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katalaska

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Everything posted by katalaska

  1. However, I think lots of people procrastinate (and suddenly find they don't have everything they need this time of year) OR they start using something specific (a certain curriculum) and decide it isn't working and they want to switch. It seems maybe now isn't too late... But then I haven't done a lot of selling lately... Hope someone else has a better answer!
  2. She just stands stiffly OR she rolls onto her back (you would think she wants her tummy rubbed but it's actually that us touching her or trying to touch her makes her stressed--at least that's how the animal behaviorist interpreted it). Wow, every time I write more about her "defects" I start thinking more and more that we should just try to return her to the breeder. :crying: I pulled the contract out last night and we can return her any time, essentially no questions asked. How would we explain THAT to the kids?
  3. Anyone else feel this way? We've known since dd was an infant that she was "difficult." By the time she was four we were being referred for suspected high-functioning autism or pervasive developmental disorder. We've enrolled her in school with special services, brought her home when those services were discontinued, and done other therapies with her. She is now in therapy for a language disorder (possible auditory processing disorder) and in occupational therapy for sensory processing problems/sensory integration/sensory something as well as feeding issues which are related to the sensory problems. Ds had a traumatic birth and was referred for special services at age two (at the same time dd was being referred for suspected HFA/PDD). He was found to have a moderate speech delay with mild gross and fine motor delays. He received in-home speech therapy through early intervention and then attended a preschool speech therapy program from which he was later dismissed. Last year I took him for reevaluation and he failed the vision screening. So now he's in treatment for the visual problems. This year I asked for referrals from our pediatrician to address his continued speech/articulation issues so he started back into speech therapy. Today we just got home from an occupational therapy evaluation to address his mild low muscle tone, intention tremor, and handwriting difficulties. He starts occupational therapy next week and the therapist says there is more going on than just neuro-motor issues (i.e. he has sensory integration problems, too, that are probably related to the low muscle tone). SO On the one hand I am thankful that SOMEONE out there is FINALLY listening to me and taking my concerns seriously. I am grateful that we have access to a good children's therapy group that is willing and able to evaluate and treat my children (so they can FINALLY get the help they've probably needed ALL ALONG). On the other hand, it makes me sad that every. single. time. I think we've finally "conquered" a problem and don't need extra help, accommodations, or therapy, we end up needing MORE. Every appointment I've made for my kids in the last four weeks has resulted in MORE appointments. Every visit has ended with evidence of deficits I had yet to notice. I'm thankful for the help and frustrated that we need it! And I just wanted to know if I'm not the only one who feels ambivalent about therapies... :001_unsure:
  4. I posted Monday about the possibility of returning our puppy to the breeder. The animal behaviorist (Ph.D., a professor at the university veterinary teaching hospital near our home) we hired concluded that our puppy's behavior is NOT normal puppy behavior and that she's extremely anxious (enough to warrant a prescription of generic Prozac). Anyway, as I've been corresponding with the behaviorist, I realized something else "odd" about our puppy--she does not like to be petted. She's stiff or she falls over, she lowers her head, she freezes when scratched on the chest, her tail NEVER wags. It's like she hates to be petted. Is this weird???
  5. I used Dianne Craft's Brain Integration Therapy (she now has a DVD called Understanding & Helping the Struggling Learner http://stores.diannecraft.org/Detail.bok?no=5) to help my dd (now 8.5) get over the visual-processing "hump." We also did vision therapy on a home computer program prescribed by our pediatric ophthalmologist. This year, I'm going to do a couple more things with dd. 1. I just purchased Reading Pathways because although we FINALLY got through Phonics Pathways, dd's reading is still not fluent and she skips words or guesses. 2. I want to purchase Dianne Craft's Teaching the Right Brain Child DVD http://stores.diannecraft.org/Detail.bok?no=53 and I plan to take her class on it because I think some of the techniques she uses to help kids retain information may be helpful for my dd. My dd is a very poor speller and has auditory processing problems as well. I'm not sure how much of her troubles are due to differences and how much of them are due to dysfunction. Here's an article from Dianne Craft about dyslexia: http://www.diannecraft.com/article-006.htm
  6. Do You Love Your Neighbor for large, mixed-age groups. Do you know this game? Everyone sits in a circle and one person is "It." "It" approaches someone in the circle and asks, "Do you love your neighbor?" The person who is asked has two choices: If he says, "Yes," then everyone in the circle has to get up and switch chairs and It also tries to get a seat. The person left standing (because there is one less chair than there are people) becomes "It." If he says, "No," then he has to name a characteristic such as "necklace" in this way, "No, but I love people who are wearing necklaces!" At that point, It and everyone wearing a necklace (which may or may not include the person who was asked) gets up to switch chairs. The person left standing becomes "It." Does this make sense? Is there such a thing as "Googling" for game directions if I don't make sense? :tongue_smilie:
  7. A former co-worker of mine was reading the list of assignments for a potluck luncheon we were having at work. Reading his aloud, he exclaimed, "Condoms!?!?" Uh, yeah...he was supposed to bring "condiments." When we corrected him, he asked, "What are condiments?" Guess he knew what the first one was but not the second.
