Murmer
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Posts posted by Murmer
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Huh? I don't know if this was addressed to me but if so I don't understand what you are trying to say. :confused: I don't know what you mean.
Nope not you just letting op know that spring hill suites is the half wall not real suites that she is looking for.
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Springhill suites is usually the NOT REAL kind of suite with a half wall that seperates...at least the ones we have stayed at.
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I just started An Assembly Such as This by Pamela Aidan it is a series written from Darcy's point of view during Pride and Prejudice.
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I love the idea of it...and it is so easy and true...BUT as with anything there are limitations to it. It did not work with my child with special needs...she was not able to handle it, choices sent her into a tailspin, having to think was to hard for her, she never adjusted to the if you are calm the door will stay open bit (from the early years book)...it just didn't work for her. She needs more time to process situations and warnings even though we don't get them in the real world.
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there is a fabulous OT in Sunapee NH...I don't know where you are in NH but this one is GREAT!!! and they don't have a waiting list.
ETA: now that I have read the whole thing...I agree it does seem ridiculous...we had the same thing happen...Neuro said thinks its High Functioning Autism but wants ADOS done....ADOS person gave module 1 (for nonverbal kids) and says she has no idea why neuro said HFA and its just ADHD...so we paid all that money to be back at square one with no information and a child who needs help but can't get it.
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We've been trying to figure out a way to drop Comcast for the same reason. The prices are absurd. If anyone can figure out a way we can still get the Disney channel without cable, I'd be very grateful!!!!
Comcast has a digital economy package that includes Disney for like 30 a month.
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DD started Keppra in Sept...with the warning that it could make her more aggressive...but within a week of uping the dose a second time we went from child who attacked us violently daily to a child who melted to the floor crying. So yes it did change her behavior...one of the other side effects is tiredness so I could see a child being a little slower which could equal less impulsive.
I personally also think that in my dd's case that based on the location of the seizures she was having that stopping them has caused behavior to change, the behaviors before were a result of her brain having seizures.
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I have been having the same problem lately...most recently right after I changed the batteries...I wonder if it is an OS problem...hmmm
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I started my dd on ADHD meds at 3.5 yrs. it was a very had decision but it has helped dd so much. She is actually able to learn and play things she couldn't do then. It also unmasked things that are not part of the ADHD that need to be treated. We don't ask should I medicate with other diseases we just do it why is mental illness one where we worry so much...especially if we have already tried other things and it is still a problem.
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Pp said some of it but also good agencies use the money to counsel any and all pregnant women who are considering placing regardless of if the woman does follow through with an adoption plan. It can be expensive but personally I prefer agencies that do that because I know a woman who has placed had a full range of counseling about her choices and really wants to place. Also good agencies will counsel a birth mother for as long as she wants after placement even years and the potential adoptive families pay for that up front. Adoption is expensive but good agencies roll fees until an adoption takes place so if a family has a failed placement aren't stuck with the fees from that and then trying again....that said not all agencies roll so some of the high fees you hear are families with multiple failed placements where they paid expensies per placement and lost it all and still don't have a baby.
Also for reference ivf is typically 5,000 to 10,000 plus including meds to try for a baby and there are no guarantees for that either. And for some of us even ivf would require a medical miracle to have a baby.
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Have you done the overnight video EEG? That is what we did and found out dd had epilepsy. It was a shock to us because I didn't see the episodes but they were there on the EEG but it took a full 24 hour of eeg to make sure.
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So we have had 13 babies born in the last 6 months...with at least 5 more due in the next 6 months....we have a mother's room with 3 some what rocking chairs and a changing table...but announcements have been made recently that mother's may nurse during the women's section (relief society) and that during the 2nd hour (sunday school) there is another classroom with no one in it that can be used...So I selected cry room.
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I think you may be hitting the nail on the head here. Thinking back to the days when my kids were younger, I can remember that snack was about more than, well, eating a snack. It was ritual and community and breaking bread. And the kids loved when it was our turn; it was exciting for them. So, one person offering to bring snack every time is not as helpful or desired as we might think it should be.
Great post, very thought-provoking.
