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Increasingly worried about DD


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:grouphug: i am so glad you took her in! it clearly wasn't going to get better on its own, and at least you are moving forward.

 

in my experience, doctors haven't given me treatment choices when there really isn't a choice, kwim?

 

:grouphug:

ann

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Thank you so much for keeping us updated. I'm so sorry about the whole mess. :grouphug::grouphug:

 

The next thing I'm going to say is going to sound strange, but .... one of my cats had a bowel impaction and the vet warned that if it kept happening it would stretch out the bowel and cause it to be chronic. We were on lots of medicine for a while to stop that. It may be worth asking the GI if that is a possibility so you can head that off at the pass. My son used to have a lot of problems with constipation, and the one thing that seemed to help a great deal was raw carrots.

 

Oh and the liquid medicine to soften the poop, is NASTY. If they recommend something like that, try to get the chewables or try to get her to swallow a pill whole.

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So my last two hours:

Abdominal x ray. DD is hungry and in some pain but she can't eat or drink.

 

Some nurse walks in and announces chipperly. "Time for your IV!!" (DD is terrified of IV's because she is a tough stick and has had so many bad experiences). Nice. And at a children's hospital.

 

DD falls apart. I get her calmed down and we make a plan involving a squeezy ball and me holding her. Nurse comes in starts to look for veins. I tell her she's a hard stick and she brushes me off. I tell her they usually need the IV team and she tells me the IV team is off today because of a death in the family.

 

Fine. Grr. They try twice and DD is being so brave but the tears are just silently falling. Can't get it. The nurse says, "Actually I think the IV team is here somewhere I am going to call them."

 

:mad::mad::cursing::cursing::banghead:

 

A nurse comes in a little while later and digs around twice more in her veins. Gets some blood but not as much as they need. Poor DD just tries so hard to keep it together. Don't get an IV still. Finally nurse gives up and says they'll just do finger pricks to get the rest of the blood. DD melts down totally as soon as they say that because she has been pricked and pricked.

 

I talk her down and she calms some. But she is hungry, tired, hurting and so am I (though hurting in a different way). I still know nothing and have had nothing to eat all day. Just wanted to share.

 

THIS MAKES ME SOOOOOOO MAD!!!! I just went through the exact same thing with my dd. I am still going through this thread to read your updates but this is what i am pmanning to do in case dd needs to go to the hospital in the future. I am going to keep those hotpacks you crush to activate in the car, a squeeze ball/toy, and get the arm banded (what is it called) as soon as you get back to a room. If child is able to take fluids (myy dd was admitted because she was so sick and severely dehydrated) PUSH THOSE FLUIDS DOWN. When dd has to have regular blood draws, as not in hospital but for testing labs, she drinks a TON and it is far, far easier to draw her blood that way.

:grouphug::grouphug::grouphug: i know how difficult it is, mom. My heart breaks for you!

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We are home. Things got rougher after and I was not able to update. But here's the latest.

 

DD has a bowel impaction that has caused minor tears in her colon. They gave us four options for treatment ranging from immediate surgery to medication seven times a day for the next two days to see if they can move it. All the options have risks - they laid it out for me...surgery risks are understood and the risk of treating with medication is that it could get worse and cause worse tears in her bowel or herniation (:confused: no idea what that is and the doc was in a hurry). She left it up to me. I chose medication and have been tossing and turning all night wondering if that was the best choice. They gave her something for pain so she feels better (aside from the eight!!! bruises where they tried to get an IV started).

 

 

We start the meds this morning. We see the GI doc tomorrow for another xray and ultrasound to see how the impaction is moving. And she sees her again next week to discuss whether there are any underlying issues or not. It seems maybe there aren't which is such a blessing. I was afraid we would be dealing with a whole 'nother big issue which we already have with her lungs.

 

So mostly I feel blessed. I was grateful for your support and suggestions. I did speak to the charge nurse who was sympathetic and wrote up the one nurse who lied about the IV team being gone. We are doing much better and praying for poop.

 

Now I have to go take a drainage tube out of a goat. :lol::lol:

 

I am so sorry for everything. I also asked for the IV specialist and was lied to.

 

Pkease keep us updated on your dd. One thing I learned in the past few days is how desperately difficult it is for a mom to watch her baby of ANY age suffer. It was almost too much......

:grouphug::grouphug::grouphug:

 

ETA: i had to laugh at your situation... Dealing with dd and the goat. I have a farm, too, and it seems like EVERY SINGLE TIME there is an emergency in the family, I am also treating a sick animal! This time I had to put my beloved rat terrier down on Thursday, took dd to ER Friday, was admitted that day, dh had to care for my 39 animals as I was emotionally frail watching dd suffer, dd comes home three days later, THEN I get to pick up my dog. We were all so tired that instead of dh breaking roots to bury my dog by the others (forest line) I had her cremated yesterday instead thinking it would be easier. I am glad I did it, but timing was wrong. I sat in traffic for FOUR hours on the way home! :svengo:

Edited by Denisemomof4
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Thank you so much for keeping us updated. I'm so sorry about the whole mess. :grouphug::grouphug:

 

The next thing I'm going to say is going to sound strange, but .... one of my cats had a bowel impaction and the vet warned that if it kept happening it would stretch out the bowel and cause it to be chronic. We were on lots of medicine for a while to stop that. It may be worth asking the GI if that is a possibility so you can head that off at the pass. My son used to have a lot of problems with constipation, and the one thing that seemed to help a great deal was raw carrots.

 

Oh and the liquid medicine to soften the poop, is NASTY. If they recommend something like that, try to get the chewables or try to get her to swallow a pill whole.

 

This is how our ped Gi told us Miralax works best: Put it in a very small amount of warm water. Stir well. Gulp down. Chase with a full glass of drink of choice.

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Thanks for asking. We went to the doctor yesterday and the impaction hasn't moved much at all. It is up by her small intestine where they are thinking an enema isn't going to help and where they think sending a tube up is risky. The best option might be surgery if it hasn't moved by Monday.

 

It's still so weird to me because she's pooping - evidently it's going around the impaction. But the impaction is tearing her colon. Just a little so far so they added antibiotics to the mix.

 

The good news in all this is that they don't think there is a chronic component here. I was really afraid that we would be dealing with a major issue after spending the last 4 years dealing with chronic lung problems. However they think it's related to steroid withdrawal. She was on steroids every two weeks for two weeks for the last four years. Since her surgery in May she hasn't been on steroids at all which is a major victory. But they think maybe her adrenal gland is having trouble kicking back in? I don't know why that would cause an impaction but they seem to think it may be related.

 

So we just have to get through this. And we are still praying for poop before Monday. Thanks for checking on us.

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