  8. I do feel really alone at times. All the other moms leave their kids and go out...we couldn't even leave our dd with a relative (much less a teenage girl from church or even another adult) if she was awake until she was nearly 6yo--and then it was while I was gone for 45 minutes to the vet! That was a red-letter day! There are relatives I still don't trust to actually watch her...they expect her to behave like a normal 8yo and she doesn't! She has a really good vocabulary so people think she understands the things they say, cause and effect, etc. but she doesn't. And the stares...at the post office, when she would just make noises and I'd have to pick HER up while her toddler brother was well-behaved beside me...and then on our way out she'd HAVE TO stop and flick the doorstop up and down, up and down, up and down...and people wondered why I just didn't "make her behave." The relatives who didn't understand that we needed them to clear out a closet and let us use a baby gate to keep our dd contained at night...why couldn't she just sleep in a crib or a bed like any other child? The only thing that keeps me sane is my sister-in-law whose ds is severely autistic. Where she is now is where I was not so long ago, although her ds has more problems than my dd did. At least we can relate and commiserate and I can offer helpful hints for things that worked and when she tells me of the awful things he has done I can actually understand. Sometimes, though, I feel bad because it seems that I'm complaining of problems that are so minor compared to hers... How can I really complain that dd is two years behind in social language and THAT'S why she has trouble with kids her age, etc. when she's lucky her ds can even put several words together? I'm rambling...but yes, it can be a lonely place. Until my sil's ds was diagnosed two and a half years ago I felt like no one understood...and then suddenly, she was there. But for six years I think people thought I was exaggerating, overprotective, making it all up, etc.
  9. Except to offer :grouphug: and say that I understand! My dh doesn't want to know, doesn't believe, denies, won't listen, etc. He does occasionally "admit" that "something is not quite right" but it's rare. He wouldn't take the time off work to go visit with the psychologist for two hours about dd's history, etc. so I ended up sending the poor man a 99 page single-spaced detailed account of dd's birth history and development up until the time of evaluation (5 years). Dh did go with me to the appointment wherein we received the news that the psychologist's job is to "put labels on kids" and he didn't have one for our dd--but we had a HUGE fight on the way there and almost didn't make it to the appointment. I think the fight was probably because he didn't want to be doing this (having to hear things he didn't want to hear--that there IS something wrong with our dd). When the professionals said "autism spectrum disorder" he wouldn't hear of it. But for my sanity he "let" me enroll dd in special needs preschool and he "let" me put her in regular kindergarten with special education support. He also "let" me take courses in brain integration therapy (so that I could renew my teaching certificate) and work with dd as one of my subjects. He recently mentioned that he thought something was still "off" with dd and he is highly annoyed with her feeding issues, so I was able to get referrals from our pediatrician for speech/language and occupational therapy. Dd is now getting help (and she probably should have had it a long time ago but as you mentioned, it's hard when you feel like getting help for your child will cause contention with your spouse). We also did vision therapy which dh was completely uninvolved with and never asked about. I am constantly having to fight (advocate) for my dd, make modifications, ask for special help and support, etc. and dh is mostly unaware because he chooses to be. He doesn't ask about what she's doing in therapy, he has never asked for the reports (which totally support, with objective data, everything I've observed for years), etc. I think he's in a near-constant state of denial. Whether he is grieving or not I don't know. Our kids' problems are something we probably should be talking about but I deal with mostly alone. I'm just sharing this to show you that I'm going through something similar. It's a difficult place to be...
