PandaMom
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Posts posted by PandaMom
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For those who used MCP Phonics as a supplement with another phonics program, did you buy the teacher's guide as well? We are currently using ETC and I want to try MCP Phonics with it but don't want to buy the teacher's guide if I don't have to. Thanks:)
Susie
DD Dallas(7)
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It took a while to figure out how to pay for everything. DH's insurance pays for nothing as they fall under federal law and not our state law. We paid OOP for OT/ST once a week but DD desperately needed more. Then I lucked out and got DD into a ST program at our local university in the Dept. of Communicative Disorders. They utilize grad. students to do ST 2x week under the supervision of clinic directors. The cost was based on income but trust me was nothing compared to what we were private paying. This is DD's 3rd year and she is doing so much better. Since DD is attending ST at the local univ. they also did a CAPD test and complete language eval. on her for FREE. Again utilizing grad students so they could get the practice. You should check and see if there is something like this in your area. The neuropsych. eval was totally OOP but was necessary in order to get her therapies covered. Some medical expenses are deductible on your taxes so definitely check into this. We did in one year and it helped quite a bit. The neuropsych told us about a BC/BS policy for kids in our state and strongly urged us to get it BEFORE she rendered her diagnoses. It is a high deductible policy that pays at 100% after a yearly deductible. ASD therapies must be covered by law in our state. Children 17 and under cannot be denied coverage and there are no preexisting conditions. We use DH's policy for all her doctor visits, meds etc. and the other policy only for her therapies. The monthly premium is high but is totally worth it. We met the deductible in 2 months this summer and the plan is paying for everything now at 100%. She now receives private PT/OT/ST 6 hours a week covered by the insurance and 2 hours per week at the univ. ST program. We could never have done this for DD if it wasn't for the 2nd policy. Please PM me if you have any questions:001_smile:
Susie
DD Dallas (7 y/o)
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The Vyvanse has worked for my DD(7). I saw immediate results. We started her on 20 mg and had to take her down to 10 mg for a few weeks because of the extreme nausea. Once she became used to it I bumped her back up to 20 mg. It seems to be working fine but the one downside for DD is loss of appetite. She is very petite(adopted from China in 2006) and can't afford to lose any more weight. She can't swallow the capsule so I open it up and pour it into a shot glass and mix with either milk or drinkable yogurt.
Susie
DD Dallas(7)
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I really have no advice for you other than to take photos of the injuries. My DD got bit at preschool one time and, although it didn't break the skin, she had a perfect set of teeth marks on her arm for over a week. I kept the pics just in case I ever needed them.
Susie
DD Dallas(7)
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I just downloaded the new app from HWT. "Wet-Dry-Try App for Capital Letters & Numbers". Caution: It only works on the iPad 2 or later. It costs 4.99 so I figure we will give it a try;)
Susie
DD Dallas(7)
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I just went through this. Part of DD's diagnoses were PDD-NOS with Asperger's features and ADHD-Combined type. DH didn't deny that she had these because he finally realized earlier this year that something was "wrong". He was all for neuropsych testing but was against medicating. I took her to the psychiatrist to talk about medications and explained what was going on. I told her I was going the give meds to DD but needed to tell DH first. She even offered to talk to DH in person or over the phone and explain things to him. She gave me brochures on ADHD and the meds she would prescribe. I went home and casually laid the brochures in several areas that I knew he would see them. He never said another word. I got the meds for her and started having her take them. He did tell me that he didn't like it but we needed to try something. Good luck and let me know if you want to talk:)
Susie
DD Dallas(7)
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One of DD's diagnoses last month was Cognitive Disorder NOS with Working Memory Difficulties. Is anyone else here dealing with this? Just wondering what you are doing to help your child with it. I don't think the Neuropsychologist was too keen on me homeschooling DD and she really didn't go into too much detail on what I can do to help DD. Her long term memory is great but it's her short term memory that is the issue. I am looking for advice from those who have BTDT. Maybe any mental type exercises I can do with her and also advice on what curriculum you used that worked well for you. DD is 7 and will be starting at the Kindergarten level this year. She is about 2 years behind but just catching up slowly at her own pace. Her IQ is within the normal range. She is capable of doing the work but it will just be harder for her and will take more time and effort.
Susie
DD Dallas (7)
Jiangxi, China
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Her main recommendations were HearBuilder Auditory Memory and/or Earobics. Nothing really new there. She did mention that she likes a lot of the products that SuperDuperInc. carry.
And then she also mentioned being patient and waiting for DD to finish what she is saying, and then waiting 2 seconds before responding so that DD learns that she has plenty of time to get her thoughts out.
