bluemongoose
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Posts posted by bluemongoose
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I've not read the Mislabeled Child yet. I'm just getting started on the dyslexia end of things. Thanks for warning me that the authors are more about the dyslexia and not so much up on their Autism information.
note to self: look up Sally Shaywitz :001_smile:
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Grain of salt is exactly what DH said when I brought it up to him. :001_smile:
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I am wondering about a part I read.
It is talking about the minicolumns in the cortex. About how they are further apart in people with dyslexia than in those without. So I was interested in reading more about this study and I googled it. Dr. Casanova, who did the study and was quoted in Dyslexic Advantage, says that you cannot be on the spectrum and have dyslexia because those on the spectrum have minicolumns that are close together. However, many sites on autism all say that dyslexia is a fairly common co-morbid condition. My DS was diagnosed with Aspergers (HFA) a few years ago and recently was diagnosed with stealth dyslexia, so naturally I am curious about this study and what it is claiming.
Thoughts?
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((((hugs!))))
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Update: I don't have the physical copy yet (they are mailing it)...but today was the last day of the VT evaluation for both my boys. ODS does have some focusing issues that they will be addressing with VT. They said it was something that didn't occur until he was asked to do something for a longer duration than the few seconds that a regular eye dr would test for. This made sense based on how I see him when he is reading.
Both boys tested very well in nearly everything except for speed and some reversals. They think they both have stealth dyslexia. Neither one showed their writing skills like they do at home...so they said they are not seeing the writing issues that I am seeing..so no dysgraphia. When doing the exercise where they cross out the letters and numbers that are flipped, it was very interesting to watch. My YDS scanned the whole page multiple times and went through it very slowly. He was double checking each letter against the same letter flipped another direction on the page. He still managed to get a few wrong, but by double checking he was able to correct a few too. They tested so very high on many aspects of the test that the tester said in PS they wouldn't qualify for anything, but that doesn't mean they aren't struggling with dyslexia...just that they are able to use their intelligence to cope. I brought up YDS spelling issues (he cannot spell at all!) and how they both miss math problems from reversals and such. I discussed how eventually as their work load increases wont it be a problem then. He said yes! It is just that the schools wouldn't do anything at this point. So they will be treating ODS for the focusing issues and giving me referrals to something to help with the Stealth Dyslexia. VT starts next week for ODS.
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Oh I just remembered! Tucker and Tate!
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If she is comfortable with the shelf cami that works too. Mine didn't like the elastic feel of the shelf inside the cami. She is very sensitive to exposed elastics and seems.
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My dd is rail thin and has sensory issues. I get it!
Nordstrom's has the ?+tate bralette...cannot remember for the life of me the other name that goes with Tate!
Target has the cat and Jack line.
These were the best bets. At the "beesting" stage you really just need a pull over bralette style or if she prefers more sporty you can get the sports bra style. The strap will show more for sports bras.
They also have the padded kinds with cups. Dd didn't prefer to go straight to those until she had no choice 😉
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Ohelizabeth...I hear ya. Will be back to respond more tomorrow. I need to go focus on your article ☺ï¸
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She has always been like this. I've always had to manage her hygiene. Ironically she is a little extreme with hand washing...her knuckles often crack and bleed from washing her hands so much. She washes her hands for every little thing. But doesn't care if her hair is a mess!
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So far she says she wants to stay home. That's her method for dealing with the issues she's noticing. Thanks for the correct term!
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Ohelizabeth good questions!
What I want to do is read up (I'll look at your book suggestions!) And see how I can help her at home for now. Eventually, we might get to a place where we can do an eval. Either way...yes I need to DO something. I need to figure out ways to help her socially and probably work on some executive function stuff.
I wrote out what I did here because you all are awesome and helpful and I figured you'd either confirm my gut or point out other ideas/rabbit trails to go down.
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Stephens girls-thanks for sharing that. It is definitely food for thought.
