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Posted

Anyone want to try to help me think this one through for dd17.

 

She has had this issue for years, but it has gotten much worse lately.  If she stands in on place too long, she gets a rash of sorts on her legs.  It used to be after 10+ minutes of standing still (she is a cheerleader), but not it only takes a few minutes for it to appear.  It is not weather or temperature related, so her being cold isn't the cause.  It can be standing up straight or something like leaning on a car.  The key is just that she is standing and not moving around.

 

It starts off with her lower legs turning blotchy and red. Over time it travels up her legs. Then what looks like hives start to appear, but they don't look like how allergic hives appear on her. Her allergic hives are a red ring with a soft white area in the middle BUT These are raised and solid red (no white on the raised area).  If anything, the flat skin around them turns a bit white, but the raised areas are definitely solid red.  The darker raised spots on the bottom of her legs can get large like silver dollars. 

 

Over this time, her skin turns various shades of blue and white.  Her skin can be warm to the touch and the weather can be warm, so the doctor who we first mentioned it do, does not think it is Raynauds.  

 

The rash will continue to get worse the longer she stands in one place.  It starts to fade as soon as she sits down. It will start to get better is she  moves around at all but she has to sit down for it to completely clear.  It takes about 15 to 30 minutes for it to fade once she sits down.

 

Once it fades it leaves large areas of fine red spots on her skin that look like petechiae.

 

 

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Posted (edited)

My youngest's legs do this. Ped sent us to cardiology pretty quickly. There they did a full work-up as it can point to vascular and/or cardiac issues. His tests came back fine. There are a couple of syndromes he mentioned as well. For ds, the cardiologist deemed it autonomic instability. For him it can be treated if it becomes worse. Beta blockers in our case but not needed (yet).

I would touch base with her doctor. Ours was very appreciative of the pictures we took.

Edited by PuddleJumper1
Posted

Hey, I have had the same rash since high school. I have had it checked out multiple times in the few years and not one doctor has yet to identify what it is. Did your doctor happen to find anything out?

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