  10. I have an 8.5yo dd who still wets. And she normally doesn't sleep in a bed (she has one...well, actually she has TWO) but on the floor. So although one "mattress" (it's actually more like a gymnastics crash mat but it's the size of a twin mattress and we have a fitted sheet on it) is waterproof and the other is covered in waterproofing materials it doesn't matter. I can't afford constant carpet cleaning and dd doesn't sleep in the same place every night. So we do pullups. I order them from Amazon and am on their delivery plan so I get an extra 15% discount. I can order more or skip a shipment or cancel the plan at any time with NO penalties (that's the ONLY way I would sign up!). My ds hasn't wet the bed in ages but he is wearing pullups at night because his sister does. I just got the really cheap cheap ones at Safeway for him because he panicked the last time he ran out. But since he can't even remember the last time he was wet (neither can I) and now that he IS sleeping in a bed every night (except sleepovers with his siblings) I am comfortable not having him in pullups. So we just had the discussion a few hours ago that as soon as the current package of "nighttime underwear" runs out, no more for him. It's hard when the younger isn't wetting anymore and the older child still is. To add insult to injury, he also reads and spells better than she does (and he corrects her spelling, to her great annoyance!). **sigh** I feel for you...four would be really tough. I hope you find an answer that works for you. Our pediatrician is having us take the wait-and-see approach. If dd starts feeling bad about the wetting we can talk to her about medicine, alarms, etc. but until then we're all "happy" with pullups. I do like the idea of trying something with your oldest one or two first. Seems reasonable...
  11. The seller is http://stores.ebay.com/The-Rabbit-Hole She doesn't have any lap desks listed right now, so I don't know if she's still making them. I bought mine about 20 months ago and gave them to my kids for Christmas. If you "do" eBay, you might try emailing her and ask if she will be making them anymore! My kids love theirs...we use them for school as well as fun. ETA: Oh, wait! It looks like maybe she has her own website now... http://www.rabbitholeonline.com/lapdesks.html They weren't cheap but I had the same problem as you--couldn't find what I wanted anywhere--not Michael's, not Hobby Lobby, not JoAnn Fabric, not Walmart, not Target...well, you get the idea. :)
  12. I'm thinking of getting Rubik's Cubes for my dc for Christmas this year. I was unpacking a box of "stuff" from my childhood and some of my old "brain puzzles" were in there. Do you have a favorite or recommended brain teaser type toy and a favorite or recommended place to shop for such things?
  13. My dd struggles with learning. She's in speech therapy for language issues and occupational therapy for sensory issues. My ds does not struggle with learning; he struggles with low muscle tone and motor problems so he is in speech therapy for articulation issues and occupational therapy for muscle tone and tremor issues. My dd is in 3rd grade this year but her academic skills lag somewhat. What takes weeks of repetition to settle into her brain settles into his in one or two repetitions. Therefore, he has absorbed a LOT of the school that has been going on around him all of his life (my oldest started kindergarten the year he was born). Here's how things have ended up here... I've spent several years remediating dd's learning issues. We've done brain integration therapy and vision therapy. She also attended public school kindergarten and public school preschool for special education. So for a long time her ONLY homeschool subjects were reading, handwriting, and math--the absolute basics. My ds has not needed as much remediation. His therapies were from age 1 to 3 and we just re-started them over the summer due to persistent delays and differences. However, his problems do not adversely affect his academic performance; he has learned everything I've presented to him thus far very easily and quickly. He reads and spells better than his sister who is 27 months older. This year, dd will re-start 2nd grade spelling (she managed 1st grade but 2nd grade was too hard so we dropped it last year). Ds will start 1st grade spelling (and probably breeze through). Dd is in the 3rd grade handwriting book learning cursive. Ds is doing 1st grade handwriting. Dd is doing 3rd grade math and ds is doing 1st, but the gap is closing quickly. For history, dd just completely skipped it altogether during first grade. At that point she couldn't follow a story line or repeat anything she was told so it would have been a waste of time and a huge frustration. So, last year when she was in second and ds was in k, we did Ancient History. It was a "year late" for her and a "year early" for him but we worked it out. I read to both of them simultaneously and then we alternated who got to give the first narration. They would BOTH do a separate narration and it was interesting; sometimes the narrations were identical right down to the last word and sometimes they were very different with each child focusing on a different aspect of the passage read. We never got to science last year but it would have been done the same as history if we had gotten around to it! We just do some things together and some things separately (and I believe we'll be doing more and more together as a "class" of sorts as they grow older because his trajectory is steeper than hers and I believe he will "catch up" to her level soon). Another thing I have thought about or done is to have each child doing the same level but with a different edition of the book. Also, sometimes I think a specific curriculum will work for one and not for another so although I love Saxon Math I am open to the idea that at some point it may not work for dd anymore. This year my dd will be doing Reading Pathways as a follow-up to Phonics Pathways because she could really use some more work on reading fluency. She will be the only one of my dc who will use this book, though, because the other two read very fluently and above grade level.
