Link to comment Share on other sites More sharing options...
Tess in the Burbs Posted August 7, 2012 Share Posted August 7, 2012 I went gluten free when my Dr suspected it. The referral was 6 weeks out. In 24 hours I wasn't tied to the toilet. My testing later was negative b/c I had started healing my stomach. Still GF and wouldn't change for official dx Quote Link to comment Share on other sites More sharing options...
dbmamaz Posted August 7, 2012 Share Posted August 7, 2012 curious why you want the test if your son is doing so much better? Quote Link to comment Share on other sites More sharing options...
tex-mex Posted August 8, 2012 Share Posted August 8, 2012 Actually, yes, you need to be on a regular diet (including gluten that is) prior to testing. Without the presence of damage or gluten, the body will test normal. If it hasn't been long since you removed gluten, it may be okay, but it's not ideal. After my daughter tested positive on the blood test, she was still required to eat it until the biopsy (less than a week). :iagree: Which test are we talking about? The blood test, notoriously unreliable, requires gluten to be in your diet. The intestinal biopsy, more reliable but not foolproof, requires gluten to be in your diet. The stool test on the other hand, does not require gluten to be in your diet. This one is very reliable. You can read more about this one at www.enterolab.com. :iagree: Quote Link to comment Share on other sites More sharing options...
Ann.without.an.e Posted August 15, 2012 Author Share Posted August 15, 2012 curious why you want the test if your son is doing so much better? The ped. is skeptical. He wonders if ds is only better because gluten and dairy are easier to digest. He want a ped. GI to order more testing and some of those tests I would really love to avoid with a child. I was hoping a blood test would be positive and we could just move on with life on a GF diet. The ped. said the new tests do not require gluten in the diet, but I don't feel so sure. He did not test positive. Quote Link to comment Share on other sites More sharing options...
dbmamaz Posted August 15, 2012 Share Posted August 15, 2012 lol i'd be tempted to switch ped's instead. but i dont much like doctors. Quote Link to comment Share on other sites More sharing options...
bettyandbob Posted August 15, 2012 Share Posted August 15, 2012 my middle dc is biopsy dx. She had to continue ingesting gluten until we got through the biopsy. That was painful for me--she was having seizures while she was on gluten. Of course all the docs told me that was unrelated, but as soon as the biopsy was complete and we went off gluten for good the seizures stopped. Quote Link to comment Share on other sites More sharing options...
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