Acadie Posted September 27, 2012 Share Posted September 27, 2012 Oy, anyone have experience with this? To me it's a non-diagnosis, as in, yes, you pass out, and we think your nervous system and heart are involved. Dh can't really work out anymore, despite being a fit 40 yo--his heart rate drops, instead of rising, in response to exertion. He's being seen by cardiologists in the one of the top-rated cardiology units in the country, and when they look at their little piece of the puzzle they say he's a-ok. Pulmonologists say the same. So why is he passing out and feeling like cr*p? I feel like we need a holistic cardiologist, someone to look at the big picture. He's being evaluated for POTS and upping salt and potassium helps, but not enough. We have friends who have been diagnosed with POTS and despite cardiac rehab and drugs they're not better...I'm a little skeptical about the whole thing, and feel like there's something unnamed going on. He's Lebanese--I wonder if we should look into the atypical anemias that are more common in people of Middle Eastern descent. Any other ideas or experiences? Thanks, Amy Quote Link to comment Share on other sites More sharing options...
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