Anyone here have polymyalgia? Dr thinks I may have this autoimmune disorder.

[Rose in BC]

Although I am younger than usual age for this disorder.

 

Two drs in our clinic agree with this diagnosis but are sending me to a rheumatologist for confirmation. Last month when I went for my fibromyalgia prescription I asked dr how he could be certain it was fibromyalgia. He said it was usually a diagnosis of elimination..rule out other things. I described some newer symptoms. He immediately said I was describing polymyalgia. I went for blood work that showed a high crp level which indicates inflammation.

 

Outcome is good...treatment harsh. Patients usually require one or two years of steroids.

 

Anyway, I'm curious if anyone here is familiar with it.

[Twigs]

:grouphug:  :grouphug:  :grouphug:

[8circles]

My dad got this dx several years ago (at about age 70?). He is still on steroids as it hasn't gone away. It is painful but he has managed by keeping active.

[Rose in BC]

My dad got this dx several years ago (at about age 70?). He is still on steroids as it hasn't gone away. It is painful but he has managed by keeping active.

I think it typically diagnosed in the elderly....good to hear he's remained active.

[Jean in Newcastle]

I have fibro but I would gladly take the steroids if it actually meant getting rid of this.  I hope you are treated successfully.  

[Rose in BC]

I have fibro but I would gladly take the steroids if it actually meant getting rid of this. I hope you are treated successfully.

That is how I'm feeling at this moment but I do have to wait until I see rheumatologist. Dr said it might still be fibromyalgia and sometimes people have both...hope not.

 

The only issue with steroids is that some people have to take them for a couple of years and that's hard on the body.