Laurie4b Posted September 1, 2015 Share Posted September 1, 2015 What books or websites do you recommend that have sound information? Quote Link to comment Share on other sites More sharing options...
Katy Posted September 1, 2015 Share Posted September 1, 2015 http://www.amazon.com/The-36-Hour-Day-Alzheimer-Dementias/dp/1455521159 1 Quote Link to comment Share on other sites More sharing options...
Laurie4b Posted September 1, 2015 Author Share Posted September 1, 2015 Thank you. 1 Quote Link to comment Share on other sites More sharing options...
G5052 Posted September 1, 2015 Share Posted September 1, 2015 One I found very helpful for the relationship issues: http://www.amazon.com/Learning-Speak-Alzheimers-Groundbreaking-Approach/dp/0618485171 It's a roller coaster. I've been there. 1 Quote Link to comment Share on other sites More sharing options...
Pam in CT Posted September 2, 2015 Share Posted September 2, 2015 Not "informative" in the usual sense, but Roz Chast's comic format Can't We Talk About Something More Pleasant? is startlingly on point re: both the relationship issues and roller coaster. :grouphug: Sorry you're in a position of having to ask. 1 Quote Link to comment Share on other sites More sharing options...
StephanieZ Posted September 2, 2015 Share Posted September 2, 2015 I'm sorry. (((hugs))) I found many books helpful. I just searched on Amazon and started buying. Depending on the relationship, the stage, the living situation, etc, different books are more helpful than others. I think the key is to buy a couple and start reading. There are some good "support" groups out there on Facebook, etc, but be aware that active members often have STRONG opinions about what you should do and should not do. When I started delving into those groups, I was very discouraged and disheartened when people jumped ALL OVER me responding to my plans to move my mom in with our family. I was told I'd ruin my marriage and make my kids hate me. I was told over and over that ALZ necessarily leads to aggressive, dangerous, nasty behaviors. Etc. Etc. When I explained that my family wouldn't be martyrs because my mom had money to pay for all the help we could want and all the practical assistance (addition to our house, etc.), then I was bragging . . . I finally just shut my mouth. It was a bummer. Lots of people have such strong, almost violent, opinions about what everyone ELSE should do . . . It was actually similar to the negative reactions one often gets about homeschooling -- I think it is threatening to the status quo to actually welcome a loved one in to our family and home instead of stashing her in a nursing home . . . So, anyway, if you aren't going to use a facility (for now), then be aware of who you are confiding in online, as you might find yourself getting "smacked down". FWIW, having Mom with us was exactly the right thing to do, brutally hard, but I wouldn't change it for the world. My mom's was a rapid progressing disease, and she died 3 years after diagnosis. Also, get the legal POAs, etc in place NOW. Yesterday. The day before yesterday. Also, take over finances ASAP. Like yesterday. I guarantee there are errors happening and/or scams being fallen prey to. 1 Quote Link to comment Share on other sites More sharing options...
Laurie4b Posted September 3, 2015 Author Share Posted September 3, 2015 Thank you so much. This is helpful. Quote Link to comment Share on other sites More sharing options...
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