Peaceful Isle Posted January 17, 2015 Share Posted January 17, 2015 I have an aquaintance who was diagnosed with ALS over a year ago. I am not really close to her but would love to get that way. I knew her older sister in college and her dh and my dh know each other from ministry related activities and conferences. Anyways, She has gone from walking to wheelchair bound in less than a year. She is in her early thirties with a young child. I think and pray for her all the time and many times break down in tears. I really want to do something nice for her, but don't know what. I don't want to cross any lines and I know she has tons of family and friends that love her. I am sure they are in need of money for her special needs. Her family is across the states from us, very far way. Anyone know of some one who has ALS who can help me wrap my brain around what I could do for this dear lady? My heart breaks for her. Quote Link to comment Share on other sites More sharing options...
PrincessMommy Posted January 17, 2015 Share Posted January 17, 2015 Does she has some kind of caring bridge account or other way to donate money to her care? I think that would be a tangible way to help her. Quote Link to comment Share on other sites More sharing options...
Peaceful Isle Posted January 17, 2015 Author Share Posted January 17, 2015 Does she has some kind of caring bridge account or other way to donate money to her care? I think that would be a tangible way to help her. I don't think so. I know she did a walk for ALS but only raised a small amount. :( Quote Link to comment Share on other sites More sharing options...
mschickie Posted January 17, 2015 Share Posted January 17, 2015 Just be there and do not treat her different from normal as best you can. My brother in law died from ALS and it was heartbreaking. Gift cards for meals, movies and such would be wonderful for her dh. Going over and just watching a movie with her would mean a lot. Making a blanket, even one of those fuzzy no sew blankets would be a nice gift. I am not sure how much mobility she has. With Dave the ALS prevented him not just from walking but talking and eating. If she can still eat normally, offering to babysit while they have a night or afternoon out would be great. It really just depends on how the disease is progressing with her. Quote Link to comment Share on other sites More sharing options...
Peaceful Isle Posted January 17, 2015 Author Share Posted January 17, 2015 Just be there and do not treat her different from normal as best you can. My brother in law died from ALS and it was heartbreaking. Gift cards for meals, movies and such would be wonderful for her dh. Going over and just watching a movie with her would mean a lot. Making a blanket, even one of those fuzzy no sew blankets would be a nice gift. I am not sure how much mobility she has. With Dave the ALS prevented him not just from walking but talking and eating. If she can still eat normally, offering to babysit while they have a night or afternoon out would be great. It really just depends on how the disease is progressing with her.Thank you for sharing your experience . Hugs Quote Link to comment Share on other sites More sharing options...
umsami Posted January 17, 2015 Share Posted January 17, 2015 You might get some ideas from Susan Spencer-Wendel's book, "Until I say Goodbye". She was a FL reporter who contracted ALS. http://www.palmbeachpost.com/news/news/susan-spencer-wendel-former-palm-beach-post-report/ngDYP/#__federated=1 Quote Link to comment Share on other sites More sharing options...
Peaceful Isle Posted January 18, 2015 Author Share Posted January 18, 2015 You might get some ideas from Susan Spencer-Wendel's book, "Until I say Goodbye". She was a FL reporter who contracted ALS. http://www.palmbeachpost.com/news/news/susan-spencer-wendel-former-palm-beach-post-report/ngDYP/#__federated=1 Thanks you. I will check it out. Quote Link to comment Share on other sites More sharing options...
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