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AngieW in Texas

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About AngieW in Texas

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  1. I'm a "no problem" person. That makes much more sense as a response. I'm almost 52.
  2. That doesn't seem to be the case here. I'm a high school teacher and my students (good students who would be great employees) talk of applying for 40-50 jobs to get 1-2 interviews. And these are just regular retail cashier positions for 17-18yo kids. I was really hoping to get out of the classroom. I submitted more than 70 applications for jobs in instructional design, curriculum development, and training. I only got 5 interviews and two of those were bogus. They were through employment agencies so I couldn't see what the company was and although the job description was about training, they were actually straight up sales positions that were 100% commission. The other three were legitimate and I had phone interviews and got to the second stage of online webex interview with people in three different cities with one of them. Unfortunately, they wanted a current math teacher and while I am also certified in math, I've been teaching science for the past four years.
  3. Her new doctor (the MS specialist) is a neurologist. We were able to connect with other MOG patients through a facebook forum and found several that go to see him in particular.
  4. I had not realized that I didn't update here. We saw the MS specialist two weeks ago. It is MOG antibody transverse myelitis. The lesion on her spinal cord is in her neck and is 7 cm long. The new neurologist did not know that the original neurologist had completely blown us off and done no imaging and no medication. He was astounded that nobody before him had put her on any medication or done anything for her at all. He put her on a one-week course of high dose oral steroids which has helped to reduce symptoms. She will go back to see him in three more weeks. A complication for treatment is her extremely strong vasovagal response. In order for her to have an IV, she has to be unconscious. If she is conscious, she will convulse for the entire time that the IV is in. They tried to give her an IV in the ER and then took it back out again after 5 minutes of convulsions. The most common treatments for MOG are through IV. What the doctor discussed was putting her on CellCept, since that is an oral medication. He wanted to see what the high dose steroid would do first. He does not like long-term steroids because of the damage they cause.
  5. Keep pushing. Go see a different neurologist who has better reviews. It may take a while to get in to see another neurologist, so get an appointment scheduled as soon as you can. My daughter finally got a diagnosis five months after our visit to the emergency room. If that first incompetent, arrogant neurologist had actually ordered an MRI instead of blowing us off, he would have known that she was not making anything up or exaggerating anything. Instead, he insisted that it was carpal tunnel and rushed us out of his office as fast as he could. After that we went to an orthopedist who referred us to a physical therapist who said that we needed to go to a different neurologist. The new neurologist actually did order an MRI and then bloodwork and now my daughter is seeing an MS specialist (not MS, but causes similar symptoms and is more difficult to treat). She is finally getting treatment and it is actually helping. She is recovering some of the coordination that she lost and has less stiffness in her hands.
  6. All of our primary care doctors are nurse practitioners. The only medical professionals we go to who are not nurse practitioners are the plastic surgeon who did a fantastic job on my 21yo this summer (and now they are pain-free for the first time in SIX YEARS!), the ENT who also worked on my 21yo and will be doing so again this winter, and the neurologist for my 23yo. Our primary care physicians are all nurse practitioners and the psychiatrists that my oldest and youngest go to are nurse practitioners.
  7. In that context, I would hope that everybody would see it as God's love including LGBT. I am one of the GSA sponsors at the school where I teach and my students often suffer horrible discrimination in their families and at their churches. Any time they see any kind of olive branch extended to them, it helps.
  8. We have a whiteboard calendar where all the kids post their schedules. There are four of us using three cars. We have to plan around each other's schedules to make sure that everybody can get to and from work and school (21yo is in college). Each of us has a color and we put our work times on the board in our appropriate colors. I have virtually the same schedule every week (school teacher), so I only put my schedule on the board when it is different. My kids all have different schedules every week, so they put everything on the board. As far as the illegal activity goes, your adult son needs to understand that just taking somebody to where they do something illegal can open up a horrible can of legal worms for him. He can end up with greater consequences than his little brother even if he did not participate at all because he is a legal adult.
