prairiewindmomma Posted December 6, 2011 Share Posted December 6, 2011 (edited) --- Edited November 10, 2021 by prairiewindmomma Quote Link to comment Share on other sites More sharing options...
Barbara H Posted December 6, 2011 Share Posted December 6, 2011 Is it certain that he is getting eye muscle surgery? I'm wondering if it might make sense to push that up and see where he is at that point to plan from there. What sort of provider did the insurance refuse? Some insurance that will turn down vision therapy will pay for an OT who specializes in vision. Quote Link to comment Share on other sites More sharing options...
prairiewindmomma Posted December 6, 2011 Author Share Posted December 6, 2011 (edited) --- Edited November 10, 2021 by prairiewindmomma Quote Link to comment Share on other sites More sharing options...
Barbara H Posted December 6, 2011 Share Posted December 6, 2011 I hope the next appointment goes better. It is very frustrating what insurance will pay for and what they won't! This may be entirely irrelevant to your situation as it sounds like there is some family history, but I'll share this experience in case it helps... when our son got an MRI someone suggested I talk to the anesthesia nurse ahead of time. He told me that what they often use for kids with MRIs (I believe it was maybe phenobarbital) has some kids flipping out and terrible to deal with. He suggested instead that we get propofol. Apparently that's not the first thing they order because it requires an anesthesiologist, but it worked really well for our child. For the actual eye muscle surgery they gave Versed as the get them calmed down (or "drunk" as they put it) and even with a double dose it had absolutely no effect, but the actual anesthesia was fine. The eye muscle surgery was fast and the recovery was easy. So, if the anesthesia part an be worked out, maybe it would help. Quote Link to comment Share on other sites More sharing options...
prairiewindmomma Posted December 6, 2011 Author Share Posted December 6, 2011 (edited) --- Edited November 10, 2021 by prairiewindmomma Quote Link to comment Share on other sites More sharing options...
Barbara H Posted December 6, 2011 Share Posted December 6, 2011 I hope you can figure out something. It sounds like you are doing all the right things. It is really tough when one problem runs up against another. Quote Link to comment Share on other sites More sharing options...
PeterPan Posted December 6, 2011 Share Posted December 6, 2011 As an alternative, have you looked for a COVD doc further away? And is the doc you're considering a Fellow? I know the lead doctor (a Fellow) at the practice we used offered to take a case like yours for free because she felt so strongly she could help. I'd call and search further. They can give you homework and stretch out the appointments, making even a longer distance manageable. Unfortunately, the case they told me about, where they offered to do the VT for free, turned them down and did surgery. Apparently it was the 3rd time and the dc totally lost her eyesight. So it's not without consequences to chose the surgery. I'm not trying to scare you. I'm just saying I would try harder on that VT end. It can be as infrequent as once a month and still have her make great progress. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.