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Ewing Sarcoma


KathyBC
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Is anyone aware of the best doctor familiar with Ewing Sarcoma? There is an 11-year-old B.C. girl who is stuck between what was supposed to be two-part spinal fusion surgeries, paralyzed from the chest down following a large hematoma. The second surgery became emergency surgery to remove the hematoma rather than completing the fusion. Her family is hoping for a doctor who may have seen this before. More details can be viewed on Facebook at Greta's Team, email love4greta@gmail.com

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Yes, my dad had Ewing’s sarcoma several years ago and had excellent medical care at the University of Minnesota. Rein in Sarcoma is an organization that promotes funding for research and awareness in our area. Here is their medical advisory board; I realize we are very far away, but perhaps one might be able to consult with local doctors. 

https://www.reininsarcoma.org/home-page/about/medical-advisory-board-2/

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