This is my daughter's second year at camp. This year is a different council than last years. Last year we had to use Bunk1 if we wanted to send an email letter. I did not send anything before camp and seeing it was her first year, I figured itwas worth it. This year (different council) they gave us a email address we can use to send email! And it appears there is no charge. They will print them out and deliver daily to the unit. (no attachments or E-cards allowed). I will probably go that route again, especially since there is no charge. They can not email back though.

Thank you, will look into that also.

She probably could, but most likely won't be comfortable. Most of her wardrobe is clothes her mom wore. Shirt and slacks with elastic waist and pockets. We would probably have an issue with her getting the skirt high enough or not getting it into the toilet.

I have no issue with whatever they are called, and thankfully if we tell her they need to be worn, she will wear them. She won't be happy about it. If with help we can keep her tolieting, I think that is preferable. My biggest issue was figuring out the communication for when she had to go so we could be there to help, without driving me mad (baby monitor for instance). There is no way she would be able to do it with an extra layer. She doesn't even wear underwear now, just her pants. I think with a schedule where I am there every so often it will work.

Thank you... I am willing to try the headphones, but how simple are they to use? They would need to turn on automatically when she turns the TV on. She uses a 4 button remote right now and throws a fit when the tv gets off cue from the satellite box, and the reason it happens is cause she puts the remote by her leg and then leans on it and it powers off one of the two but not both. She doesn't understand that she is causing it. She has a phone that only requires her to pick up the handset and push the button of who she wants to call. She can call her 105 year old cousin fine,but when we were leaving her home for very short times I would remind her to call me and she would say 'how do I do that?" I am the only other photo on that phone and as I remind her "oh that's you?" No military, never married. Thank goodnes for a small pension and health care from the state of CA. Small enough to qualify for medicaid but enough it has allowed us not to have to pay for her up to this point. I know how important respite care is. We might have forego the weekend trips and focus on a good long day outing every couple weeks. I have already talked with friends who are willing to pick my daughter up when they start heading to the river for park days. It's not wheelchair accessible or I would pack all of us up.

No but we do have a social worker leading us through it. Thankfully Washington state does pay family to provide care. My husband is required to take 30 hrs of training. Due to the fact, I am not related by blood, I am required to take 70. I did drop her an email too asking the same concerns and she is going to put someone in contact with me. I am hoping some of the training covers this.

We could not get anyone to come out to us to evaluate her. Even with a referral from the doctor. One place had no availability and the other three said we were not in their service area. We are looking into caregivers and respite services. One caregiver (who does not take medicaid) said it would be $600 for a three day/two night visit. We also plan on looking/pricing out respite care at a home. Our biggest issue is we have no family around to help.

I understand this part. The part that I am working on is how to get to the point for her to communicate that it is time to go. Trying to figure out how to balance our life with hers, without sitting within hearing distance of her room. Will try taking her at regular intervals so that it is scheduled rather than waiting for her to say she needs to go. Honestly, that is not something that crossed my mind as a possibility.

This is something that is becoming an almost constant discussion between my husband and myself, on how we are going to handle this. And honestly, if we can. We also have an 11 year old, live out of city limits and I can see the effect it is having on her. He swore he would not put her in the same situation he was in with his grandma,and it is coming close. But when you are actually facing the situation, the decisions are much harder to make :(. We are working on getting her medicaid for at home care, with us as primary caregivers. That will allow for 5 hrs of paid care a day which we can hire caregivers as well. Aside from that, we can't currently afford more help. Thankfully, she listens to me and does what we ask of her. She does know that if she doesn't, we may not be able to care for her. She does not have the ability to fight back, except for verbally and then she does not have the words so it's a bit of cursing. She has yet to pull that on me, but has with my husband. She's not a flight risk because she does not have the mobility to walk far and once she is off the ramp, she is on gravel. One thing I am noticing and I need to talk to her neuro about it at the next appointment is an increase in frustration and possibly anxiety. Twice this week I have noticed a flickering of her tongue when she is uncomfortable or very unhappy with the situation. The first was during a drs appt, the second when she came out to dinner and wasn't happy with what we were having. We also had our first "I want to go home" cry, which I am surprised she made it 10 months. She is noticing the changes and I think knows she can't do anything about it.

My concern is that the issue we are having is that she either is not lowering her pants enough or standing before she is finished. I think it is a combo of both, not necessarily at the same trip to the commode. If we use a pull up this won't solve that. If we go to a diaper and use changing her, it will take away the few trips she takes to the toilet, but we can exchange that will walks to the kitchen and back.

This is something we could try, that will work if we are inside. However, I am not sure she will get it :(.

I kind of figured that if she were in a nursing home, that would be the next step. I just wasn't sure which way to go since she is home with us. For the most part it will be the simplest for us to go that route, however, it will take away another part of her mobility.