  14. I noticed in your signature line that your dd is accelerated Pre-K. Have you visited the Accelerated Learner Board here? Very helpful and experienced people over there :001_smile:... My oldest started learning to read at age 4 and read the first Harry Potter book during kindergarten (at 5 1/2). We use(d) a different handwriting program (Zaner-Bloser) and I completely skipped the kindergarten book with her. Instead, I did both editions of the first grade level during kindergarten. She finished kindergarten math during that year so we moved right into first grade. We only did three subjects during kindergarten: reading (finishing up instruction followed by reading through the various reading lists our library publishes, the entire Henry and Mudge series, the entire Mr. Putter and Tabby series, etc. I was mostly interested in improving fluency), handwriting (dd has poor motor skills generally so I felt that extra practice via two different editions of the same level of handwriting instruction from the same publisher would be a good idea), and math (at her speed). At the time, I had a very active/difficult preschooler (she's near the autism spectrum but not actually "on" it, we found out later) and a new baby (and then a new puppy on top of it all). So, I didn't try to do more than the three subjects. If I had been in a different situation and FLL had been available, I probably would have introduced it during kindergarten for her. We ended up using English for the Thoughtful Child and it would not have been appropriate for her during K. I might also have started Spelling Workout (the spelling program I chose for our homeschool)--first grade level--during kindergarten if I hadn't been stretched so much already. I would have waited until her handwriting was well-established, though, because we did need some time to correct some of her letter-forming skills (she started writing on her own when she learned to read and loved writing us notes and authoring short stories...but this meant she developed her own method to forming letters that needed to be changed). HTH ETA: And I agree with Abbey. :) Teach her the right way to write during instructional times and then be encouraging when she wants to write on her own time.
  15. Whining: 3 Steps to Stop It Before the Tears and Tantrums Start http://www.amazon.com/Whining-Steps-Before-Tears-Tantrums/dp/0684857421/ref=pd_bbs_sr_2?ie=UTF8&s=books&qid=1220970427&sr=8-2 (and I also liked this one: Backtalk: 4 Steps to Ending Rude Behavior in Your Kids http://www.amazon.com/Backtalk-Steps-Ending-Rude-Behavior/dp/068484124X/ref=sr_1_1?ie=UTF8&s=books&qid=1220970548&sr=1-1) When my kids pester and whine, my "line" is, "If you ask me again, the answer is no." (Even if I *would have* said yes if asked politely, the answer is no). Very similar to what another person posted. I also liked the suggestion about modeling the "right way" to ask you why or to plead her case. If she still did it "wrong" (i.e. whiny voice) I think I would say, "Like this" and repeat the modeling and then say, "Try again." I would probably repeat until it was at least close. I have one dc this would work with but would probably frustrate the heck out of another dc. I'll be watching for other ideas on this thread!
  16. Thanks for posting the link about 22 deletion. I am a former public school special education teacher and one of my students had severe disabilities that were never diagnosed but I always wondered if DiGeorge Syndrome might fit. Reading that fact sheet makes me think so even more. She was one of my favorite students (and the reason I chose the first class I ever taught--there were three openings in the school that year and I was offered first pick of the three classes). :001_smile: I hope your son does well in surgery Wednesday--sending hopes and prayers your way for that. I hope you've visited the Special Needs Board here. I've spent lots of time asking questions and sharing experiences there myself. It's a friendly and helpful place for navigating homeschooling kids with special needs.
  17. I say this because if the temperatures are lower and the sun is out, we can get away with not turning on the heat for longer. However, if the temperatures drop AND the sun isn't shining, it is much cooler in the house. I tend to go more by how I (we) feel and how many layers of clothes we're having to put on. I actually turned on the heat a few weeks ago because we had the carpets cleaned during the time it did nothing but rain for three days and we were freezing to death. The air conditioning has been on since then. Dh has told me a couple of times that we need the extra blanket on the bed. I'm sure we'll be turning on the heat soon!
