Changed
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Posts posted by Changed
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I want to like this one million times!!!!!I wish various homeschool groups would stop knee-jerk jumping to the defense of families like these. I know HSLDA and other prominent homeschool groups shared their gofundme early on. Hopefully everyone will back off and let CPS do their jobs in this case.
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I have a mutual acquaintance, so I've been following the story. That's about the only positive thing I can say. :-/
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On my computer, there is a banner at the top of the page that says Well-Traine Mind Online Conference Series with the dates. You click on the banner.
I'm usually on my phone, but just now I was on the computer and saw it. Duh!!
Thanks so much!
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Can you lead me to information on this conference??
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My 15dd is taking it today. It's her first time taking a "real" test!
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Ooo, that's exciting! You'll definitely have fun. Have you thought about bringing your 14 yo? She'd have a lot of fun. Or maybe she needs to stay home to take care of the other dc? Just saying if you can bring her, I would. :)
She has to stay behind to help with the littles. Dh is working on his masters, so he'll be doing schoolwork part of the time. Otherwise, I know she'd love to go.
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I'm going all three days, all ALONE!! I'm so excited!! I've never been and it seems a little scary. Lol.
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I'm done with it, too! We got 18 inches last night, after 12inches two weeks ago. I want spring!
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Thanks everyone! No, we aren't in NZ. ;-) I wanted to school year-round with the calendar year. I guess maybe that means we start next January. ?? We'll just continue doing what we've been doing...read-alouds, science experiments, games, snap circuits, Roominate...all the stuff she loves. And she's halfway through MEP R and LOVES it! I just figured if she's progressing so easily, willingly, and successfully in every other area she should be starting to read as well. lol
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She just turned 5? And you're already trying to get her to write cvc words? And she's been "stuck at the same spot" for two years???? Girl, you started too soon. You need to back way off.
So when do I start? Shouldn't she begin blending words in Kindergarten? And by "write CVC" words, I mean use magnets on the fridge to sound out a word. :-) And we haven't really been doing much for two years, I just mean she's known everything she knows (phonics-wise) for two years. I just started this week trying to sound out CVC words because we've "officially" started kindergarten, so I figured it was time to start...
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DD just turned 5 this week. She's always wanted to learn new things and "do" school. She's known her letters by sight and their sounds since a few months after she turned two. She can write several of them, although she prefers upper case letters. She uses words like indestructible and awesome. She loves being read to and we've read Winnie the Pooh and The Narnia, the Witch, and the Wardrobe. But--she refuses to learn to read. It takes tons of prompting to get her to write cvc words, even though I KNOW (pretty sure??) she's capable. Any thoughts? I know advice will be along the lines of "she's young" and "set it aside for awhile", but I've waited two years! She's been stuck at the same spot for two years!
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I went through the M-chat quiz online, and it did say there are warning signs. I'm confident, though, that he doesn't have autism. You'd just have to see him to understand. He is the most social child I have! At church he loves to get people to look at him so he can smile at them. He loves to cuddle and hug and play with kids. He grabs us and points to what he wants while saying "uh uh" until we get up and get what he wants. I think the ONLY autism sign he has is not talking. But please correct me if I'm wrong. He is very responsive to us, just not with words. I say get up to the table to eat, and he comes in the kitchen and gets in his chair.
In fact, he doesn't throw fits or get frustrated because I almost always know what he wants. Now, he'll throw a fit if I tell him no. Lol. But him not talking doesn't really cause us any problems, other than the fact that I know he should be talking.
He sometimes says mama and dada, but only if I sit there and repeat fifty times. He never just says it to get our attention. But if I say "where's dada?" Then he'll point and laugh.
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I'm sorry you're having a hard time with this. What are your options financially or with your insurance? To get out of that system and get other answers, you'll have to go private.
Yes, some kids don't begin to talk without therapy. We can't tell you for sure why your specific dc is not talking. There can be different reasons, as Lecka was going into. Ear infections, plugged ears, sure. It sounds like his receptive language is very good. I agree that the mix of no speech *and* not waving is concerning. Did they do complete screening on him? (OT, spectrum, etc.)
