sassenach Posted January 25, 2018 Share Posted January 25, 2018 Just got a call from my bf. She took her almost 1 yo into the opthomologist for a suspected clogged tear duct. They dismayed her eyes and the dr said that her occular nerves are being pushed out by pressure in the brain. This doctor gave her close to zero guidance on how to proceed and basically just said get in touch with your pediatrician. She’s freaking out. Has anyone here had this experience? Could you share a bit on what happens next? They just switched insurance and she hasn’t even seen her new ped. Quote Link to comment Share on other sites More sharing options...
Liz CA Posted January 25, 2018 Share Posted January 25, 2018 Pediatric Neurologist would be my next call. It's hard to know what the symptoms are with a one year old. Does it seem her vision is distorted? 3 Quote Link to comment Share on other sites More sharing options...
sassenach Posted January 25, 2018 Author Share Posted January 25, 2018 She just got evaluated for pt. She has a gross motor delay. It’s definitely an aha moment. She has other symptoms, too. I am with the same insurance company/provider (kaiser) so I gave her my best tips for getting stuff done fast. She’s making phone calls right now. 2 Quote Link to comment Share on other sites More sharing options...
Catwoman Posted January 25, 2018 Share Posted January 25, 2018 No advice here, but I’ll pray for the baby. :grouphug: Your bf must be so scared and worried! I know pituitary tumors are rare in children, but it could be a possibility (and those are benign, so don’t panic at the word “tumor.â€) Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted January 25, 2018 Share Posted January 25, 2018 (edited) Is she Kaiser HMO Or PPO ? The procedure will be different from one to another. I agree with a pediatric neurologist. If she is PPO, is there a Children’s Hospital nearby where she can go? My Dd has a benign tumor in her eye. She needed a brain MRI before proceeding with other treatment and imaging. Sent from my iPhone using Tapatalk Edited January 25, 2018 by Jean in Newcastle Quote Link to comment Share on other sites More sharing options...
EMS83 Posted January 25, 2018 Share Posted January 25, 2018 Oh wow! Prayers! :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
umsami Posted January 25, 2018 Share Posted January 25, 2018 Second the pediatric neurologist. No idea if this is at all the same, but my friend's DD had something with fluid building up in her brain which led to a midline shift. They had to do surgery on her, and she is doing OK now (3 years later). It's something they have to keep watching though. Quote Link to comment Share on other sites More sharing options...
sassenach Posted January 25, 2018 Author Share Posted January 25, 2018 Is she Kaiser HMO Or PPO ? The procedure will be different from one to another. I agree with a pediatric neurologist. If she is PPO, is there a Children’s Hospital nearby where she can go? My Dd has a benign tumor in her eye. She needed a brain MRI before proceeding with other treatment and imaging. Sent from my iPhone using Tapatalk I'm pretty sure HMO. She actually just got her older son established with a ped neuro, so she knows exactly who she wants to bring the baby to. It's kind of a long story, but basically they saw a ped, disliked him greatly, but he did put in a few referrals for them. When she saw the neuro, the neuro was ticked that the ped didn't put in some other obvious referrals, so right there in the office, the neuro helped her to choose a new provider. That leads to this moment, with a crazy bombshell and no ped established. Quote Link to comment Share on other sites More sharing options...
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