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4KookieKids

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  1. It was just so random. Here we are driving home from ballet rehearsal and she’s eating a snack while looking out the window, and out it came. And then more silence while I tried to think of an appropriate response. Lol.
  2. Dd7: I often think that I'm not real. The world is just a giant head and I'm just a thought. "Wake up!" I shout.
  3. And thanks. 🙂 It's still a fair bit of work for him to narrate something like that and actually use google to edit/correct the mistakes that come with voice typing and a slight articulation issue still, but I feel like taking away the physical barrier of writing has helped him exponentially to be able to express himself, and it's also really helped his confidence. A few months ago, he dictated (with google voice) a simple slide presentation in German even. It had far more mistakes, but he was SO, SO proud of himself. I think this thing was taped up on our window for a months straight! lol. (The actual presentation had a big picture on each side/page.) 10 Fragen über Roboter 1. Genau was ist ein Roboter? Antwort: Ein Roboter ist eine Maschine die Arbeit für Menschen übernimmt. Ein Roboter ist nicht wie ein Staubsauger, weil er viele Jobs auf einmal tun kann. 2. Ist mein ferngesteuertes Auto ein Roboter? Antwort: Nein, ein Roboter kann Dinge ohne Hilfe der Menschen tun. Mein ferngesteuertes Auto kann nicht von alleine fahren. 3. Was alles kann ein Roboter tun? Antwort: Ein Roboter kann viele Dinge machen, wie Vulkanen zu erforschen und dein Essen kochen. 4. Kann ein Roboter laufen, sprechen, oder Musik spielen? Antwort: Ja, und vieles anderes. 5. Hat ein Roboter Gefühle? Antwort: Nein, es ist eine Maschine. 6. Kann ein Roboter denken? Antwort: Nein, weil es vorher programmiert ist. 7. Kann ein Roboter hören? Antwort: Ja, ein Roboter kann hören, aber das kann mein Computer auch. Das ist warum ich das hier schreiben kann. 8. Hat ein Roboter ein Gehirn? Antwort: Nein, es hat kein echtes Gehirn, aber eine kleine programmierte C.H.I.P. das lässt es Logik tun, was wie denken sehr aussieht. 9. Kann ein Roboter essen und schlafen? Antwort: Ein Roboter kann nicht essen aber manche Roboter wie Aibo, der Roboter Hund, sehen aus als ob sie schlafen, wenn ihre Batterien lehr sind. 10. Gibt es Roboter Tiere? Antwort: Ja, wie Aibo der Roboterhund. Du hast eben über ihm gelesen. Es gibt auch Roboter Katzen und Roboter Insekten. Manchmal nutzt mann die Insekten für spionieren.
  4. He had just read most of the Horrible Histories book about Rome. 🙂 I was most pleased with his perseverance and his transition, "But even though..." He's never done something like that in his writing before!
  5. Yes, we've started separating out the actual physical act of writing part. So just this week, the same kid "wrote" this using google docs and voice-typing, and even EDITED it himself. It took him right around an hour because he kept stopping and re-dictating things about 10 times before finally giving up and just typing that one problem word himself (he can't yet say /r/ well, so voice typing does have a few challenges for him still). None the less, I feel like this is pretty decent for one hour worth of "writing" : (( ))'s fun facts about The Ancient Romans The Romans are fascinating people. For instance, can you imagine having to beat 100,000 Celts with only 10,000 Romans? How did the Romans do it? The Romans were very organized in battle, while the Celts were not. The Romans became excellent shipbuilders and sailed all over the sea conquering islands. They were excellent fighters and were soon the greatest Empire in the ancient times. Julius Caesar helped expand its Empire but he was power-hungry and was soon murdered by his own followers. The Romans had Gladiators that fought together in an arena against lions, bears, and other wild animals, and sometimes even each other. The Romans liked to see blood so they made it so that the gladiator who lost was killed by the other Gladiator . But even though the Romans were cruel, they built many amazing structures.They built aqueducts that would carry water through the cities to houses. They built huge public baths so everybody could get clean and they also built huge sculptures of famous Romans . Thanks for reading (( ))'s fun facts about Romans. If you like this, then read more of (( ))'s fun facts about the ancient worlds. See you next time!