My ds has verbal apraxia, otherwise known as Childhood Apraxia of Speech (CAS). There's nothing childhood about it and it's not a developmental delay. Praxis is motor planning issues, so verbal apraxia is issues with the motor planning of speech. In that scenario, a dc will have communicative intent but no ability to get it out. They'll typically become very frustrated as time goes on and one common sign is dropping words (saying them once and never again). You can also have oral apraxia, which is difficulties with the movements of the mouth (chewing, blowing bubbles, etc.). When a stroke victim loses their speech, that's praxis too. In our case the psych thinks the apraxia came in on the dyslexia gene, a 2-fer deal. There are a variety of ways to end up with apraxia.
There can also be developmental delays. I'm NOT talking about bloom time, because well I'm just not going there. I'm talking about a developmental delay, something you would go to a developmental pediatrician over. And if you have other flags, that would certainly be something to consider or to talk over with your ped. He's just about to turn 2, so you should be having your 2 year appt. They'll go through developmental things and you should be prepared to discuss them. That's when we were told to make the move on ST, and our ped was very aggressive about it. If there's more going on developmentally, hopefully your ped can help you determine that and see if a referral should be made.
I really don't know causes of no speech beyond that, but I'm not an SLP. I can tell you our SLP puts no stock in the late bloomer thing. Anyways, PROMPT is the therapy to look for if you can find it. If you're going to pay privately, I suggest you use the provider locator on the PROMPT website and see what your options would be. They can help you sort out if there's praxis or not. There can be praxis *on top* of a developmental delay, as confusing as that sounds. The PROMPT therapist is qualified to elicit the motor planning problems and demonstrate them for you, so there will be no doubt of what's going on. Or conversely they can clear you on motor planning concerns and tell you it's NOT apraxia.
Apraxia is not the end of the world. It needs strong, effective intervention. The irony is that PROMPT actually is done ideally just once a week in most cases. But for a dc with apraxia to receive traditional therapy only once a week, that would be concerning. But it just depends on what is going on. A non-specialist may not be able to identify the motor planning problems. The first SLP I visited totally beat around the bush, saying this crap about how they'd work on "communication" blah blah. And she wanted sessions 3 days a week! Went to the PROMPT therapist, who sat him down, demonstrated the motor planning problems, and when she did the first therapy session, the FIRST SESSION my son SPOKE. Not communication, not sign, not crap, SPEECH. Put, on, more, me, do, up... Over and over and over he said these words. So when people ask why we've driven so far for speech, that's what I tell them. You find somebody who can put their hands on your dc and he begins to speak, and you'll drive that far.
Also we did oils. I use flax with him and am just starting EPO. Most people use fish.
But whether it's apraxia or a developmental delay or something else, I can't help you. I can just tell you how to find the person who can sort it out. How to afford it I can't help you with either. I've met someone who successfully petitioned and required her ps to get an SLP trained in PROMPT. It's the law that they have to provide within certain parameters and in this case, for that child, PROMPT was the only effective therapy. So don't give up hope. First figure out what you're dealing with. One step at a time. This is going to be a journey, not a sprint.
I just read through your response again, this time while awake. ;-) After the first few sessions with the therapist I guess I'll evaluate if anything seems to be happening, and if not I'll try and find a provider on the PROMPT website. I keep reading about how early intervention is important, so I don't want to wait around forever...
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Sorry to leave out important info...He did have his hearing checked. He passed that test. :-)
No, he never went through any babbling stage and he doesn't really try to imitate sounds or words. He HAS in the past, and has even repeated a few words, but then never says them again. Now that I think about it when we were on vacation over the summer (taking a million pictures) he said "cheese" a lot because we would always say "say cheese" when we took pictures. But he hasn't said it again since that week over the summer. The slp put in her initial report that he only made vowel sounds, and no consonants. I'm not sure if that matters. ?? She also mentioned that after she played with a car and made car noises he didn't try to imitate the noises. But he does push the cars around.
I'm not sure why he doesn't wave, but I'm not concerned about him being autistic. He makes eye contact, interacts with his siblings, smiles and hugs people. Just to make sure I actually asked the slp if she was worried about him being on the spectrum (not that I even know what that means!) and she said "oh no".
