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4KookieKids

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Everything posted by 4KookieKids

  1. Dd7: I often think that I'm not real. The world is just a giant head and I'm just a thought. "Wake up!" I shout.
  2. And thanks. 🙂 It's still a fair bit of work for him to narrate something like that and actually use google to edit/correct the mistakes that come with voice typing and a slight articulation issue still, but I feel like taking away the physical barrier of writing has helped him exponentially to be able to express himself, and it's also really helped his confidence. A few months ago, he dictated (with google voice) a simple slide presentation in German even. It had far more mistakes, but he was SO, SO proud of himself. I think this thing was taped up on our window for a months straight! lol. (Th
  3. He had just read most of the Horrible Histories book about Rome. 🙂 I was most pleased with his perseverance and his transition, "But even though..." He's never done something like that in his writing before!
  4. Yes, we've started separating out the actual physical act of writing part. So just this week, the same kid "wrote" this using google docs and voice-typing, and even EDITED it himself. It took him right around an hour because he kept stopping and re-dictating things about 10 times before finally giving up and just typing that one problem word himself (he can't yet say /r/ well, so voice typing does have a few challenges for him still). None the less, I feel like this is pretty decent for one hour worth of "writing" : (( ))'s fun facts about The Ancient Romans The Romans are
  5. My ds9 got an arduino starter set recently and has been loving it. But it’s very parent intensive for me, because the guide is very much not written for children and often leaves him somewhat lost.
  6. I’m still going to keep my appt at the diagnostic clinic but they haven’t even called me to *schedule* an appointment yet, so my hopes are not high that that will be very soon...
  7. Well, I think I'm glad to be keeping both appointments, to get input from different people... The private person who did our intake today was super nice and took lots of notes, but it was interesting to note that she flat out said that the ADOS is where it's at, so she'll do that, but she does not suspect it will turn anything up, and chances are that dd3 is just a moody toddler and dd7 is just anxious. But their ados scheduling is 6 weeks out, and then she said it's another 5 weeks out for results, so we have a while to wait anyway!
  8. To be fair, my kids ARE often in pajamas all day. They’re comfy!! On the flip side, my oldest has usually begun his academics by 6-615am...
  9. My most annoying one to date is definitely this: ”You know, your kid probably wouldn’t be autistic if you had just put him in school and daycare, because then he would’ve learned those social skills early.”
  10. This. I specifically don’t want my kids learning social skills from other kids WHO DON’T KNOW ANY BETTER ANYWAY!! Lol.
  11. I think this may be true of an actual teacher. But all we really have to go off of is a Sunday school teacher, which rotates week-to-week, so nobody would really have opportunity to know my girls well, and a dance teacher, where (a) kids are not given much time to interact because it's *extremely* structured (the main reasons we chose this school, because my dd7 completely crumbled in less structured lessons), (b) they only see her once (3yo) or twice (7yo) a week, and (c) there's some financial incentive to say, "Oh no! Your child is a darling! We don't have any problems at all!" Even when I'
  12. I know that a normal psych can do ADHD, but do they also do IQ, achievement, and all these other screenings you're mentioning? I thought that we got sent to a neuropsych for this last time. But I really despise was not fond of either of the two pediatric neuropsychs we have in town when we saw them previously. Thanks for this. It's always helpful for me to have a list of things to ask them, and I tend to have brain lapses right when I actually need my brain cells. ETA: The clinic says the following, but it seems pretty vague, so I'll definitely have to ask them more: "child may undergo b
  13. Yes, I believe insurance will cover it... but I've never had issues with insurance covering stuff, so I don't really know. I don't know how good our children's hospital is, but I don't think it's mainly a teaching hospital. I think autism is also the specialty of the private person, but they're younger and don't have as much experience. I believe the clinic is a diagnostic team, but it doesn't list SLP and OT and all of that on the website, mainly psych, behaviorist, and geneticist. Maybe there are others there that just aren't listed? It is a wham-bam-done sort of deal at the clinic: 3 hours
  14. I have no idea. We already had an appointment with one person for an intake next Tuesday, but it is not the same person as our doctor referred us to. We got referred to a special autism diagnosis clinic at a children’s hospital a bit over an hour away because our Ped really wanted us to see someone that does autism all day every day in order to have the best chance of getting a good eval. they’re supposed to Be calling us back to set up an appt within a few days, so I’m not sure if I should cancel with the other person I scheduled with (who was recommended to me by an autistic mother-daughter
  15. Well, our ped referred us for evals for both my 3 and 7 yo, based on what I shared. We'll see what they say, I guess! I have to say that I watched this video on Autism in girls, and if the place we're referred to knows any of this stuff, I'm about 99% positive my dd7 will get the dx. I felt like every single thing he said about girls up through primary school described her to a T. It was uncanny and almost a little bit creepy because I found myself nodding along to every single point except the tomboy part (and then he mentioned that that often comes later and younger girls are all pink a
  16. Ok. Will do. I also have at least a bit of leverage, I think, given that we were concerned about this two years ago: https://forums.welltrainedmind.com/topic/636343-interpreting-dayc-2-results/ She was much younger then, of course, but her social/emotional and communication skills were around the 16th %ile then, and while her communication skills have really improved since she had tubes put in and can actually hear now, I think the social/emotional issues just never actually got better, as we were hoping, and may possibly have gotten worse in the last six months. ETA: She's clearly not "d
  17. Yes, I think I was going to separate various observations/concerns by DSM criteria, and I was also going to print out the checklists I've seen for "autism in girls" that the "Ask me, I'm autistic" fb page has, and then just highlight things that describe my daughters.