  6. My ds9 got an arduino starter set recently and has been loving it. But it’s very parent intensive for me, because the guide is very much not written for children and often leaves him somewhat lost.
  7. I’m still going to keep my appt at the diagnostic clinic but they haven’t even called me to *schedule* an appointment yet, so my hopes are not high that that will be very soon...
  8. Well, I think I'm glad to be keeping both appointments, to get input from different people... The private person who did our intake today was super nice and took lots of notes, but it was interesting to note that she flat out said that the ADOS is where it's at, so she'll do that, but she does not suspect it will turn anything up, and chances are that dd3 is just a moody toddler and dd7 is just anxious. But their ados scheduling is 6 weeks out, and then she said it's another 5 weeks out for results, so we have a while to wait anyway!
  9. To be fair, my kids ARE often in pajamas all day. They’re comfy!! On the flip side, my oldest has usually begun his academics by 6-615am...
  10. My most annoying one to date is definitely this: ”You know, your kid probably wouldn’t be autistic if you had just put him in school and daycare, because then he would’ve learned those social skills early.”
  11. This. I specifically don’t want my kids learning social skills from other kids WHO DON’T KNOW ANY BETTER ANYWAY!! Lol.
  12. I think this may be true of an actual teacher. But all we really have to go off of is a Sunday school teacher, which rotates week-to-week, so nobody would really have opportunity to know my girls well, and a dance teacher, where (a) kids are not given much time to interact because it's *extremely* structured (the main reasons we chose this school, because my dd7 completely crumbled in less structured lessons), (b) they only see her once (3yo) or twice (7yo) a week, and (c) there's some financial incentive to say, "Oh no! Your child is a darling! We don't have any problems at all!" Even when I'm being clear that I find no fault in the class itself and am just needing honest feedback regarding my child's development.
  13. I know that a normal psych can do ADHD, but do they also do IQ, achievement, and all these other screenings you're mentioning? I thought that we got sent to a neuropsych for this last time. But I really despise was not fond of either of the two pediatric neuropsychs we have in town when we saw them previously. Thanks for this. It's always helpful for me to have a list of things to ask them, and I tend to have brain lapses right when I actually need my brain cells. ETA: The clinic says the following, but it seems pretty vague, so I'll definitely have to ask them more: "child may undergo behavioral assessments, genetic testing, developmental observations, and speech evaluations"
  14. Yes, I believe insurance will cover it... but I've never had issues with insurance covering stuff, so I don't really know. I don't know how good our children's hospital is, but I don't think it's mainly a teaching hospital. I think autism is also the specialty of the private person, but they're younger and don't have as much experience. I believe the clinic is a diagnostic team, but it doesn't list SLP and OT and all of that on the website, mainly psych, behaviorist, and geneticist. Maybe there are others there that just aren't listed? It is a wham-bam-done sort of deal at the clinic: 3 hours of eval, and *then* the consult with the parent to discuss results, all in one fell swoop. We also did not have great experiences with a neuropsych. I had no idea that hospitals have a wait list that long. Wow. That's crazy. The intake is for both the 7 yo and 3 yo, as is the referral. Thanks for your thoughts. I was thinking I'd keep the intake appointment, because meeting the person and being able to talk about things face to face is important to me in judging character and whether we're clicking and they're really listening to me and taking my concerns seriously. I just wasn't sure if insurance will cover both evals (though it will be a non-issue if the hospital wait list is 9 months, because we won't be waiting that long!) I'm more skeptical of a large clinic, but that's just me...
  15. I have no idea. We already had an appointment with one person for an intake next Tuesday, but it is not the same person as our doctor referred us to. We got referred to a special autism diagnosis clinic at a children’s hospital a bit over an hour away because our Ped really wanted us to see someone that does autism all day every day in order to have the best chance of getting a good eval. they’re supposed to Be calling us back to set up an appt within a few days, so I’m not sure if I should cancel with the other person I scheduled with (who was recommended to me by an autistic mother-daughter pair I’m acquainted with).