It is a great idea but there is always a trust issue with food allergies and food others make. How can you be sure the right non dairy butter was used unless it canbe proved? How to ensure that the spoon stirring their chocolate frosting was no also used to stir the dairy free rice crispy treats? As the mom of a severe food allergic child these are questions that have to be asked when others bring food and unless I can guarantee that it is 100% safe then I can't let her eat it. In the case of individual snacks the idea of thing to substitute is great but for sharing it's just not safe enough. :( I wish it were.
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I stopped posting there because I just read fluff or children's books....but I have been keeping track and last year read 56 books but this year I am already up to 16. So it definetly gave me an incentive to read more than I was 2 years ago.
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Thanks, I think that is the route to take...don't know where to go because I only know the hospital guess I'll be on the phone today. I just want an accurate picture of my child with no preconceived notions to know if she really could be on the spectrum or not and it's hard to feel that way with the report we just received.
Do you know if using module 1 vs. 2 would change anything?
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So we got the ados results for dd...and we don't understand it. First they gave her module 1 which from everything I see online is for nonverbal kids...dd is is techniqually on level both expressive and receptive language lower average end...so should she have had a different module?
Also it feels like the observer (dr who has been working with her for a year now) didn't pay attention to some of the things dd did...I almost feel like she had a preconceived notion about dd and that was she is not on the spectrum. I am willing to accept that dd is not on the spectrum but it's hard to accept 1 dr saying yes and another saying no.
Would it be in our best interest to find someone who hasn't worked with dd to give her the ados again hopefully module 2 or 3?
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It's not uncommon to encounter a doctor who does not see the autism in your child.. I had a doctor tell me that my oldest daughter didn't have Asperger's several years ago.. She actually has classic Asperger's as far as how it manifests in girls.. Every single symptom possible.. she has it. We finally got a proper diagnosis from a psych who knows how autism looks in girls.
I would take her to a different doctor.. You know your child and you know what she is dealing with.. Don't give up.
I don't know where else to go out here...and I get really stressed out...I consistently feel like people are going to tell me I am nuts my child is normal...even when my dh and other therapists think she has issues I still worry that people are going to tell me I am crazy to keep pursuing things because there is nothing wrong with her....which may be one of the reasons this has been really hard because it feels like the dr is saying there is nothing wrong with my child, which negates what I have to do each and every day to help her.
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There is definitely a wide range of education about autism in the medical community. One thing to keep in mind is there actually is no definitive test that can be given that will return an actual reliable diagnosis of autism. There's no blood test, no genetic test, no nothing that definitively will say yes or no for autism. It's all a matter of opinion. So what you've got is one yes, and one no. A tie breaker might be helpful--or not, depending on the individual medical professional. I know, it's so FRUSTRATING!
From what you wrote I would say that whether she actually "has autism" or is "just very oppositional" the kinds of interventions and therapies that are used for autism would probably be helpful, and I would go with the professional who is most willing to help you get help. In the end, autism is just a label, and merely having "it" labeled, whatever "it" is that's going on with your daughter, isn't going to change anything. Labeling it might make it easier to get help, but the actual label itself changes nothing about your child one way or the other. So really, my advice is not to get hung up on whether she fits the label or not, just look into what might help. If the person who says she's "normal" thinks you don't need any help, and you feel like you're drowning (and I'm guessing you wouldn't be having the evals done if you felt like everything was under control), then go to the neuropsych who thinks she can be helped and ask what to do next. Go where the help is.
And :grouphug::grouphug::grouphug:
Sadly we can't get any help unless she gets diagnosed with autism...we tried with ADHD but everything revolves around the diagnosis of autism. Also many people who meet my daughter and hear she has ADHD think she is a naughty child and refuse accomadations...but say autism and they jump with how to help. Its so frustrating...without a label I feel like I did before where I had no idea what to do that would help her because the normal stuff doesn't work, the ADHD stuff doesn't help her play with other kids...and so again we are left back at square one with what do we do with our little girl so that she can be the best she.