I have not had her tested for giftedness...I wouldn't at all be surprised if she was. She has always done everything with little to no teaching and always earlier by years compared to her peers. My DH was tested gifted as a child...and she is very like him. She notices that other kids her age do not understand things she learned years ago...in mathematics especially but also general knowledge.
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My DS 10yo was diagnosed 2(?) years ago with Aspergers (HFA). If you have read my previous posts..this is also one of the 2 DSs that Im getting evaluated for VT as well.
Well now I think my DD might also have Aspergers. I don't know that I will seek diagnosis...but I do want to mull this over and read up on Aspergers in girls specifically. Here is what I am seeing..what do you all think?
1. As a baby she was very quiet and hardly ever slept. She liked to be on the floor more often than in my arms. She did not like to be passed off to anyone other than my DH and I. The only time she really cried was when hurt, passed off to someone else, or if someone was in her face/space. She learned to sign at a very young age and her favorite sign was "all done" which she used when people got too close to her.
2. She started talking at 9mos, walked at a normal 12mos, sounded like an adult by 16 months, and taught herself to read at 2.5
3. She was very bothered by sounds when she was younger, she tolerates these more now. She has always had issue with clothing. She wont wear most things people buy for her and complains that she can feel the letters on tagless clothing. She wears her socks inside out to not feel the seam.
4. She is pretty much self taught student. She prefers it this way. She is very independent and prefers a lot of time alone in her room. She is easily distracted by her brothers when not in her room for studying, so that is part of it, but she still likes a lot of alone time as well.
5. Even though she likes self study we have problems with her choosing the wrong lessons to complete and never getting around to the "other lessons", usually the ones she doesn't like. She will do her math, science, and history no problem...but fights grammar, logic, spelling, writing etc. She also does not turn things in. I have to ask and ask.
6. Recently, within the last year or at most 2 years, (and this is what led me to start questioning), she has basically lost all friendships and ability to connect to other girls. She doesn't "get them" and finds their interests ridiculous. She isn't interested in what other 13 yo girls are interested in. She even goes as far as disdain for the things she cannot understand. Things like boys, twitter, a popular show or movie, or whatever else the girls are discussing. These are girls she has known for years...not new acquaintances. She is interested in horses, chemistry, and math. She is very quiet in public now, looks standoffish and sulky kinda. She will not try and get into a conversation. These girls are very kind and would include her...she is excluding herself. She does play with much younger kids and talks well with adults. Sometimes she says things that are rude or come across snarky though, only she says it kinda deadpan. Not sure if that makes sense. This week she told me she knows she is socially deficient..hurt my heart. To me it seems like when they were little they all just played...I guess she didn't have to try? And now that they are older, she cannot keep up to where they are socially???
7. Is it normal to have a 13yo girl who wont shower, brush teeth, change clothes, brush hair without nagging them to death??? She just doesn't see it as important. Makes me so frustrated!
8. She has always been intense and has meltdowns occasionally. Often after too much social time. She had them more frequently when she was younger.
Anyway...am I crazy for thinking she may also be an aspie?
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I'll try and answer some of the questions...
The VT place is a local University that has an optometry and VT clinic and school. The providers in the clinic are on the COVD site. I have had many friends in the OT and special ED fields recommend this place when they saw some of the issues I was having with my DS. I have an awesome pedi who is great at advising me where to go as well. It was so long ago now that I don't remember if he originally brought up this place or if I did when we discussed the problems I was seeing. Either he did and I then mentioned I had some friends who recommended it too, or I brought it up and he sanctioned it. Can't remember. So I called the VT place. They asked if the boys had had a routine eye exam this year. One of my boys goes yearly and wears glasses, so he had gone this year. The other has 20/20 so he has not gone in a couple of years, so he hadn't. They asked me to fax YDSs eye exam information and then told me to schedule one either with them or through our regular eye dr for my ODS and fax his as well. As they didn't make a big deal about it not being through them, I didn't know it might be a problem. Our regular eye dr will fax it, she just didn't like that I was taking him.