  18. Thank you for your comments and support! The dog behaviorist came and observed both dogs together and then my puppy alone. The verdict is that we have a VERY anxious puppy. We've been doing a lot of the right things, even "all the right things." She said that our puppy's behavior is NOT normal. My biggest concern was that our puppy is not responding appropriately to input from her own species. This is a real concern. It's one thing to not be responding super-well to a human (who can really mess things up and be confusing!) and quite another to not "get it" with a dog who is telling you to back off. For those who asked, our puppy is a Standard Schnauzer who turns 10 months old tomorrow...we chose a puppy so that we could train her the way we wanted to train her as opposed to retraining an adult...we've done both before. Anyway, the recommendation is to put her on the generic for Prozac and then to re-train, especially with tethering, and use food rewards to reinforce "calm" behavior. Our puppy is much better on lead (less frantic) than off. She NEVER lies down to rest unless crated--she's constantly on alert and the behaviorist characterized her as being "switched on" all the time. The prognosis for improvement (recovery) is very good. It will be months of hard work (and at least four weeks before the medication starts to have an effect). Our puppy is smart and has learned lots of commands, routines, etc. and the fact that she is bonded to me are all positives. The fact that she is not aggressive about her food bowl and that she doesn't growl at us when she escalates her bad behavior are also positives. We will get a written program and protocol from the behaviorist and she will fax the report to our veterinarian as well. Additionally, she is available for phone consultation for the next three months (included in the hefty fee I paid today). So I am feeling much more hopeful. I haven't been in contact much with the breeder for several months. I've felt like such a failure...all the other puppies' reports on the website show the awards they've won (some are show dogs) and include photos of relaxed puppies hanging out with other dogs and people as well as reports of completed housebreaking (while our puppy still has fairly frequent "accidents"). I look at those pictures and read the reports and know our puppy doesn't measure up. If we do the medication and the retraining and we still don't have a puppy who is calm some of the time (she NEVER sleeps or lies down unless crated) we may revisit the idea of returning her to the breeder. In our contract it states that we are not allowed to try to rehome the dog ourselves or put it in rescue; it must go back to the breeder. Up to a certain point we would get part of our money back but we really don't care about that--it's not about getting money back! It's more that if she isn't happy and we aren't happy with her then she will need to go elsewhere.
  19. We are and have been really struggling with our now 10-month-old puppy. Over the weekend we dog-sat a 6-year-old dog and it gave us perspective on just how bad our puppy is! We adopted her at 9 weeks from a reputable breeder, vaccinated her, took her to the dog park, enrolled her in puppy class, had her spayed, boarded her for two weeks, etc. And she is still "bad." Yes, she knows several commands. But her behavior is just out of bounds. While we've had the dog here, she just will NOT leave him alone. She pesters him to no end. I think we've believed it was "just us"--that she was pushy with people and needed more training/structure/direction in her life. We do provide those things (I believe). The dog we've been watching is so patient with her--beyond MY level of tolerance. She licks his mouth constantly, jumps on him, mounts him, chases him. Yesterday we watched the two of them together for an hour and it NEVER got better. Even when she was completely fatigued (he was panting but she was practically hyperventilating) and they were both lying down, if he moved even one muscle she was back up again and in his face. He was giving her ALL the right signals--speaking to her in dog-language. He put his ears back, he showed his teeth, he growled, he barked, and finally he did put his teeth on her (with about as much force as if you were guiding your grandmother across the street). But his MESSAGE was clear--"Back of, young 'un." She never got the message. I have an animal behaviorist from the university (not cheap, but an act of desperation) coming in less than an hour. I'm thinking we may have to return this puppy to the breeder. :confused: Any BTDT experience/advice/help!?
