mom31257 Posted September 30, 2011 Share Posted September 30, 2011 Please pray for my nephew, Seth. He had a spinal tap on Wednesday and is in the hospital right now because pressure is building up. They did some things in the ER, but his pain is getting worse. They are admitting him to do some other procedures (not sure what yet). He is 17 and has severe developmental delays due to severe epilepsy. He also has mitochondrial disease. The tap was to check some levels in relation to his mitochondrial disease. Please pray, too, for my sister and b-i-l. This has been a long and hard journey for them. The epilepsy began from his 4 month shots. They were able to find out that his shot's lot number had 2 deaths and 10 permanent disabilities but was still on the market. The doctors believe the trauma triggered the onset of the mitochondrial, too. Thank you so much! Quote Link to comment Share on other sites More sharing options...
Catwoman Posted September 30, 2011 Share Posted September 30, 2011 :grouphug::grouphug::grouphug: Praying for Seth, your sister, and your brother-in-law. Quote Link to comment Share on other sites More sharing options...
Jen in PA Posted September 30, 2011 Share Posted September 30, 2011 :grouphug: Quote Link to comment Share on other sites More sharing options...
blessed2fosteradopt Posted September 30, 2011 Share Posted September 30, 2011 :grouphug: to you and your family and especially that precious boy. Quote Link to comment Share on other sites More sharing options...
RoughCollie Posted October 1, 2011 Share Posted October 1, 2011 :grouphug: and prayers. Quote Link to comment Share on other sites More sharing options...
Sugarfoot Posted October 1, 2011 Share Posted October 1, 2011 Praying here. :grouphug: Quote Link to comment Share on other sites More sharing options...
creekland Posted October 1, 2011 Share Posted October 1, 2011 :grouphug: Prayers here. :grouphug: Quote Link to comment Share on other sites More sharing options...
mom31257 Posted October 1, 2011 Author Share Posted October 1, 2011 Thank you for your prayers. He is feeling a little better this morning, but if he has to get up, the pain increases. My sister said that goes along with the leak from the spinal tap puncture. The doctors are evaluation what to do next. Quote Link to comment Share on other sites More sharing options...
mom31257 Posted October 2, 2011 Author Share Posted October 2, 2011 Another update, They sent him home yesterday, but he's still having headaches when he gets up much. She is going to call the Doctor in ATL that did the spinal tap if he's not better by in the morning. Quote Link to comment Share on other sites More sharing options...
creekland Posted October 3, 2011 Share Posted October 3, 2011 :grouphug: Still praying. I hope he's better or they can find out what's wrong and fix it. :grouphug: Quote Link to comment Share on other sites More sharing options...
blessed2fosteradopt Posted October 3, 2011 Share Posted October 3, 2011 I will keep praying for Seth. :grouphug: Quote Link to comment Share on other sites More sharing options...
momdm Posted October 3, 2011 Share Posted October 3, 2011 Praying for quick recovery:grouphug: Quote Link to comment Share on other sites More sharing options...
kwickimom Posted October 3, 2011 Share Posted October 3, 2011 :grouphug: Quote Link to comment Share on other sites More sharing options...
mom31257 Posted October 3, 2011 Author Share Posted October 3, 2011 Thank you for praying, please keep on if you don't mind. He is still not well. Evidently the puncture from the spinal tap is leaking menengial fluid. They just found out that the procedure to fix this (blood patch) is not possible for Seth. The patient has to lie perfectly still and be awake to tell the doctor things. He can't lie still or express a lot of things verbally. Please pray that the puncture will seal itself. His pain medicine is not helping, either, so he's very uncomfortable. Quote Link to comment Share on other sites More sharing options...
creekland Posted October 4, 2011 Share Posted October 4, 2011 Thank you for praying, please keep on if you don't mind. He is still not well. Evidently the puncture from the spinal tap is leaking menengial fluid. They just found out that the procedure to fix this (blood patch) is not possible for Seth. The patient has to lie perfectly still and be awake to tell the doctor things. He can't lie still or express a lot of things verbally. Please pray that the puncture will seal itself. His pain medicine is not helping, either, so he's very uncomfortable. Poor guy! What are the chances that the puncture will heal itself? He's definitely in my prayers! :grouphug: Quote Link to comment Share on other sites More sharing options...
mom31257 Posted October 4, 2011 Author Share Posted October 4, 2011 Poor guy! What are the chances that the puncture will heal itself? He's definitely in my prayers! :grouphug: Thank you so much for praying! I spoke with my sister late last night and she said he was feeling some better. His pediatrician seems to know more about this than anyone else they've dealt with. She said he should have been keep flat, even without a pillow, from the time the problem started. She says that if my sister can keep him flat for 2-3 days it has a good chance of sealing on its own. Seth has not wanted to eat much since the pain began, but he wanted to eat a little last night at supper. My sister had told Seth that his pediatrician said to lay without the pillow, and last night he said to thank her for taking the pillow. He must realize that is making the difference. Quote Link to comment Share on other sites More sharing options...
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