  16. Well, our ped referred us for evals for both my 3 and 7 yo, based on what I shared. We'll see what they say, I guess! I have to say that I watched this video on Autism in girls, and if the place we're referred to knows any of this stuff, I'm about 99% positive my dd7 will get the dx. I felt like every single thing he said about girls up through primary school described her to a T. It was uncanny and almost a little bit creepy because I found myself nodding along to every single point except the tomboy part (and then he mentioned that that often comes later and younger girls are all pink and frilly and ultra-feminine, so it still fit our situation.) https://vimeo.com/122940958?ref=fb-share&fbclid=IwAR2nhMU4v_y2u8kvhgSFAtjhT75lRGeEMv6N6z_s9QriiXWC9Sozem0JOFY
  17. Ok. Will do. I also have at least a bit of leverage, I think, given that we were concerned about this two years ago: https://forums.welltrainedmind.com/topic/636343-interpreting-dayc-2-results/ She was much younger then, of course, but her social/emotional and communication skills were around the 16th %ile then, and while her communication skills have really improved since she had tubes put in and can actually hear now, I think the social/emotional issues just never actually got better, as we were hoping, and may possibly have gotten worse in the last six months. ETA: She's clearly not "delayed" in the initial sense that I was concerned about two years ago. I would guess she's every bit as intelligent as her siblings. So I'm not really sure why she was globally kind of low at the time. But oh well. 🙂
  18. Yes, I think I was going to separate various observations/concerns by DSM criteria, and I was also going to print out the checklists I've seen for "autism in girls" that the "Ask me, I'm autistic" fb page has, and then just highlight things that describe my daughters.
  19. She's not done enrichment classes. While gifted, she doesn't fit in with a lot of gifted stuff at this point, since she's dyslexic and can't read proficiently yet. I feel that the reading struggles really turned her off to most things that are academic (her math started lagging, etc.), and she really turned to music as something she wanted to focus on. She's had the ELLA for language testing, but I don't think she did anything narrative language. I'd have to go back and look at what her scores were. She does have vision issues (even q-bitz jr is super challenging for her).
  20. On the contrary, I already did an intake with a local psych office (someone new who's supposed to know a lot of stuff about autism and specializes in the ados) and I have an appointment with my ped on Wednesday morning to discuss midline, autism, whatever else I think of. Part of the reason I was asking what you took for red flags are that I think some of these things seem so normal to me, that I don't actually know what the red flags are. It all seems like something that someone else would gloss over. So I'm preparing notes to take in to the ped, and was going to make sure I include anything you thought was a flag. At this point, I trust you and PeterPan enough to take what you say seriously. 🙂 Plus, there's the issue of potentially losing insurance for a while in a month or two, so I might as well act and eval now while I actually have good insurance. I'm going to talk with them about both of the girls that I've questioned about. If they say it's not autism, then that's fine. But I think I'd rather just do the eval than continue to waffle. I fear that they're going to say it's not autism, even if it is, because of gender differences and giftedness. But there's nothing I can do about that, and I've done the best research I can. I just can't seem to uncover anyone who does gifted, girl autism near us. Shoot, when ds was getting eval'd, I couldn't even find someone who did gifted autism near us.
  21. I’m a bit confused on this because someone gave one of my kids an ADOS a few years ago ( we were participating in a research study at a local university) – NOT one of my children being discussed in this thread – but I thought it was administered by an adult, and thus would not notice any social interaction issues with peers. It was just done in my home, with books and toys and dolls . Is that the same thing as what you’re saying? ETA I’m just wondering because dd3 sometimes does just fine with adults (though only sometimes).
