matrips
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Posts posted by matrips
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2 hours ago, kbutton said:
Some other things to look for with scoliosis that can be concerning: https://www.marfan.org/dx/score If you expand the plus signs, it tells what each thing means and how to check it.
Thanks. I will run through those with them tomorrow. So far, nothing on there stuck out, but I’ll check the ones were able to anyway.
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32 minutes ago, Harriet Vane said:
It's a great idea to ask the orthopedic doctor, though I will say your best information on that will come from a physical therapist. Doctors tend to know generally that exercise helps, but physical therapists can tell you which specific exercises are best.
Thanks for that note. I will ask the orthopedic if he would refer them to a PT that could teach them useful exercises for this.
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21 minutes ago, Harriet Vane said:
Re your son's shoulders--is he hypermobile? Have you considered Ehler's-Danlos Syndrome? I ask because I have EDS and I have joints that slip out of place. One of the things that led to my diagnosis is how much my arm bones shift when I attempt pushups. I work regularly with a trainer to build strength to help stabilize shifting of various joints.
No he’s not hyper mobile. He and his identical twin both have their left shoulder higher than their right currently. It wasn’t always like that, so I asked the ped if their book bag this past year (their first full year at a school) could have contributed. They said no. But a heavy book bag all year slung over that shoulder, during the year they finally started growing- they grew about 4” which is a lot for them. 🤷♀️
But I appreciate you mentioning eds. It’s always good to think out loud and consider things. We have several friends that have it and one has a really bad case of it.
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Badger makes a clear zinc oxide face stick, spf 35.
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2 hours ago, Condessa said:
In a silver lining, though, his scoliosis dramatically improved after his tumor resection surgery. He will likely be done with the back brace at the end of this month, having only worn it for about half a year.
That’s wonderful!!
Why/how did the surgery improve the scoliosis?
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2 hours ago, Harriet Vane said:
Wait and see" is the worst possible approach to scoliosis. It is true that some things straighten out with growth. However, you can increase the chances of avoiding pain like mine with two simple things:
--Hang every day for a little while. Literally grab hold of the doorway or monkey bars and hang there.
--Embrace strength training and also vigorous exercise to develop strong back and core muscles. Weak muscles simply do not support the spine well. Just pick something and make it a lifestyle. Swimming? Volleyball? Basketball? Even yoga helps enormously. Do it for the long term, not just for 6-12 weeks as you would get in a physical therapist's care.
I’m not a fan of wait and see, but it was encouraging to read stories from those whose curvature did not worsen.
I would prefer for them to feel like they have a little control over long term results, and be informed about exercise and what helps and what doesn’t and why. So I will definitely ask the orthopedic about that. They have started enjoying working out, and we have an area in our garage for that. Does the spine curve due to lack of support? I’ll have to read up on why it curves and why it worsens, or doesn’t.
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2 hours ago, stripe said:
If possible get x rays with lower radiation since they are large x rays performed often.
The orthopedic is a a pediatric one associated with the children’s hospital, so I hope that is an option. I will be sure to ask. Thank you
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What can you tell me about your experience with its progression and treatments that worked?
Two of my teens were just diagnosed with mild scoliosis. My primary care said the usual thing is to just wait and see for mild cases, but I plan to see an orthopedic to try and actively treat it. My sister has a pretty bad case of scoliosis now, in her 40s and it causes her problems. The doctor said she likely started when she was a teen. I don’t want my teens backs to worsen if there is something g to help prevent that. I’ve read of braces and of exercises. But this is all brand new to me.
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Postal service?
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Not a parent to large age gaps, but a child of them. I was 10 and my brother 13.5 when my sister was born. We loved her and it was awesome having a little one. Christmas was more fun again too 🙂. And now we are both married, live in different pets of the world, but still chat regularly and try to meet up as often as travel permits. I’m glad to have her.
Downsides- my parents were older and more exhausted to handle an active child with a will of her own. There were some difficult times but she stayed very close with both parents. Brother was off to college by the time she was 5, but he was still in the area and came back home for a bit. I was off to college when she was 8 and out of the house after that. But nearby. However, that meant she mainly lived as an only child. My folks often brought neighbor kids or friends on vacation with them so she’d have someone. So she has different vacation memories and experiences with my parents than my brother and I do.
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How old are the kids? From toddler to pre-teen years we bought the Lands End active water sandal. My kids lived in them!
As they got older and needed closed toe sandals for camp, we bought Keens on sale or whatever Costco had on sale. I don’t pay a lot for shoes and clothes while feet and bodies are still growing so much.
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The way my kids sit in chairs? No way would I spend extra money 😂. They curl up, lay over it, hang off it, ...
Unless they are sitting in it for 8+ hours a day, I’m not sure I’d invest money in one, unless money is not tight.
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I’ll have to mention this to my PCP. Not sure if I ever mentioned pre-eclampsia to her; many years and another state ago. But I typically have very low blood pressure. And my pre-e was due to a triplet pregnancy, and they caught it super fast since they monitored me so closely, so maybe not quite the same. But thank you because I will look into it, and have my doctor aware!