  20. We were in the middle of a move. As we got ready to leave our motel, we tried to turn on some cartoons for the kids to keep them distracted while we packed. There were very grainy pictures. I recognized one of them as the Pentagon--I used to drive past it every day on my way to work. There was a big hole in it and it seemed to be burning. I was confused when I changed channels and saw smoke billowing out of a skyscraper. We couldn't find anything for the kids to watch. As we went through the lobby, we saw more strange scenes on the televisions and overheard a man talking on the pay phone about how he didn't think he'd be able to fly out that day. Something about planes being grounded. Then we got to the border. Armed BATF personnel were everywhere. WE realized that whatever this was, it was HUGE. We were surprised they just asked for our passports, asked us a few questions, and let us go. They were escorting people from other vehicles inside the buildings at the border. We had NO idea what was going on. Dh and I were in two different cars. We had walkie-talkie type radios with us. I was able to get some reception on the car stereo and radioed it to him. Something about planes crashing into buildings, the President leaving Florida and flying someplace secret, etc. It was confusing and scary. We were in the middle of closing on the sale of our home. The buyers were in one state and the house was in another. The documents had to go by FedEx and the planes weren't flying. The person at the title company handling our paperwork had a brother in one of the Twin Towers and had to leave our documents with someone else.
  21. (especially the first two lines...every. single. time. we have to talk about either place in history!! I break into song and the kids stare at me like I'm a fruitcake) Istanbul was Constantinople Now it's Istanbul, not Constantinople Been a long time gone, Constantinople Now it's Turkish delight on a moonlit night Every gal in Constantinople Lives in Istanbul, not Constantinople So if you've a date in Constantinople She'll be waiting in Istanbul Even old New York was once New Amsterdam Why they changed it I can't say People just liked it better that way So take me back to Constantinople No, you can't go back to Constantinople Been a long time gone, Constantinople Why did Constantinople get the works? That's nobody's business but the Turks Istanbul (Istanbul) Istanbul (Istanbul) Even old New York was once New Amsterdam Why they changed it I can't say People just liked it better that way Istanbul was Constantinople Now it's Istanbul, not Constantinople Been a long time gone, Constantinople Why did Constantinople get the works? That's nobody's business but the Turks So take me back to Constantinople No, you can't go back to Constantinople Been a long time gone, Constantinople Why did Constantinople get the works? That's nobody's business but the Turks Istanbul
  22. We visit our library AT LEAST once a week and borrow materials through the regular system, the regional system, and the inter-library loan system. Plus, our family has five library cards. All this means that at any one time we can have holds of fifteen different varieties! A couple of years ago they reserved an entire shelf for our family's holds--in the back room (so they could have the shelves directly behind the front desk for all the other patrons' holds). We weren't the only family like that, though. They know a couple of others that do the same thing (I'm betting they're fellow homeschoolers!). Our city is 130,000-150,000 so it's not huge but it is big. Our librarians don't joke with us but we joke with them. In fact, today I said (again, but to a different librarian this time), "I'm surprised you don't run away when you see us coming!" :tongue_smilie: One librarian I said that to once said it made no difference whether they helped me with my five accounts or five separate people--it's the same amount of work and time involved. I thought that was the right attitude. :001_smile:
  23. but not by choice. :thumbdown: First pregnancy was normal, 41 weeks, difficult delivery (large headed baby). Second pregnancy ended in miscarriage at the end of the first trimester. :angelsad2: Third pregnancy ended in miscarriage at 6 weeks. :angelsad2: Fourth pregnancy normal but borderline diabetic, 40 weeks 2 days, fast and easy delivery (except baby was turned the wrong way requiring gymnastics prior to pushing). Fifth pregnancy was normal but measured large for dates. Ended at 41 weeks 3 days with an induction due to absence of amniotic fluid. Baby on oxygen and in special care nursery for 5 1/2 hours. Mom had to have surgery the next day that turned life-threatening. Doctors recommend no more pregnancies...and we had hoped and planned for at least one more baby. :sad:
  24. I love them. They are 48 pages and for ages 9-12. The author is Thomas Bergman. The publisher is Gareth Stevens. Here are the titles I know of from the Don't Turn Away series: Determined to Win: Children Living With Allergies and Asthma Seeing in Special Ways: Children Living With Blindness Going Places: Children Living With Cerebral Palsy Finding a Common Language: Children Living With Deafness Meeting the Challenge: Children Living With Diabetes Moments That Disappear: Children Living With Epilepsy One Day at a Time: Children Living With Leukemia We Laugh, We Love, We Cry: Children Living With Mental Retardation Precious Time: Children Living With Muscular Dystrophy On Our Own Terms: Children Living With Physical Handicaps I think they are all out of print (published 1989-1994 originally) but Amazon has some pretty inexpensive used copies.
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