This is at least my second post on my MIL and I am hoping to hear from those what have BTDT. For those who did not see the first post, and probably new info that might be relevant... MIL is 85 and moved in with us almost a year ago. She had been in a single wide on her own for about 10 years. We had been trying to get her to move in with us for about 5 years and she had to make a choice 2 years ago between us or an assisted living when we found out her help was tired of doing it (distant family). She managed 'ok' on her own but probably should not have been that long. Since moving, her skills have gone down hill quickly. She is 24/7 care since she is unable to press her lifeline button or get herself out of the house in an emergency. Due to a fall about 6-8 years ago we are dealing with speech aphasia (expressive and I also believe receptive). There is also a diagnosis of dementia but her new neuro is not positive of that. Also very limited mobility with walker. We are showering her, helping dress, prepping meals, and managing meds. Onto loss of skills. I have been noticing her pants wet the past couple days. With the speech issue its been hard to figure out what's going on. I believe she is just trying to stand up too early for her commode. This morning she had poop caked on her foot. Clearly, we need to do more her to help her. I struggle here because currently she is ok if we are checking in on her. This means we can be on the property, or in the furthest part of the house and check in hourly. If we go to assist with tolieting (and I am not arguing that it isn't going to happen, just how to make it happen) we would need to be within the kitchen/living area to hear her. Another option, a baby monitor and hope she can tell me when she needs to go (I have my doubts) or listen for the sound of the walker. And truthfully, this is even worse to me than having to be within hearing distance from her room because we have tried the baby monitor and the sound of her tv on all day drove me up a wall. We have attempted a door bell system (and will attempt again) but she just did not understand. It took a while to even find one she could push. The best option that I can see and I need to research, is a type of bed/chair alarm system. So that when she moves to get up, it will go off. This will probably frustrate her, since she does move around her room to her bed and to her desk as well as the commode. We will, if she continues to stay at home, be moved to this combination as her balance gets worse, but she is not to that point yet. The last option, and I don't know when to make this switch, is when do you move to adult diapers? We originally thought a pull up but if she is just standing too early or not getting her pants down quick enough, this won't work. When do you make that jump to removing the toilet and using diapers full time?

We will probably look into that after summer. I need to do more research for her too on licensed fabric to be used - that is what she was told to focus on for pillowcases (Oregon Ducks, Seahawks, etc). She got a lot of feedback from another vendor yesterday lol.

She was the one to approach, tell them what she was making and ask about selling :(. i know some markets that allow kids to sell for free or at reduced costs. Here in our town it is $35 application fee and then $20/week. They only have 5 or 6 venders so far too. The other one about 20 mins away starts at $25 but if she commits to over 8 Sats then it drops to $15 I think. However that one stressed the business license through the state which is only $24, not a big deal unless the city wants one too and the first year is $64 and most likely Jan-Dec :( The local one required me to be there as well (she is 11, good with math and money so I would not have worried.

Ok cool. That might be a good starting point since I don't think the farmers markets will be a go unless one of our businesses do it and then she can tag along. I figured she could start by word of mouth on FB and maybe set up a FB page.

She is starting with those neck cooler things (taking advantage of the weather in the PNW). They will be one size only. And then wants to move onto pillowcases and reversible bags. Good things to look into. Thank you.

Did he not have to collect sales tax? I am hoping we can start without worrying about legal stuff but if she does farmers markets she has to. I honestly am not worried about state license but city ones will add up. Will call our city hall Monday.

Has anyone's child started a legit business to the point they got a business license and had to collect taxes and such? This would be in Washington State if that matters. My daughter wants to start selling items she sews. We have talked to a couple farmers markets and neither give discounts to children who are vendors. One of which said she would need a state business license, I assume that is the case for both. Due to the cost each week, it might not be an option yet but she should still do things legally. Being a weekend I can't call to get answers so seeing if anyone here has advice or has btdt. We have a couple options.... Get her her own business license as a sole proprietorship or register a trade name under our LLC for her. My question if we do that (Under the LLC) is whether city business licenses are registered to the LLC or to individual trade names. Any other things to think about? I have a sole proprietorship so am getting familiar with sales taxes and we are on our first 6 months with both. Have an appt with tax person next week I think so I can ask him too for advice if we end up putting her under the LLC.

Interesting question about this, since we could well be facing it. Let's say they allowed to keep $60/mo. If they have $2000 already in savings, will this be a use it or lose it situation? If they don't have needs that add up to $60/mo can they use it to buy gifts?

We are in the process of sorting through this with MIL. She has applied for medicaid and we are waiting for that process to start. Her spend down will be minimal. We are not looking at AL (nursing home) yet but it is close on our thoughts as we go through this process. For at home care, she qualifies (in Washington state) for 129 hrs of care a month. Orginally it was 93, so the bump up, while I don't know why, was nice. With at home care she will be allowed to keep something like $980/mo. If she goes into a home, that drops to $60/mo. While it will be best for her to keep her here, we don't know how we will do it long term, especially as she needs more care. I keep telling my husband we need to look at homes and start talking to them now, and he is dragging his feet. Weekend respite care (3days/2 nights) at home would cost around $600.

I think, based on research, it's stage 2. I'm keeping a close eye on it, and if it looks worse, I will take her back in. Getting a look at it twice a day. We had gotten into a bad habit of taking her meals in her room. Was simpler and she would complain about missing shows. Now, starting yesterday for dinner, she comes out for all three which gets her up and moving more than she has been. Helps circulation and also gets her off her bum twice within 30-45 mins, three times a day for a couple mins. We will also add the standing up in, especially in the afternoon/evening hours.

So saw her doctor and he is still Ok with where it is for now. He says we are still in stage one and told me what to look for. I am still not 100% sure what I am looking for but I am sure when I see it, I will know. (he said if I google I will probably see extreme ulcers). Told him I was not afraid to bring her back in because I would rather play it safe than realize I should have had help earlier. We are going to have her lay on her side on her bed for 20 mins every couple hours to take the pressure off. I don't think the pillows were working too well because she kept moving it because it wasn't comfortable.

Thank you for all the replies. I actually called into her doctors office and he has openings today so changing rest of days plans and going there after lunch.

Thank you. All of these replies are making me realize to trust my gut and get her back in. Thankfully she has good insurance so I don't have to second guess because of that. It's more the wearing her out of taking her in