from our indirect experience in children with low tone the SLP does the feeding therapy. There are some specialized in this and in oro motor exercises and disorders versus language disorders.

Dear board members, I am fairly new, I joined knowing only that my child has a severe speech issue, possibly a processing one, we also knew we have a connective tissue disorder but we did not know what is going on and how to help her. Down the path of processing I have started horse riding, the iLS and just very recently looked at ABA-VB speech therapy stuff. This was mostly just an intuition on my side, then we found a good OT specilized in sensory integration and things got moving. The fantastic book THE MISLABELED CHILD is shedding all the light I needed to continue in my search but might not have a lot of therapy ideas. There is a communication gap chapter that describes my child to a T and also explains how these kids are then later labeled as mentally retarded...can you believe it? I cannot, I really cannot comprehend how doctors and therapists cannot figure this out in time and condamn our children...I am so shell shocked and a nervous wreck, I just hope that I am catching this in time. According to this book I might have as I should be able to lessen the effects of this abnormal development (which I am pretty positive now it is linked to the CTD)from what we have been seeing. Also they quote fairly quick responses to the right therapy. Anyhow, the book is giving me hopes and also explaining why everything we are doing right now is having these amazing effects (basically they suggest horses, swimming, sensory integration and a lot of 1-1 speech therapy based on simplified commands and teaching phonemes, then words visually etc). My child's speech gains in 3 weeks are equivalent to the gains she had in a year with traditional speech therapy (she went for 1-2 words sentences to consistent 3-4 words and meaningful conversation as well as talking while playing). What they suggest for these issues is multihour therapy one to one...it's pretty much the Lindamood-bell approach, but can also be implemented differently, I found some verbal behavior therapists...guess what...yes...it works!! For now this is all I can implement in the UK, but these gains are amazing, she is so happy poor baby she is so happy she can talk! She said last night "I do summer salt" I was shocked and so used not to ask her directly that I asked her sister...did you just do a summer salt, how does she know this word? how did she remembered? and my little one replied "I membered"!! I cried so much after that! she understands so much more than what I think she does! I urge a lot of the parents on this board to just have a think about this in case it was missed for your child...and also ask you please please share what was useful for your child, this board is a lifeline for me and I will be forever grateful GG

Hello! We are moving soon to the area from out of the country and would love feedback on the Wayne-Berwyn area for areas to check out. We would be looking at 3-4 bedrooms homes and walking/biking distance from elementary schools/shopping etc. We have 2 girls age 4 and 6 and it would be great to hear about dance classes, girl scouts and good elementary schools. One of our children has special needs so any insight on that would also be fantastic! thank you! GG

Elizabeth sorry it did not publish my comment. I am living close to London and it would not be a difficult thing, the problem is to find other parents to pay for this. I am finding that here most people do not want to pay for private therapy, regardless on how bad is the public one. If we do have to stay longer than a few months though I might ask about it, thank you!

praises of the integrative listening system!!! This is really helping her with toileting! she is going daily, her stools are normal, we do not need any laxative (this is very unsual for her due to the low tone) she is also having a lot less wet accidents, says when she needs to go and hold the pee until we get to the toilet (again unsual, typically she would tell you pee pee when she is doing it). So far these are the improvements we had, it has only been 10 days but everyone has noticed at preschool too. So the processing was in the way for toileting too, poor little baby and noone so far has been able to advise on this (we saw 2 dev pediatrician, a normal pediatrician, a ped urologist, a GP and a number of therapis...yeah...I don't give up...NEVER!!!)

Hi, I am not an expert but I think PROMPT is only one of the methods used and it is totally possible to treat also apraxia with traditional speech therapy, if he is making progress to me sounds like the therapy is working. If you cannot afford more therapies don't beat yourself up, he is receiving some and you are seeing results, I do think that articulation issues are addressed in many ways and they resolve for the most part with drills. You can also look up on the internet blogs of SLTs and do stuff at home.

so we are in the UK, totally different ballpark, services have been a nightmare! We are trying to move back to the US and I have located PROMPT therapists there. Re: apraxia...she has hypermobility, our jaws (I have it too) are very hypermobile click and move out of allignment, that's why I was thinking PROMPT would help to teach her the right movements.I write down the VMPAC, i never heard of it. I am flying solo here...no-one believes me, the ST did not even know about listening programs or horse riding...it's awful! I was able to block a spot in a language enrichment preschool in PA for the fall with the assumption we will be moving...pray for us! ADDING on to this: her processing is mostly impacted when it comes to speech, complex tasks (can you find the boy that is NOT climbing on the stairs in this picture? can you give the cat a sandwich, an apple and a banana) that require working memory. making patterns for example etc...I was reading elsewhere that several of these tasks are mastered around 4 yr of age, she is not even 4, but they were the reasons for which she failed the speech tests.

thank you, we have assumed for ages she was apraxic (she is low tone and had low facial tone), in the UK I was not able to find any PROMPT therapist. We have been doing lots of oro motor stuff, the thing is, she doesn't have ANY of the apraxic errors, she can pronounce things very well, she doesn't have any inconsistent error. What she has is an obvious word retrieval issue (you just need to give her a very small hint for her to know the word) and she is showing issues with processing 3 key words commands that apparently should be mastered at 4. The ST here say she has a language processing disorder, but it seems it is more an overall issue with processing. Her hearing test was fine, in fact was too good, so yes we have been trying to figure out CAPD but they told us until they are 8 you cannot formally test them. They did an auditory discrimination test and she did fine. She has started talking a lot more since 3 weeks ago when we finally found a stable that let us ride horses and also we started the integrated listening system, this is to me pointing to a processing issue. We are continuing somewhat speech therapy but I wanted to try the ABA-VB approach as my child does very well with repetition and multi sensory learning as well as with praises. I am a bit shooting in the dark trying to figure out what else can be addressed that would help the speech thanks so much for brainstorming with me!

thank you, the fact is we just discovered this, her main issue is a major expressive speech delay. Now she is showing to have problems with receptive that are related to processing longer sentences. She does not have a lot of other issues that she seems to cope poorly with, but from my understanding of SID it can be a reason for language delays as it slowls down the processing of everything including executive functions (she for example has issues in recognizing she needs to go to the bathroom in busy places, she does well at thome though). I have the book and I am not loving it...I try to read it again thank you!

Hello! so it seems like this is the main reason for delays in my little girl, she is the under-aroused type, so she seems shy but in fact she is probably in sensory overload most of the time. Anyone here with this type of diagnosis that can share OT tips and what worked for your children? thank you so much! GG

thank you, as you well know this is a roughly rough road to be on

depending on what you look at she is about 6 months behind, except for speech, which is way off the scale. I look at it more...being free...it's tempting...nothing is free for these kids

some of you might like this article related to the relationship between hypotonia and a series of developmental problems. to me this made a lot of sense http://www.leonardkoziol.com/publications/hypotonia_2013.pdf

mmh this is interesting....anyone tried this in younger kids? My daughter is only 4 and it seems it might be something for later on?

yes, if my husband gets the job we are moving to the NW Philly area, along the outer part of the Main Line...good idea..I started booking spaces in therapeutic preschools and was moving along with therapist, the PROMPT is a new thought so I did not act upon it quite yet because we do not know yet where we will actually living. If anyone is from Philly here...please shout out! I need a buddy to figure things out