CD57 for lymes test

[Denisemomof4]

My dd's number is 61. I'm going to research this now but since so many here have experience with Lymes, can you pkease offer input on this test result? I was told by the doctor's office that Labcor likes to see the numbers between 60 qnd 300. The doctor herself likes to see them in the upper 100's.

:confused:

 

Thise of you who had the CD57 and are being treated for lymes, would you mind sharing your numbers?

[Denisemomof4]

Ok, so I should have read first. A concern I have, though, is that sometimes people are treated for years and STILL have numbers too low. I will NOT keep dd on antibiotics for multiple years just because of this number. The docs say to treat until she is symptom free for a month.

 

Again, please share your experiences.

[FaithManor]

:grouphug: Denise, I'm with you...all ears. Dh's Lyme's test will be next month to see if his 28 days of doxy took care of it. We'll be discussing numbers then. I'm too new to this to have any advice.

 

I do understand about the antibiotics. Honestly, YEARS....my brain would explode. I do think that anything and everything that can be done naturally to boost her immune system is in order. Dh thinks I've gone nuts! I control his diet, hand him all kinds of herbs and vitamins every.single.day., make him drinks tons of water to help flush his system, and harp at him CONSTANTLY about pushing himself too hard or not getting enough sleep. But, it.has.to.be.done. if he is going to become healthy again.

 

PM Mariann, she is the guru and may have some sage words for us!

 

Faith

[Spryte]

I don't remember my CD57 number right now - it was low though. I have not been rechecked on that one.

 

My LLMD stopped using the CD57 repeatedly, as she is in the camp that we treat for symptoms, and that the CD57 test does not trump the clinical data. So if your DD had no symptoms for X amount of time, that would trump the CD57 test. Although personally I find it unlikely that one would be symptom free with a significantly low CD57.

 

What is your DD's status re: coinfections? IME, those are a bigger concern than Lyme, in some respects. I had quite the battle with Babs Duncani. Not to mention Bart. I am grateful, truly, for life now.

 

Please don't overlook protomyxozoa rheumatica either. My LLMD is finding that those of us who don't recover well from Lyme & co often have that complicating matters. Biofilms and sludgy blood make for poor healing.

 

FWIW, I was on long-term abx. And am now being treated for the Protozoa.

 

Have you checked out Lymenet.org for feedback? I have not been there in a while, as I am doing fairly well, but it used to be helpful re: treatment questions.

[Denisemomof4]

:grouphug: Denise, I'm with you...all ears. Dh's Lyme's test will be next month to see if his 28 days of doxy took care of it. We'll be discussing numbers then. I'm too new to this to have any advice.

 

I do understand about the antibiotics. Honestly, YEARS....my brain would explode. I do think that anything and everything that can be done naturally to boost her immune system is in order. Dh thinks I've gone nuts! I control his diet, hand him all kinds of herbs and vitamins every.single.day., make him drinks tons of water to help flush his system, and harp at him CONSTANTLY about pushing himself too hard or not getting enough sleep. But, it.has.to.be.done. if he is going to become healthy again.

 

PM Mariann, she is the guru and may have some sage words for us!

 

Faith

 

Faith, we were told she would be treated until she was symptom free for a month. What is your dh's dr saying? What were your dh's numbers?

 

I will have all of us on the Candida diet. I also expect to be buying a ton of supplements. I bought Dr. Zhang's book and may do Traditional Chinese Meds along with antibiotics.

[Denisemomof4]

I don't remember my CD57 number right now - it was low though. I have not been rechecked on that one.

 

My LLMD stopped using the CD57 repeatedly, as she is in the camp that we treat for symptoms, and that the CD57 test does not trump the clinical data. So if your DD had no symptoms for X amount of time, that would trump the CD57 test. Although personally I find it unlikely that one would be symptom free with a significantly low CD57.

 

What is your DD's status re: coinfections? IME, those are a bigger concern than Lyme, in some respects. I had quite the battle with Babs Duncani. Not to mention Bart. I am grateful, truly, for life now.

 

Please don't overlook protomyxozoa rheumatica either. My LLMD is finding that those of us who don't recover well from Lyme & co often have that complicating matters. Biofilms and sludgy blood make for poor healing.

 

FWIW, I was on long-term abx. And am now being treated for the Protozoa.

 

Have you checked out Lymenet.org for feedback? I have not been there in a while, as I am doing fairly well, but it used to be helpful re: treatment questions.

 

I have heard a doctor speak about the CD57 sometimes may never return to higher levels and to treat the symptoms. Dr highly suspects dd has bartonella so I told her I am holding off treatment until all results come back. I heard coinfections should be treated first.

 

I have not heard of Babs Duncani or protomyxozoa. i will look them up.

 

Did you have chronic lymes? How long were you treated? I guess with a CD57 lower than 60 it is considered chronic, so dd is just a teeny above that. It is all so overwhelming.

 

My dd was hospitalized the end of July, incredibly sick with a virus. She was the sickest and it was hard for her to heal. The docs were concerned and called in two separate infectious disease specialists. I really think it was related to the tick borne illnesses in her body. :sad: I can't wait for her health to be strong again!

[Cindy in the NH Woods]

Our dd's CD 57 is in the 20's.

 

Sorry you are going through this, too. :grouphug: