My husband was deathly ill for 3 years (and that almost seems like an understatement). As a 6’1 man, he had gotten down to 108 pounds due to gastrointestinal issues that were not properly diagnosed. We spent years going from doctor to doctor only to get vague crohns/various other autoimmune diagnoses.
His illness involved the stomach and intestine, couldn’t keep food down, around 10 (extremely painful) bowel movements per day, he at one point couldn’t get up to walk to the bathroom. We tried everything to get him back in order, but no medication was working. He also had left quadrant pain. For sake of brevity, I am making this long story very short.
Anyway, we said screw the hospital and went to a naturopath, who suggested he take a GI-MAPS test (Microbial Assay Plus). If it wasn’t for this test, my husband would.not.be.here. What we found was a terrible case of H.Pylori, which the hospitals never considered, just jumped to cancer and autoimmune disease. Our next hurdle was getting the hospital (VA) to acknowledge the test, they would not. So we had to look outside of that system (surprise) and we found a doctor that prescribed a simple antibiotic for H. Pylori. That was a year and a half ago, and he is right as rain and very healthy now.
The GI-MAPS test is essentially a better alternative to a colonoscopy (my husband had colonoscopy, we opted out of the endoscopy although it was scheduled). It looks at the gut at the microbial level, and we were able to gain a lot of understanding about what was going on. The colonoscopy left us with a “we don’t know, probably Crohns”, whereas the GIMAP pinpointed the issue, and we are so thankful for this.
If you live in a progressive area, they may already be using the GI-MAP instead of colonoscopy in some cases. If not, it is definitely something to refer to a naturopath for, and pay out of pocket. It was worth every penny. Maybe that is something that could help you nail down exactly what is going on. Best wishes-
ps. I would highly consider the test even if you tested negative for h pylori. My husband tested negative at the hospital as well, which is why they would never consider it again. But he did have hpylori. The strand/type he had wasn’t detectable via the test they had at the hospital.