I'm wondering if someone can help me. I've been to the ER 3 times, my GP 3 times, and hospitalized for 2days. Still no answers. The 3rd time I saw my GP, she said she was sure I have Lupus, but the next time I saw her, she said she was doubting it after reviewing some lab work. This has happened all w/I the last 6 weeks.
I was laying in bed one night when my upper right arm started burning- like I had a bug bite. Then it started feeling like an actual burn. About an hr later it was bothering me enough that I got up and took a look at it.
An inch wide red streak was coming from my armpit, traveling down my arm past the elbow. Figuring this wasn't good, my dh took me to the ER. I was dxed with Cellulitis and given antibiotics. After being sick from the antiB, I was changed to a different one.
Ten days later I am feeling like horrible, my arm is bruised, swollen at the elbow, and very painful. I went to see the dr standing in for my GP.
He sends me to the ER to have me dopplared, to see if I had a blood clot.
No blood clot. Blood tests are run and everything comes back normal- except one test revealed high inflammation. (?)
The ER dr sent me home saying I needed time to heal.
The next night I am in so much pain and now my armpits on BOTH sides are aching, and I have "cording" in my right arm pit. I went back to the ER. (very, very unlike me!)
I was told to stop the antiB as it clearly wasn't helping. (duh!) Because I am now screaming in pain, I am given morphine, which made me very sick, then I'm put through a few more tests. MRI, CatScan, more blood drawn.
My arm hurts so much I can't have anything touching it. I ache everywhere. Finally, after being totally stumped, they admit me to the hospital for further investigation and pain management. I was seen by a Neuro dr, with his tests coming back normal. My GP then wants me to see a Rhuematologist, but they evidently don't come to the hospital.
I'm sent home, with mild pain meds. still no answer. ( the red streak is no longer the issue, the swelling and pain are.)
Here I am few weeks later, and still not getting better. In fact, today both arms hurt, armpits ache and it is clear I have what looks like Edema in my right arm-especially around my elbow and forearm.
I should note that I've been doing a TON of natural, self help. Oil of Oregano, Cleavers, warmed onion on lymph nodes, gentle lymphatic massage, Ibuprofen. I also stopped eating ALL grains , dairy, and sugars.
My dr wants me to see the Rhuemy dr, but I'd rather drive to a larger city to see specialists. Also, this AM,mi read that people see an Orthopedic dr for Edema.
But what is the cause? All if this has already cost several thousands of dollars. I can't afford to waste more money seeing a dr who is going to look at me like I am a mystery dxes case.
I do have a history of Fibromyalgia, EBV, CMV and CFIDS.
I'm sorry this is so long.mive literally saved my arm all day to type all this out.
I'd really appreciate any thoughts or direction.