  22. I’m sorry- my last long post was a mix of notes on my 7 yo (first part) and my 3 yo (last part). I’ve got lots of thoughts going all over the place!! Sorry for being confusing. i will think about taking videos of them in class. That’s a great idea. Might give me a lot more to work with than just my own recollection. 🙂
  23. PS. Sorry for anyone else following this. I realize that we've gotten completely off the topic of midline stuff.
  24. Those are all such interesting ideas, and I really appreciate you taking the time to write them all out. It gives me lots to think about. In particular, as I've been reading more about autism in girls, I've been reminded that we considered an evaluation for dd7 for a while as well. She has major flags of special interests (was dancing ballet 3-4 hours a day at age 4, still spends 4-6 hours a day watching or dancing ballet four years later), social struggles (struggles to make friends, relates better to younger girls, studied imitation of other girls, meltdowns after group events, lots of foot-in-mouth situations), sensory issues (she's in OT already), and a number of comorbidity concerns (dx'd with anxiety and depression at 6, concerns over bipolar, dyslexia at 7, but the anxiety and fear are the worst ones here), and brain function I can't even imagine (hears when violin is tuned correctly or if it's off even by a fraction of a note, without even using a tuner, was able to transpose a new song on the spot into six other keys just by ear, one right after the other, without any knowledge of key signatures, on the same day as her teacher taught her what transposition was), etc. On the other hand, she's very flexible if our plans have to change and is unlikely to lose her cool, she's an excellent liar, she seems to understand a fair bit of social stuff, because she's extremely good at manipulating people to get her way, she often shows real insight into people's motives when discussing a story or why someone acted a certain way, and she makes good eye contact, picks up on someone else being upset, etc, which are all things ds struggles with that are supposed to be more typical markers of autism. So we never pursued a dx, and just figured that some flags don't always mean autism. But you're absolutely right that I think I normalize a lot of flagging behavior, because I homeschool and it's just our daily lives. Until ds was dx'd with autism, I had no idea that running around the house and howling like a wolf for an hour wasn't typical for young children. No idea at all. lol. So my idea of what's normal and expected is all out of whack, I know!! Dd3 definitely struggles with any sort of peer interaction. It's helpful that you point out that siblings don't count, because I would've said she does great with her siblings and "only" struggles with kids outside the home. Sometimes, a teacher tells her to join in and she does; others the teachers tell her to join in and she just says, "No, I don't want to be with you all." She's super verbal (more so in the last two months - I noticed that all of a sudden she went from a sort-of normally talking 3 yo (she was a bit late because of partial deafness and had tubes put in around two years of age, so before that she didn't talk more than 15-20 words, so she got "caught up" between ages 2 and 3 I feel) to a 3 yo who is speaking in 15-20 word complex sentences and I was talking with my husband about how she must have had a super major brain leap! lol.), but it's unclear to me how rigid (or not) she is or if there are sensory issues, since she throws tantrums at very unexpected times and I just chalk it up to being a super emotional/volatile, somewhat spoiled youngest sibling. 🙂 Like, yes, she's clingy and cries and buries her head in my shoulder and refuses to let go of me when I go to drop her off somewhere, and yes, this is a new phenomenon in the last three months, but she's also 3, you know? lol. It's a lot to think about, and I really appreciate you giving me extra things to think about so I can think more big picture. It's tricky, because I don't think any one thing is really enough to be concerning - but the lot of them together just feels off. But anyone who's worked with my dd's have only ever briefly considered autism before disregarding it (it comes up just because of ds already having the dx), citing their verbally advanced speech and relatively good eye-contact/social interactions. So I don't want to borrow trouble and see autism where there isn't. But I also want to feel good about feeling like I've done my homework, and we've come to the right conclusion after reading all that we could've and learning all that we could've. In particular, I'm not sure I trust anyone in town to actually know about autism in girls, and I expect them all just to chalk my concerns up to overthinking things and that my girls are just fine and young/immature/etc (maybe just because our psych already has, even without doing a full eval)? When I look at normal autism checklists, ds9 flagged them all in the most obvious ways. Those same checklists do not flag my girls as possible autism. They flag a lot more on the checklists I see for girls with autism -- but those don't really seem like they have a body of research behind them or are as in line with diagnostic criteria and such. It'd be nice if I felt like there were someone around who I could really trust to know about it with girls and they could really rule it out for me.
  25. I'm curious, besides not wanting to play with other kids, what other red flags you see in her situation? It's so hard for me to distinguish between what's normal 3 yo moodiness and what are actual red flags. And I think that when I can't articulate my concerns very well, then we get the shrug off as me making a mountain out of a mole hill. And only later do I realize that I had other genuine concerns but now feel like I've lost my opportunity to bring them up.
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