That does not sound oppositional to me. How can she venture an opinion without scoring the test? Did she tell you the score? Was it borderline? Perhaps she didn't administer it correctly.Lori
I think she went in with the opinion dd didn't have autism...she has been working with dd for a year now and has never felt she had autism...but this doctor also doesn't believe in sensory processing disorder. I don't know about administer it correctly because I don't know how it was suppose to be administered, what it was testing or how the scores are determined. I think she will be scoring it to her view that dd doesn't have autism rather than being truly objective...I almost wish the person who did the test had never met my child and could be truly objective.
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Be aware its not always the studio...when I danced 1 studio director was incredible about accepting all body types as long as they worked hard and could do the dancing. But it was the costumer for nutcracker that told me I need to lose weight...At another studio the director removed me from a part because I didn't lose the extra 10 lbs she wanted me to...I was at the thinnest I had been since puberty but had developed thighs and it just wasn't the "look" she wanted. But a true eating disorder is more than just about a dancers body, its about feelings of control and worthiness. Dancing may trigger it but there is more than just wanting to be thin or a person would not go to the extremes that they do. So look for a teacher who does not demean the dancers who helps them be better by pushing and praising but not demeaning.
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4 weeks ago we say a neuropshyc that said he thought dd had high functioning autism.
Today I went to see our child development person who gave her the ADOS...although she hasn't scored it yet I asked what she thought...and she said she has no idea why the neuro said autism...dd is not autistic just very oppositional.
Although while testing she wouldn't play with the dolls...instead she played with the cushion from the chair, would not engage in the activity the Dr wanted. When the dr brought out a squeaking frog she covered her ears...then took the frog and squeaked it in her ear over and over and over again. When dr brought out a cylinder and said it can hop dd said no it can't it rolls. But she did do the birthday party part just fine because she is in love with birthdays...although she covered her ears during the singing, and stopped mid activity when she realized the eyes on the doll blinking and played with them for a bit...I was shocked...I had forgotten how repetitive and playing with parts of objects she still did...but the Dr said she was normal.
So I am now in tears because I feel like I am left with nothing once again. We are back at square one :(
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Thank you for posting this article. My dd is in a sped preschool program, when she was diagnosed 4 weeks ago with high functioning autism we told the school. They said we don't believe that...it's because she works so so hard to be at school so they just see quirky, we see it all. She wants to be "normal" and tries very hard to approximate normal but that does show how much her autism effects her.
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The big difference between the girl/boy thing is that with a boy it is drop pants check...this dr is asking a young girl to take off all of her clothes leaving her to feel unprotected, possibly without control. It is a very uncomfortable position to be a room with a backless robe. I hate the feeling at my yearly how would a young girl feel to be practically naked then told spread em, even if it is just an external check. Now I would understand a dr having a girl pull down her pants for a check but the loss of dignity and control in a backless piece of paper as a young teenager, I don't think that is appropriate.
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so I went there and they do have info...but I can't access it without an account...and I don't want to give them any more information...any idea what to do?
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No sad faces, please!
There have been 13 babies born in my church since August...there are 6 more due this summer...everyone woman who was in the infertility group has a new baby or is pregnant...except me...and it would be a medical miracle if I could get pregnant...we have no money to adopt again and even if we did we could never get approved in our 2 bedroom house. So I am suck out of luck and very sad right now...sorry.
Today was not fun :(
in General Education Discussion Board
Posted · Edited by Murmer
We had an appointment with the infertility clinic...so I also added my female yearly to that since they want that current. Well basically the only way to get me pregnant, assuming I can get pregnant, is to use donor materials :(...then they wanted to make me a pincushion and take blood to check for thyroid and other stuff...Took 3 different stabs on 2 arms in 3 different spots to get any blood out...then they had to fill 3 vials.
Then off the wonderful womanly exam where she told me my uterus was enlarged and sent me off to get an ultrasound...but not the tummy kind. Of course now I am finally home 4 hours later and get to wait to see if there is something wrong or if everything is "normal". I hate going to the doctor :(
ETA: Posted and thanks to Murphy's law of forum posting...the doctor called me back and the ultrasound came back normal so now I just need to pray that the thyroid comes back normal too.