  18. She's not done enrichment classes. While gifted, she doesn't fit in with a lot of gifted stuff at this point, since she's dyslexic and can't read proficiently yet. I feel that the reading struggles really turned her off to most things that are academic (her math started lagging, etc.), and she really turned to music as something she wanted to focus on. She's had the ELLA for language testing, but I don't think she did anything narrative language. I'd have to go back and look at what her scores were. She does have vision issues (even q-bitz jr is super challenging for her).
  19. On the contrary, I already did an intake with a local psych office (someone new who's supposed to know a lot of stuff about autism and specializes in the ados) and I have an appointment with my ped on Wednesday morning to discuss midline, autism, whatever else I think of. Part of the reason I was asking what you took for red flags are that I think some of these things seem so normal to me, that I don't actually know what the red flags are. It all seems like something that someone else would gloss over. So I'm preparing notes to take in to the ped, and was going to make sure I include anything
  20. I’m a bit confused on this because someone gave one of my kids an ADOS a few years ago ( we were participating in a research study at a local university) – NOT one of my children being discussed in this thread – but I thought it was administered by an adult, and thus would not notice any social interaction issues with peers. It was just done in my home, with books and toys and dolls . Is that the same thing as what you’re saying? ETA I’m just wondering because dd3 sometimes does just fine with adults (though only sometimes).
  21. I’m sorry- my last long post was a mix of notes on my 7 yo (first part) and my 3 yo (last part). I’ve got lots of thoughts going all over the place!! Sorry for being confusing. i will think about taking videos of them in class. That’s a great idea. Might give me a lot more to work with than just my own recollection. 🙂
  22. PS. Sorry for anyone else following this. I realize that we've gotten completely off the topic of midline stuff.
  23. Those are all such interesting ideas, and I really appreciate you taking the time to write them all out. It gives me lots to think about. In particular, as I've been reading more about autism in girls, I've been reminded that we considered an evaluation for dd7 for a while as well. She has major flags of special interests (was dancing ballet 3-4 hours a day at age 4, still spends 4-6 hours a day watching or dancing ballet four years later), social struggles (struggles to make friends, relates better to younger girls, studied imitation of other girls, meltdowns after group events, lo
  24. I'm curious, besides not wanting to play with other kids, what other red flags you see in her situation? It's so hard for me to distinguish between what's normal 3 yo moodiness and what are actual red flags. And I think that when I can't articulate my concerns very well, then we get the shrug off as me making a mountain out of a mole hill. And only later do I realize that I had other genuine concerns but now feel like I've lost my opportunity to bring them up.
  25. Dd7 met with her piano teacher yesterday and played the song she’d learned the previous week. Teacher proceeded to introduce the idea of transposing music (which Dd has some exposure to already), using her new song as an example. Without any real knowledge of key signatures or keys, dd proceeded to transpose her song from C into D, E, F, G, A, and B all one right after the other just by ear. The teacher pulled me aside to say that she doesn’t know many adult pianists that could have done it so naturally and fluently and it was really something else. I couldn’t help but be proud of her, even th
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