Whereneverever
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Posts posted by Whereneverever
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Looking at the picture of behavior as a whole is what makes it increasingly disconcerting, not less.
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So where in that pic she calls her sister's outfit a hells angel SEX PROPERTY, that is not about sex?
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I totally fail to see the "molestation" connection in dressing the kid as a motorcycle chick. I must just be stupid.
I remember dressing my much younger siblings as silly things just for fun. Definitely not about sex.
Wow.
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https://pbs.twimg.com/media/B1ifuZaCUAAySjQ.jpg:large
She also continued dressing her sister as a sex object- her words, when her sister was five. And she was eleven. Is that different than her behavior when she was seven?
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I would also be very troubled at the lack of compassion. The legal immigration status of someone doesn't strip them of rights like maintaining control over their money. I would really try to address the discriminatory feelings he has. Is there a place he can volunteer, while closely supervised?
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My understanding from mandatory reporter training is that experimentation with more than two years in between the ages of the children is not the same as mutual curiosity and "playing doctor" and warrants further investigation.
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Thinking of you today.
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My tween is still attached enough that when she feels really tempestuous she wants to be swept up in a big hug. Sometimes even with me singing a familiar song. I think things get so overwhelming fast that being reminded on such basic levels that she is still my little girl really helps.
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http://www.homesicktexan.com/2014/07/pinto-bean-and-hominy-salad.html This is a new contender here.
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I didn't know about time released melatonin, thanks!
Yes, her room is dark. Nothing changed other than the meds to start this.
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I have tried melatonin and it doesn't seem to help. She is usually falling asleep fine but not staying asleep well and my understanding is melatonin is less effective for that. I haven't heard of a file review before, I wonder how you initiate it? What if the treatment suggestions are different? Does the new doc prescribe things or the old?
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OK, yep, they still don't want to treat it. ARG.
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How far a flight is it to Sacramento, CA.? Our Ilinois neuro moved to be head of kid's neurology at Sutter Children's Hospital there, and many families still use him, flying there from all over the country. Dr. Michael Chez.
I agree with the others, it is the neuro's responsibility to deal with side effects from meds such as sleep issues, not the ped. You cab also ask a pharmacist for his/her ideas to present to the neuro.
Good luck!
I would love to be able to go somewhere else and see someone really good, it just isn't financially feasible at this point. I will make a note of his name, though, thank you.
My dd has seizures & is on 3 meds. Wr are also at the end of the line with medication options. And we are dealing with some serious side effects. I understand your frustration!!
It is definitely the neurologist's responsibility-particularly because the lack of sleep causes more seizures!
Could you call & ask about:
reducing the night time dosage so she can sleep?
Trying melatonin or some other natural sleep aid? I use herbs for myself & kids (chamomile, lemon balm, valerian are my go tos).
If he/she wants pediatrician to manage sleep issues can he/she call & consult with your pediatrician?
I also understand that switching neurologists isn't so easy!
Hugs to you! PM me if you want to vent. My dd is 9 & I get so tired of dealing with these medications!
He did say that he wasn't opposed to us trying melatonin but would not give advice on any other sleep treatments. Thanks for the venting offer!
I agree with neurologist. Could be that the nurse is the gatekeeping and the doctor doesn't even know what is going on.
Our neurologist suggested and supports melatonin for my girls........but of course, each child is different.
Is she only on 1 seizure med? One of mine is on a combo of 2 for best results.
She has a 3 med combo and we've added a fourth periodically when she is sick or has something else going on. We're just topped out. :(
I think the neuro doc should handle it, and you shouldn't have to wait til your next appointment to get help. I would call his nurse now, and expect help. It might be something they can help you with over the phone -- at least temporarily; then you can re-evaluate after her next EEG. Unless the neuro doc seems really terrific, you might want to consider a new one.
There isn't any close other ones- we drive over two hours to see this clinic and they don't seem to encourage doc shifting within the same practice. I did call the nurse and she said we could try melatonin but that was the extent of what he could suggest.
Thank you to everyone who has taken the time to respond!
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It's more than two hours to the current neurology practice and the next closest one is about 7 hours. We are really limited by geography. I plan to really press for help at the appointment next month, I just want to make sure I'm not off base that it's his job, not the pediatrician. Thanks!
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Wyoming and we go to Colorado.
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We don't have a ton of awesome medication choices left so we are probably looking at a complimentary medication for sleep. But even so, so many sleep medications interact with AEDs that I don't blame the pediatrician for not wanting to dose her. UGH.
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Please don't quote. Thanks!
My seven year old has epilepsy. She has been having more seizures than normal lately and so over the phone her neurologist keeps bumping her dosage up. We are now over the top of the dose for her age and size. She has been having a hard time falling asleep and staying asleep since the last dosage increase- and being overtired makes her have more seizures.
I called the neurologist's office and reported the sleep issues and they told me to have her pediatrician handle it. My pediatrician is not very comfortable in handling things related to her neurological medication since they don't prescribe it or monitor it.
Apparently both offices think the other should be handling this and in the mean time, she isn't getting enough sleep.
Who would you expect to handle sleep problems?
The first open appointment for the neurologist is next month and we are getting a repeat EEG done then. There is no other close pediatric neurology practice- as it is we drive to the next state. Currently we just keep making ER trips while we wait.
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If it's a friend's home you really love style wise, try asking them to help you customize a room or two.
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Well, and where are all of those people now? I started really non alarmist with this but I am getting more concerned.
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You want more vs less for hunting so you can safely shoot.
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My four had it. It was bad but they are ok. It's scary, though, one of my friends has a four year old in the Icu with it. :(
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Another vote for a 40+. When we were looking we looked at places smaller and it felt like a big yard. I love all of our space. An acre alone easily for a garden is so nice!
Any professional editors out there? A question
in The Chat Board
Posted
At that point I would definitely fix the spelling errors and the punctuation.