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Positive thoughts, prayers. I just received very bad news.


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I am incredibly sorry. I know I would be devastated to hear this about either of my sisters. My neighbor has ALS; she is in her 4th year now. It's difficult. Sending prayers for you and your sister. :grouphug:

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I'm so sorry for your family. This will be a very hard time for all.

 

Here is a website that may help. Called patients like me. It may help with what to expect and also has an interactive community aspect.

 

Here is a link to a TED video in which the creator of the above site explains how he and his brother (who had ALS) created this site.

 

From the intro:

"When Jamie Heywood's brother was diagnosed with ALS, he devoted his life to fighting the disease as well. The Heywood brothers built an ingenious website where people share and track data on their illnesses -- and they discovered that the collective data had enormous power to comfort, explain and predict."

 

I apologize if someone already mentioned this. I haven't read all the replies. Once again, my heart goes out to you. My beloved aunt and my husband's best friend's father (who was like a second father to dh) both succumbed to ALS.

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