Nothing earth shattering. In fact, I have probably gained more wisdom from this board. But it was nice to rule language problems out and to know that we have already been pursuing things that would actually help.
I am going to check out HearBuilder Auditory Memory. One of DD's diagnosis last month was Cognitive Disorder NOS with Working Memory Difficulties. I have also gained so much knowledge from this board. It helps to know that I am not the only one with a child who struggles like this.
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Have her look into the Rod and Staff preschool series. I really enjoyed using them with DD.
http://www.rodandstaffbooks.com/list/Rod_and_Staff_Curriculum/
Susie
DD Dallas(7)
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I am considering using the Dancing Bears program for DD who is 7. She was just recently diagnosed with PDD-NOS(with feature's of Asperger's), Cognitive Disorder NOS (with Working Memory Difficulties), ADHD(combined type), Expressive Language Disorder, and Childhood Anxiety Disorder. She also has speech articulation problems. I am deciding between Bearing Away and Bear Necessities. If I go with Bearing Away, do I really need to purchase the starter pack that includes the multi-sensory tiles or can I just get away with the workbook? Also, are the workbooks all you need for this program or do I need to purchase other items to go with it?
Susie
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I had my DD(7) undergo neuropsych testing and just got the results today. She was diagnosed with PDD-NOS, ADHD combined type, Childhood Anxiety Disorder, Cognitive Disorder with working memory diffficulties and Expressive Language Disorder. I knew this was coming but it was hard to see it in a report. I am a little overwhelmed to say the least. The neuropsych recommends continued ST, OT, PT and counseling and wants her to get ABA. She also wants DD to take Vyvanse and Kapvay. Does anyone have any info on these two medications? DH is against meds so I need to give him the right info so he will see that she will only be helped by taking them. DD was adopted from China at 14 months and was severely developmentally delayed. She is catching up but at her own pace and is more like a 5 year old now and ready for kindergarten level work. The doctor stressed that she is of normal intelligence and will catch up with therapy and hard work.
Susie
Dallas(7)
Jiangxi, China
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What a small world!!! We live an hour west of you. Let me know if you have questions. I really like Dr. Nemeth and her staff. I'm just going crazy waiting for DD's eval. It takes 2-3 weeks after all the testing is done.
Susie
Dallas(7)
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I took my DD to a neuropsychologist in Baton Rouge upon the referral of her pediatric neurologist. We are currently awaiting the test results to come in and yes I am anxious!!! I am glad I took her there. The Dr. Nemeth's attitude was "I will find out what is going on with your DD." You should check out her website to get an idea of what to look for in your area. Maybe even call her office to see if she recommends someone in your state. It took 5 visits for the complete eval. and she doesn't take insurance so we are out of pocket. I hope to hear something this week. She will go over the eval. with me line by line. I am so ready to find out what is going on so I can move forward.
http://louisiananeuropsych.com/index.html
Susie
Dallas(7)
Waiting for formal diagnosis
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We are just waiting for the official report to come in for DD 7. I took her to a neuropsychologist for a complete evaluation. Her only official diagnosis so far is SPD. She is more than likely GAD and ADHD according to her counselor. DD was adopted from China at 14 months and has developmental delays but is catching up slowly. I am a bundle of nerves waiting for the report. Hoping to find out in less than 2 weeks.
Susie
DD(7)
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I recommend HWT. My 6 y/o DD has speech delays, SPD and anxiety. Her OT works with her using HWT. We also use it at home. We are working through the pre-k book with her now and she is doing well. I just don't push too much because of her lack of hand strength. My parents got her an iPad last week at the recommendation of her OT. I found an app that uses HWT!!! This has made her more excited about learning to write. Here is a link that explains the app. http://otswithapps.wordpress.com/2012/01/20/letter-school-app/
Susie
Mom to Dallas(6)
What Are You Teaching for Kindergarten?
in The Learning Challenges Board
Posted
Just wondering what many of you are teaching for Kindergarten. DD has cognitive delays, PDD-NOS and ADHD along with a few other issues so I don't want to overwhelm her but I do want to do enough to challenge her. She is capable of learning/doing the work but she is just doing it at her own pace. The reason I wonder if I am doing enough is that the director of one of her speech programs asked me if I was following state standards. She used to work for the school system. Short answer, NO. Right now we are using Singapore Math Earlybird, Wordly Wise 3000, HWT's, Lolipop Logic, and ETC mixed with MCP Phonics. She is handling all of this very well and is doing much better than most people give her credit for. I see others that are teaching science, social studies, geography, music, art, foreign languages, etc. I don't want to go overboard but I want to do enough so she doesn't get too far behind and have trouble catching up later on.
Susie
DD Dallas(7)