The slp mentioned that they only ALLOW a max of one visit a week. So, if he has a problem that requires more than that I guess I would need to get in touch with someone else.
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I had my son evaluated through EI, per everyone's suggestions here. He doesn't say any words, doesn't wave, doesn't make animal sounds. However, he understands everything and follows most commands.
The process seems to take forever! It took three visits to determine he was eligible, and now two more visits to plan the therapy (next week will be the planning session with goals and finally meeting his slp). The woman today mentioned they will only meet with us weekly for an hour. What on earth are they going to do for him in that time?!
Is there anything I can do now to help him? And my main question: WHY isn't he talking? Is he unable physically? Just doesn't want to? Will he FOR SURE learn to talk, or do some kids have some disorder that prevents them from talking?
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I called Early Intervention and told them my son needed a speech eval. They are sending someone out on Friday at 1:30pm. She asked me what time would be good, and I said anytime but 12-4 because that's when the kids will be napping. She said that was actually a good time for her to come because the eval was mainly talking to me as the parent. Do they really not even need to see him to decide??
Also, EI said they would send me papers in the mail regarding my dd since she was over 3. So, I'm not sure how long that will take. I had her lay (lie??) on her back and when she does the /g/ sound comes out perfectly, but she refuses to do anything else. She is a perfectionist and I can't let her think anything is "wrong" with what she does. lol.
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DH works full time and is taking college classes. There are some weeks when his homework is much heavier and he'll need more time to complete it. And since I was asking him to not do any school work on the day I take dd to the movies, that's why I "asked". I wanted to make sure he could work his school time around that. He really is a good guy. He does dishes and laundry occasionally and watches (for lack of a better word) the kids as much as he can (when not working or doing schoolwork). He doesn't watch sports and would never spend all day doing anything but things that need done. It's really quite sickening how efficient he is. I think he just thought it was absurd for me to even consider sitting through three movies.
I did talk to him earlier and he relented that he shouldn't have called me immature.
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Yes, you are a mother. Mothers take their teenage children to movies which interest the teenager. Sounds like a great mother to me.
Is a triple feature "immature"? Maybe it is to him. That said you should both be counting your blessings that your teenage daughter wants her mother to come along with her on such an outing. Hello. A lot of teens her age would be asking you to drop them off a block away.
This is exactly what I was thinking!!
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Does he name-call frequently?
No, he's actually very quiet, calm, patient, etc...yk, the opposite of me. Lol. I think that's why I was so shocked and had to ask you guys for your opinion.
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He has seen the first two Hunger Games, and while they weren't his favorite movies, he did enjoy them. It's not the choice in the movie, or the fact that he'll be watching the littles; he thinks choosing to spend a day watching three movies is immature.
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DD15 wants me to take her and her two friends to see the Hunger Games triple feature in a couple of weeks. We went to the double feature when the second movie came out.
When I asked dh if he'd watch the kids (he's off work that day), he said I was being "immature". I can't see what it matters I do with my teen on a day out, but he says I'm a "mother" and shouldn't go.
What say the hive? Do you see a problem with it?
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What is a speech therapist going to do to make my boy talk? And are these issues hereditary, because I have a dd in between them age 3. Should she be checked out , too, while we're at it? Lol
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They both have well visits coming up in January. Do I wait until then for the pedi to recommend a speech therapist, or should I do something now. And what do I do? See the pedi or call therapists? And is there a way to do this through the schools so it's free?
Happypamama--he doesn't sign, but he makes it very clear what he wants. :-) He grabs my hand and takes me to the fridge, or hands me his cup when he wants a drink. And he doesn't babble, if that makes a difference. He just points to whatever and says "uh uh uh".
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Here is a chart of when most kids get different sounds. Is the "g" sound the only one she doesn't have? Does she have the other sounds that are on the chart for her age and before? http://www.sltinfo.com/speech-sound-development-chart/
Thanks for the chart! She also has trouble with the /k/ sound snd says "Tate" for cake. Otherwise, I think she says the others right. But I actually never noticed the missing g sound until mil pointed it out. :-/
NOOOOOO!
in The Chat Board
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The mutual friend that I have thinks they are good parents, who live in a "clean, organized" home. I really don't get it.