I know that VT isn't for learning disabilities. I don't even know if they have a disability or not. I am seeing issues that look similar to stealth dyslexia and dysgraphia, but they have not been diagnosed with these. We have met the deductible this year, and the clinic is considered "in network", so we are just getting the evaluation to see if the issues are vision related or if we need to look elsewhere. They are charging $150 per kid.
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Has anyone had this kind of experience?
We went to our regular "eye dr." for my DS today. He has not had an eye exam recently because he has perfect vision. We have an evaluation for VT next week, and they requested a recent eye exam.
The Dr asked us what problems we were having that brought us in and I said I was just there to have a routine eye exam and fax the info to the VT clinic. She then printed me a paper on vision therapy basically being unsupported for learning disabilities and not helpful. She asked me to read it and then went on to say I could still go if that is what I want, but it wasn't an eye issue and VT wouldn't be helpful. I never said he had a learning disability. I honestly am not sure what I am dealing with, but I thought the evaluation might be a good start. Is this common?
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No problem. I'm a little more like that now than I used to be. 4 kids and mental health issues in my family (not me) to deal with has kept me from working out as much as I'd like, so I am a little fluffier now. But I did do it as a skinny active person too, it works, you just have to be a little more thoughtful about it or you end up eating nothing but carbs.
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I've trained for a marathon with this diet. Yes miles and miles and miles. And yes I was very thin. It just means you have to eat and eat all the time.
I do not have endometriosis. That was checked. Not saying it couldn't be that for your dd.
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I am actually allergic to all meats except fish now. Yes it is possible to be vegan/vegetarian and get protein and fats. Nuts and avocados are good fats. Beans (hummus!), seeds, greens, buckwheat can also give you protein as well.
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I had this as a teen too. I think it is called abdominal migraines. All the Dr offered me was birth control...I refused. What helped? Drinking more water, getting exercise, eating less meat/dairy (I think this was due to the hormones in it), and taking an advil before the symptoms got started.
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Storygirl...yup. I just talked it over with DH. He is agreeing we should just get them both evaluated.
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Ok, in reading about dysgraphia and stealth dyslexia...I am now starting to worry about my second DS 8yo (nearly 9) too. This DS is horrible at spelling...awful!!! It is like he was never given any instruction in phonics even though we have spent years on it. He struggles with handwriting too. He doesn't have the problem with hand cramping, but his letters are all different sizes. Caps and non caps in random places. He also disregards margins and punctuation, but he does have spacing between words down pretty well. He didn't struggle to learn to read (at 4yo), but he often skips words and very infrequently flips letters or numbers. He hears sounds wrong and he has difficulty decoding words he doesn't know. I have kind of put his issues on back of my brain since older DS's are much worse, but now I am starting to wonder if that is a mistake. This DS doesn't have the other issues my other DS has, so it is easier to just think he is ok. I think I was thinking that with maturity the spelling and handwriting may catch up, but now I think maybe because he is hard working and motivated and not struggling with EF and working memory and processing speed, that he is able to hide problems easier and go under the radar. I am thinking I may take them both in for an eval.
Also in reading about these issues...I was wrong in saying that my older DS is good at spelling. He does very well on spelling tests, but as I look back over his writing, he doesn't spell nearly as well in day to day writing. Difficulty reading music is another problem he struggles with, but plays very well by ear.
Many of the symptoms on the lists for dysgraphia and stealth dyslexia ring true, but present differently in my two boys. I know that doesn't necessarily mean that they have it, but that it is something I need to look into.
And yes, we take breaks here often....legos and trampoline are favorites.
Anyway, I'll just keep reading and thinking and chewing on this information while waiting for the call back from the VT place.
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Ok. I'll look into ot eval as well. Thanks!
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Awesome...the place IS on the list! Yay!
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Do your dc whistle and does it annoy you?
in The Chat Board
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Yes! DS 10 just learned and does it all freaking day! Driving me nuts! The noise here is crazy. Between kids tap dancing constantly, whistling, fighting, squealing, and just overall kid noise...I need a vacation.