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16 minutes ago, happypamama said:
I'm a postpartum PE survivor! I had it and delivered number six at 26 weeks, and then I had it postpartum six days after my 39 week delivery with number seven. I was well informed and knew to check my BP at home and knew when to call in, and I have a rockstar MFM who doesn't mess around with me. It is definitely not talked about enough for most women.
When I used midwives, they saw me a couple of times within the first three days, and then not again until 10-14 days later. That would have missed my PP PE. Since my VBAC with number seven was easy and uncomplicated, and my BPs were fantastic, I was released a day after birth, and even my MFM didn't think she'd need to see me before 13 days unless something changed.
A basic Omron costs $30 at WalMart and Amazon and has saved my life twice.
Also, most of the time, if you're within the first six weeks postpartum, you should be seen in L&D, not the regular ER. If you can't go to L&D, insist that someone from OB come evaluate you in the ER.
We would love to have any of you who are concerned about preeclampsia or its future health effects at https://www.facebook.com/groups/preeclampsia/?ref=share
I just requested to join. Thank you for the information m.
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I hope I remember this information when my daughter and future dils are pregnant. (Many many years from now.)
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2 hours ago, kbutton said:
Pre-eclampsia can put you at risk for blood pressure/cardiovascular issues later in life. Another thing they don't tell you.
Really? I never heard that. What kind of issues should I look out for?
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5 hours ago, PeterPan said:
Small update! Talked with the clinic in my big city, and they said don't bring him here, keep him there with his best continuity of care. So I gave the social worker my new short list and ... She found a placement!!!
So my dad is getting moved, hopefully even today, into a lovely place in his city. It's a VA placement, so they handle everything, zero worries for me ($, transportation, etc.).
That’s a huge update!!! It sounds perfect. That’s amazing he could get a va placement. They were near impossible here. And I’m glad he gets to stay near his doctors and care centers- it sounds like he has had a great setup with that.
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20 hours ago, PeterPan said:
When you do this, how much do they do? Like would they wheel him out and in buildings? Or it's curb to curb? What you're saying makes sense though, that I'm not limited to public transportation, that he could do private.
They would pick her up at her assisted living. She would wait in her wheelchair (and later her motorized wheelchair) in the lobby for them. They would put her in the van, in the wheelchair, strap it down etc. Then wheel her to the doctor (sometimes to the lobby, sometimes to the office itself). But never just dropped on the curb.
Depending on how long the appointment was, they would either wait or have the doctor call when she was done, and then they’d pick her up and take her back to her AL.
Some of the smaller, private drivers went above and beyond. One took her to our house for my kids confirmation. We had a small step, so he took her out of the wheelchair, got her standing with a walker, out the wheelchair up the step and then got her back into in. Believe me, it was a process! He was young and sweet and patient. His prices were more like $25-35, depending on distance, waiting etc. The bigger services were at least double or triple that.
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You mentioned before that money wasn’t a concern and you wanted him in the best place. (If I’m remembering right). If so, I would have him transported to your city, as close to you as possible so you can visit him in rehab more frequently and keep an eye on progress and his treatment by the staff. And hire a local wheelchair transport to appointments within your city. My mom stopped being able to ride in my car, so we just the wheelchair transport. There are the official big name ones, and then there are the local guys who turn a minivan into a wheelchair transport.
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We’ve been back since last August- masked and every other pew roped off. Probably several hundred people each service. They sanitize in between. And youth group is masked and meets in a larger room than they used to. So far it seems to be fine, and I hope they stay that way for a good while. Not looking forward to being all crowded together again.
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I want to take my teens to the Smoky Mountains. Do some zip lining, rafting, kayaking, hiking etc. and have a nice cabin with a hot tub 🙂. We have more fun when we stay active.
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So a few posts now have suggested wider shoes or men’s shoes. I’m going to try that route. Hopefully Brooks will let me order again! 🙂
thanks!
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For mostly a beach and hanging out, I’d go with a shorter drive. What’s closest? Least expensive? You live in VA so tons of history stuff to do all the time anyway.
we did take a family vacation to Chincoteague when the kids were around 5. Awesome trip. Boat ride to see the wild horses, beach days, a class run by the rangers at the national park, a rainy day at the nasa museum place nearby. Plans to go horseback riding didn’t work out, but that was an option too.
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On 5/10/2021 at 12:17 PM, happi duck said:
Going "barefoot" and working out muscle knots made all the difference regarding pain in my feet and legs.
What muscle knots did you have to work out? Just started walking in my keens and now having it band issues
Scoliosis?
in The Chat Board
Posted
Thats really helpful. Thanks. I will ask if they have this.
our PCP said they don’t refer to an orthopedic for mild cases. I think she said under 30%. My thought is I’d rather see the orthopedic early and avoid getting to that point. I’m hoping they’ll refer to a PT if I ask.