  9. More than 10 years ago, I would have said Lisa Frank. Now I automatically go to LGBT with rainbows.
  10. Suggestions from my own journey with my 23yo to get her diagnosed properly: 1. Get an MRI for sure. Nobody was taking her seriously because she wasn't in pain and didn't have muscle weakness. They could see that her coordination seemed to be off and she reported reduced sensation, but that wasn't something they could see. Once the MRI showed inflammation in her spinal cord, they finally took her seriously. Initial visit to ER was in early February, first MRI was in June. 2. Get bloodwork done. The second thing that made her be taken seriously was bloodwork results. This was the bloodwork that was ordered based on her spinal cord being inflamed: copper, zinc, vitamin D, MOG, AQP4+. A positive MOG result pushed things further and more bloodwork and more MRIs were ordered and she was transferred to an MS specialist. It has taken 5.5 months to get to the point where we are now. We will finally see the MS specialist that she was transferred to in two more days. We went to the ER the first week of February, saw the neurologist they referred us to the next morning (blew us off and said it was carpal tunnel from too many video games), went to family doctor and got referral to orthopedist, orthopedist referred to physical therapist, physical therapist tried a bunch of stuff and said to try another neurologist, back to family doctor for referral to a DIFFERENT neurologist who wasn't so full of himself, finally got in to see that neurologist and then the wait to get insurance to approve MRI and then the wait to get it actually scheduled, then more blood work and more MRIs and the neurologist that she was seeing transferred her to an MS specialist because it was outside her wheelhouse. MOG was only discovered about 15 years ago and is treated by MS specialists because it is also a demyelinating autoimmune disease. People with MS who have not responded well to standard MS treatments are recommended to be tested for AQP4+ and MOG to see if they were misdiagnosed.
  11. There are four in-n-out burgers in the Austin area. I have one just 10 minutes from my house. I've never been though. The reason only that one location showed up for you when you did the search is that it was looking for Texas as either a city name or a street name. You can't actually search by state. The one in Killeen is on Central Texas Expressway, so it has Texas in the streetname. It looks like Dallas, Ft Worth, Austin, and San Antonio each have several locations. The closest location to Houston is in Austin.
  12. I pulled the sofa about 2 inches further from the wall and now the Aiper can run behind it and get all the dog hair that collects behind it. The biggest thing for me is that it can clean around and under all the things that have to be used when I am using a vacuum. The chairs at the kitchen table don't matter because it can fit between the legs of the chairs. It can go under the coffee table and the end tables. It can go behind the sofa. And it picks up what seems like a crazy amount of dirt every time I run it. If I was getting that much every 2-3 days, that would seem right, but the fact that it's picking up as much as it is when i'm running it twice per day just lets me know how much dirt we had on the floor on a constant basis.
  13. Once I start it, it runs for 2.5-3 hours before returning to the charging base. The noise isn't a problem. I have three dogs. There's always noise. It's much quieter than the dishwasher, the washing machine, and the clothes dryer even when I'm in the same room with it and those are running in another room. I like that it does a pretty thorough job. And the fact that it is ending up with so much in its bin each time it runs tells me that it needs to run that much. Yes, I could do it faster, but I won't. It really needs to be done at least 3x/week to keep up with the dog fur and the dirt. There's enough to do elsewhere in the house that I'd rather focus on those things than what we can shove off onto this. Right now it needs to run 2x/day Since it returns to its charging base automatically, I don't have to babysit it. I wouldn't have spent the money for a Roomba. Those are way out of my price league. But the cost for this wasn't bad at all. Maybe after it has been running 2x/day for a while, I will be able to drop it to 1x/day, but with the amount of dirt and fur coming off of my dogs, I doubt it. Vacuuming by hand still has to happen upstairs and I don't think this vacuum has the power to handle that well enough, especially since it is broken up into all the separate bedrooms. But for my predominantly tile floor downstairs that has limited area rugs, it is great.
  14. We have three large dogs and a backyard that has a significant dirt area, so my downstairs was a mess all the time. I got an Aiper ( https://smile.amazon.com/gp/product/B07KS1TNC3/ref=ppx_yo_dt_b_asin_title_o00_s00?ie=UTF8&psc=1 ) on Friday and I love it so far. It runs for about 3 hours at a time and it can find its recharging station on its own. Since I do have three dogs, I am needing to run it 2x/day in order to keep up with what they bring in. It has a pretty large dust bin and it picks up at least 1/4 - 1/2 cup of dust/dirt and 1 cup of dog hair every time I run it. It hasn't had any problem going from the tile floor to the area rug and back again. The area that I have it cleaning is pretty large: living room, dining area, kitchen, eating area, hallway, and laundry room, probably 1000-1200 square feet. The dogs have paid very little attention to it. I start it in the morning from my phone before I even leave my bedroom. I make sure to empty its bin later in the day. I start it again when I get home from work and make sure to empty its bin before I go to bed. I needed something else for downstairs because the little stick vac just wasn't doing what I needed it to do. I didn't want to buy another full-sized vacuum like the one I have upstairs and I didn't want to have to carry the vacuum up and down the stairs. Since this was just $150, I figured it was worth a shot.
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